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Welcome | The Degos Disease Support Network

We are a network of supporters and the information hub for those affected by Degos disease. The Degos Disease Support Network

http://www.degosdisease.com/

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Welcome | The Degos Disease Support Network | degosdisease.com Reviews

https://degosdisease.com

We are a network of supporters and the information hub for those affected by Degos disease. The Degos Disease Support Network

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1

Patients’ Forum | Degos Disease

http://degosdisease.com/forums/degos-disease/patients’-forum

Skip to main content. Köhlmeier-Degos Disease: An overview. Histopathological Criteria of Degos Disease. Malignant Atrophic Papulosis - a Clinical Synopsis. Announcements, Questions and Feedback. Where in the world? The Degos Disease Support Network website. To post new content in the forum. Sticky: Additional Information Regarding Degos Disease. In praise of Judith. 41 min 2 sec ago. Here's another short film about two patients. Meet Dr Lee Shapiro. Reynaud's phenomenon and Degos. Hot Thread (No New).

2

Videos | Degos Disease

http://degosdisease.com/info/videos

Skip to main content. Köhlmeier-Degos Disease: An overview. Histopathological Criteria of Degos Disease. Malignant Atrophic Papulosis - a Clinical Synopsis. Announcements, Questions and Feedback. Where in the world? The Degos Disease Support Network website. Select a presentation from the list on the right to view it in this page:. You need Adobe’s Flash Player plugin to view the videos here. Noah S. Scheinfeld MD JD. Abdominal Imaging in Degos. Matthew Frosch MD PhD. Sosa V. Kocheril MBBS.

3

Prognosis | Degos Disease

http://degosdisease.com/info/prognosis

Skip to main content. Köhlmeier-Degos Disease: An overview. Histopathological Criteria of Degos Disease. Malignant Atrophic Papulosis - a Clinical Synopsis. Announcements, Questions and Feedback. Where in the world? The Degos Disease Support Network website. Prognosis is poor when systemic involvement is found, but seems to be good in benign forms. Gastrointestinal involvement may occur in up to 60% of cases – death may occur. Patients with skin lesions only may have a good prognosis. In 1996, Subbiah et...

4

External Links | Degos Disease

http://degosdisease.com/links

Skip to main content. Köhlmeier-Degos Disease: An overview. Histopathological Criteria of Degos Disease. Malignant Atrophic Papulosis - a Clinical Synopsis. Announcements, Questions and Feedback. Where in the world? The Degos Disease Support Network website. Useful links to other websites:. Self Help UK provides a searchable database of over 1,000 self help organisations and support groups across the UK that offer support, guidance and advice to patients, carers and their relatives. Rare Disease Alliance...

5

Forums | Degos Disease

http://degosdisease.com/forum

Skip to main content. Köhlmeier-Degos Disease: An overview. Histopathological Criteria of Degos Disease. Malignant Atrophic Papulosis - a Clinical Synopsis. Announcements, Questions and Feedback. Where in the world? The Degos Disease Support Network website. To post new content in the forum. Announcements, Questions and Feedback. The place to find out more about this forum, ask questions about the forum and to give feedback. End of the line. 4 hours 32 min ago. 58 min 30 sec ago. Forum Contains New Posts.

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Reflections on the patient experience - The Patient Experience Project

http://www.the-pep.com/reflections-patient-experience

The Patient Experience Project. News & views. Reflections on the patient experience. December 23, 2014. It is hard for me to believe that it has been 7 years since I lost my best friend to cystic fibrosis. As time has gone by, the pain has fallen a few layers below the surface, but it only takes writing the first sentence of a blog post for tears to well up in my eyes. Patients crave honesty. Straight talk delivered with compassion is preferred. Laughter feels really good, (even if it triggers a coughing...

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IRANDERMA

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Cases 1 to 10. Cases 11 to 20. Cases 21 to 30. Cases 31 to 40. ALOPECIA, HAIR LOSS. Lupus Foundation of America. Skin Oncology teaching center.

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Welcome | The Degos Disease Support Network

Articles & Papers. My Journey with Degos. Where in the world? Where patients, physicians, researchers and all who are affected by Degos disease come to find answers about this very rare disease. Where patients, physicians, researchers and all who are effected by Degos disease come to find answers about this very rare disease. Where patients, physicians, researchers and all who are effected by Degos disease come to find answers about this very rare disease. THE DEGOS DISEASE SUPPORT NETWORK WEBSITE. We en...

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