ddduk.org

Deciphering Developmental Disorders (DDD) project - Home page

What is the DDD study? What is a genome? Technologies used in DDD. How to give samples. How we process your sample. Recruitment into the DDD study has now finished. We are analysing every child recruited to the study, including those where parental samples were not received, and updates will continue to be be posted here. The DDD Study is aiming to issue a report to the clinical teams on all participants by the end of 2017, but research on undiagnosed families will continue until at least 2021.

http://www.ddduk.org/

OVERVIEW OF ddduk.org

TRAFFIC RANK

>1,000,000

REVIEWS

0

PAGES IN THIS WEBSITE

13

LINKS TO THIS WEBSITE

CONTACTS

ADDRESSES

SOCIAL LINKS

ONLINE SINCE

WEBSITE DETAILS

SEO

PAGES

SIMILAR SITES

TRAFFIC RANK FOR DDDUK.ORG

TODAY'S RATING

>1,000,000

TRAFFIC RANK - AVERAGE PER MONTH

BEST MONTH

August

AVERAGE PER DAY Of THE WEEK

HIGHEST TRAFFIC ON

Tuesday

TRAFFIC BY CITY

Sign up

CUSTOMER REVIEWS

Average Rating: 4.2 out of 5 with 13 reviews

5 star

8

4 star

2

3 star

2

2 star

0

1 star

1

Hey there! Start your review of ddduk.org

AVERAGE USER RATING

Write a Review

WEBSITE PREVIEW

LOAD TIME

1.6 seconds

FAVICON PREVIEW

16x16

CONTACTS AT DDDUK.ORG

Genome Research Limited

PERFECT PRIVACY, LLC

12808 Gra●●●●●●●●●kway West

Jack●●●●ille , FL, 32258

US

1.57●●●●8780

ss●●●●●●●●●@networksolutionsprivateregistration.com

View this contact

Genome Research Limited

PERFECT PRIVACY, LLC

12808 Gra●●●●●●●●●kway West

Jack●●●●ille , FL, 32258

US

1.57●●●●8780

ss●●●●●●●●●@networksolutionsprivateregistration.com

View this contact

Genome Research Limited

PERFECT PRIVACY, LLC

12808 Gra●●●●●●●●●kway West

Jack●●●●ille , FL, 32258

US

1.57●●●●8780

ss●●●●●●●●●@networksolutionsprivateregistration.com

View this contact

ADD CONTACT

Login

TO VIEW CONTACTS

Remove Contacts

FOR PRIVACY ISSUES

DOMAIN REGISTRATION INFORMATION

REGISTERED: n/a
UPDATED: 2010 May 15
EXPIRATION: EXPIRED REGISTER THIS DOMAIN

BUY YOUR DOMAIN

NAME SERVERS

1: dns1.sanger.ac.uk
2: dns2.sanger.ac.uk
3: dns3.sanger.ac.uk
4: dns4.sanger.ac.uk

REGISTRAR

Network Solutions, LLC (R63-LROR)

WHOIS : whois.publicinterestregistry.net

REFERRED :

CONTENT

PAGES IN
THIS WEBSITE

13

SSL

EXTERNAL LINKS

17

SITE IP

193.62.203.105

LOAD TIME

1.564 sec

SCORE

6.2

PAGE TITLE

Deciphering Developmental Disorders (DDD) project - Home page | ddduk.org Reviews

<META> DESCRIPTION

What is the DDD study? What is a genome? Technologies used in DDD. How to give samples. How we process your sample. Recruitment into the DDD study has now finished. We are analysing every child recruited to the study, including those where parental samples were not received, and updates will continue to be be posted here. The DDD Study is aiming to issue a report to the clinical teams on all participants by the end of 2017, but research on undiagnosed families will continue until at least 2021.

<META> KEYWORDS

1 project updates

2 publications

3 accessing ddd data

4 family newsletters

5 developmental disorders

6 ethics research

7 further information

8 frequently asked questions

9 welcome to ddd

10 cookies policy

CONTENT

Page content here

KEYWORDS ON PAGE

project updates,publications,accessing ddd data,family newsletters,developmental disorders,ethics research,further information,frequently asked questions,welcome to ddd,cookies policy

CONTENT-TYPE

utf-8

GOOGLE PREVIEW

Deciphering Developmental Disorders (DDD) project - Home page | ddduk.org Reviews

https://ddduk.org

What is the DDD study? What is a genome? Technologies used in DDD. How to give samples. How we process your sample. Recruitment into the DDD study has now finished. We are analysing every child recruited to the study, including those where parental samples were not received, and updates will continue to be be posted here. The DDD Study is aiming to issue a report to the clinical teams on all participants by the end of 2017, but research on undiagnosed families will continue until at least 2021.

INTERNAL PAGES

ddduk.org

1

Deciphering Developmental Disorders (DDD) project - Technologies used in DDD

https://www.ddduk.org/technique.html

What is the DDD study? What is a genome? Technologies used in DDD. How to give samples. How we process your sample. Technologies used in DDD. Although many developmental disorders are caused by genetic changes, each individual change is very rare and we usually don't know where to look for it in the child's DNA. Instead of having a targeted test for a particular change, we therefore have to look across all of the child's genome to find out if and where a change occurred which caused the disorder.

2

Deciphering Developmental Disorders (DDD) project - Developmental disorders

https://www.ddduk.org/disorders.html

What is the DDD study? What is a genome? Technologies used in DDD. How to give samples. How we process your sample. Thousands of babies are born each year in the UK who do not develop normally because of errors in their genetic makeup. We call these problems developmental disorders and they are often obvious from shortly after birth. Some of the most common developmental disorders involve:. Problems with growth of the body or specific parts of the body, such as an unusually sized head;.

3

Deciphering Developmental Disorders (DDD) project - Family Newsletters

https://www.ddduk.org/familynews.html

What is the DDD study? What is a genome? Technologies used in DDD. How to give samples. How we process your sample. Below are links to our annual family newsletters. You will find more information on the methodologies used, scientific research, how the project has progressed and links to family support groups. This site is hosted by the Wellcome Trust Sanger Institute.

4

Deciphering Developmental Disorders (DDD) project - Where do your samples go?

https://www.ddduk.org/yoursample.html

What is the DDD study? What is a genome? Technologies used in DDD. How to give samples. How we process your sample. Where do your samples go? This site is hosted by the Wellcome Trust Sanger Institute.

5

Deciphering Developmental Disorders (DDD) project - How to give your samples

https://www.ddduk.org/givesample.html

What is the DDD study? What is a genome? Technologies used in DDD. How to give samples. How we process your sample. How to give your samples. Although the DDD study is no longer recruiting patients we will continue to receive samples until June 2015 — please don't delay in sending your samples back! Children who are unable to spit directly into the sample tube can use the sponges provided to soak up saliva. Instructions (and video) are provided below. Video resource: how to give your sample.

UPGRADE TO PREMIUM TO VIEW 8 MORE

TOTAL PAGES IN THIS WEBSITE

13

LINKS TO THIS WEBSITE

orangethisway.co.uk

Educating Orange – Orange This Way

http://orangethisway.co.uk/category/being-a-parent-carer/educating-orange

Mind Body & Soul. Out & About. Life without a diagnosis. Posts about being undiagnosed. Accessible bench and hoist loos. Posts about bench & hoist loos. Childcare for disabled children. Posts about being a working parent carer. November 26, 2014. I’m quite a fan of tea. And a huge fan of chocolate. But we all know what happens when you try to make a teapot out of chocolate, right? In fact, none of the local authority people in the room today – including the regional senior SENCO (Special Educationa...

rd.trc.nihr.ac.uk

» Eileen and Sophia’s Story | RD-TRC

http://rd.trc.nihr.ac.uk/news-and-events/news/eileen-and-sophias-story

To discover more call: 44 (0)1223 254601. Training and capacity building. Patient, carer and public involvement. NIHR ‘Think Research’ Rare Diseases Patient Day. Rare Disease Day 2016. Eileen and Sophia’s Story. On 5 August 2015. This is the story of Eileen and her battle to ensure the best care for her daughter who has Myhre-LAPS Syndrome; and to keep her doctors up-to-date with all the new research into it. Sophia’s is significantly delayed and early on I knew she was not meeting her expected milestone...

genomethics.org

GenomEthics - About

http://www.genomethics.org/about.html

This ethics and genomics study is now finished and was conducted by two Ethics Researchers. The team consists of:. Head of Society and Ethics Research and Registered Genetic Counsellor,. Professor of Bioethics and Director of the Ethox Centre, University of Oxford. The two Ethics Researchers are part of the Deciphering Developmental Disorders (DDD) Study based at the Wellcome Trust Sanger Institute, Cambridge, UK. More information about the DDD study can be found here: www.ddduk.org.

grdo.ie

News and Events

http://www.grdo.ie/Newsandevents.html

Genetic and Rare Disorders Organisation. Network of Organisations for Genetic and Rare Disorders. How can I help? UCD Rare Disease Microsite. Visit the site here. Irish Medical Times Article. This article, first published in the Irish Medical Times, highlights the measures being taken by staff at the NCMG to overcome the chronic manpower crisis in the clinical genetics service. Read the report here. Shire release Rare Disease Impact Report. Read the report here. EUCERD release annual report. Centre to re...

bbc.co.uk

Technology is helping to give genetic disorders a name - BBC News

http://www.bbc.co.uk/news/health-25978111

Also in the News. Technology is helping to give genetic disorders a name. Health reporter, BBC News. Share this with Email. Share this with Facebook. Share this with Twitter. Share this with Pinterest. Share this with WhatsApp. Share this with Linkedin. Http:/ www.bbc.co.uk/news/health-25978111. Read more about sharing. Nate loves music and making noises with toys. But they are used to dealing with the unknown. Or 'Will they be able to walk? Nick Meade, Genetic Alliance UK. She remembers it as a tough ti...

aaiddwi.org

Resources - AAIDD

http://www.aaiddwi.org/resources

Hello and welcome to the AAIDD-WI Resources page! Information is added frequently, so please check back often. If you have information you would like to see added or problems with this page (e.g., broken links), please contact julie.grieves@wi.gov. Page content and links are provided as a public service only. These articles are freely available on the internet. Click the name to read the article (link will open a new window):. Use of WAIS-IV vs. SB5 in Intellectual Functioning Assessment. Concerned about...

eshg.org

European Society of Human Genetics: Press releases

https://www.eshg.org/13.0.html

124; Join ESHG. Proposed EU Regulation on Medical Devices. ESHG Education Award Winners. Courses supported by ESHG. Video Streamings of Past Courses. Renew Membership or Collective membership. Application for New Membership. Application for New Collective Membership. ESHG Education Award Winners. Information for patients and lay users. Genetic services in Europe. Ethical, Legal and Social Implications. Meetings of the NHGS. Genetics as Medical Specialty. Legal Regulation of Genetic Testing in Europe.

swanuk.wordpress.com

SWAN UK (Syndromes Without A Name) | SWAN UK

https://swanuk.wordpress.com/author/swanuk

SWAN UK (Syndromes Without A Name) is a project run by Genetic Alliance UK offering support and information to families of children with undiagnosed genetic conditions. Skip to primary content. Skip to secondary content. About Genetic Alliance UK. Find SWAN UK families on Facebook. Find SWAN UK families on Twitter. See videos of the SWAN UK families. SWAN UK families in the media. Author Archives: SWAN UK (Syndromes Without A Name). About SWAN UK (Syndromes Without A Name). Excuse us whilst we change!

UPGRADE TO PREMIUM TO VIEW 9 MORE

TOTAL LINKS TO THIS WEBSITE

17

OTHER SITES

ddduck.com

Untitled Document

DD Duck is Coming to the Internet. DD Duck glowing in New York at the BookExpo America on May 27, 2015.

ddduct.com

´ë´öÈ¯±âDUCT

Ë öÈ âDUCT È ÆäÀÌÁö ÀÇÂµÇ.

dddufault.blogspot.com

Life at the New Dufault House!

Life at the New Dufault House! Thursday, September 29, 2011. Who would have thought that we would move a 3rd time in 10 years since coming to Portland! Well we'v done it and it feels right. We hear people talk all the time about "downsizing", but it takes "guts" to actually do it. Doug and I like the idea of setting ourselves up for our retirement, and this is one step towards that. "More" is not always better. Life is good, we have so many blessings. Let's stay connected. Monday, November 22, 2010.

dddui.com

厦门推特信息科技有限公司项目投资对接平台

Subscribe to get notified when we launch.

ddduk.com

域名售卖

ddduk.org

Deciphering Developmental Disorders (DDD) project - Home page

What is the DDD study? What is a genome? Technologies used in DDD. How to give samples. How we process your sample. Recruitment into the DDD study has now finished. We are analysing every child recruited to the study, including those where parental samples were not received, and updates will continue to be be posted here. The DDD Study is aiming to issue a report to the clinical teams on all participants by the end of 2017, but research on undiagnosed families will continue until at least 2021.

dddul.com

皇冠体育-0088足球吧

Http:/ www.dddul.com/upFiles/infoImg/2015080752568189.jpg. Http:/ www.dddul.com/upFiles/infoImg/2015080651176641.jpg. Http:/ www.dddul.com/upFiles/infoImg/2015080449709513.png. Http:/ www.dddul.com/upFiles/infoImg/2015072349368689.png. Http:/ www.dddul.com/upFiles/infoImg/2015072136981625.jpg. Http:/ www.dddul.com/upFiles/infoImg/2015071874675721.jpg. Http:/ www.dddul.com/upFiles/infoImg/2015071731670647.png. Http:/ www.dddul.com/upFiles/infoImg/2015071336774993.jpg.

dddulces.blogspot.com

Dulce Diana

Club de las Brujitas Galleteras. Una imagen vale mas que mil palabras. Esta preciosidad es la que me ha hecho meterme en el mundo de la decoración repostera y ahora espero poder compartir lo poco que se y que voy aprendiendo con vosotros. Gracias por entrar. Viernes, 9 de febrero de 2018. 191;A QUÉ HUELE VUESTRA COLADA? Yo soy de aromas exóticos o al menos no muy dulzones y por supuesto que duren hasta después de recoger del tendedero. Yo ya estoy apuntada porque Mimosín para mi es sinónimo de calidad y ...

dddulichvietnam.com.vn

Danh Bạ Web dddulichvietnam

Vật Phẩm Phong Thủy. Xem Bói Xem Bói 2016 Tử Vi 2016 Xem Bói Năm 2016 Bính Thân 2016 - D.D.L.V. Chúc Tết Chúc Tết 2016 Câu Chúc Tết 2016 Quà Tết 2016 Tết 2016 - D.D.L.V. Tử Vi Global Tử Vi Phong Thủy Xem Tử Vi Xem Bói Lá Số Tử Vi - D.D.L.V. Hài Tết Hài Tết 2016 Phim Hài Tết 2016 Xem Phim Hài Tết 2016 - D.D.L.V. Tử Vi Số Mệnh Xem Tử Vi Lá Số Tử Vi Phong Thủy Số Mệnh - D.D.L.V. Tử Vi Tử Vi 2016 Xem Tử Vi 2016 Tử Vi Năm 2016 Xem Tử Vi - D.D.L.V. Giải pháp phong thủy cho các thế nhà đất xấu - TDBL. Khối đá t...

dddulou.com

澳门葡京赌场攻略,新濠天地网上开户,注册送58体验金,幸运农场软件,万国娱乐代理,博彩投注平台,www.jb802.com

比拟之下, a6娱乐平台，了解详情. Wwwyun2011.com也不可能所以盼望通过友人圈与学. 排列三号码走势图供解放网财经解. 凯斯娱乐场,明升博彩公司, 铁公机多. 哈瑞斯娱乐城网址After the Spring Fest. 宾利国际娱乐城,豪门娱乐城,欧文每个人. Wwwam9699.com西双版纳景洪市产生3.2级地震震源深度. 制定一企一策计划确保一企一策. Http:/ www.dddulou.com真人真钱网上娱乐,玩家信誉首选,史上最具公信力的线上现金平台,澳门葡京赌场攻略提供真人视讯,百家乐,53点,龙虎斗,轮盘,运动游戏,彩票投注,新濠天地网上开户是一家非常奇特的赌场,注册送58体验金官网网站是业内信誉优秀的娱乐网站之一,幸运农场软件杀号技巧,玩法规则介绍,开奖号码走势图,万国娱乐代理波音平台的博彩公司,博彩投注平台全方面的打造网上信誉博彩公司评级网站,澳门葡京赌场攻略,新濠天地网上开户,注册送58体验金,幸运农场软件,万国娱乐代理,博彩投注平台.