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Awesome surfer with muscular dystrophy | Life with Muscular Dystrophy
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Life with Muscular Dystrophy. An online muscular dystrophy book and blog. Catalog of All Posts. What is disability discrimination if not this…. London in a Power Wheelchair →. Awesome surfer with muscular dystrophy. Love it when people share these things with me — a great short film about Ryan Levinson, a surfer with a form of muscular dystrophy. I can’t say much more about it so just watch the film! This entry was posted in Motivational. What is disability discrimination if not this…. You may use these.
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The importance of education | Life with Muscular Dystrophy
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Life with Muscular Dystrophy. An online muscular dystrophy book and blog. Catalog of All Posts. Bilateral heel cord lengthening surgery. The importance of education. I can’t stress enough how important education and learning is for someone with muscular dystrophy. The brain is not a muscle. The brain can continue to flourish despite a decline in physical strength. The brain gets you jobs, paychecks, even dates. Learning is extremely important. One of the things my mom did when I was in junior high was ge...
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5 Gift ideas for people with muscular dystrophy | Life with Muscular Dystrophy
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Life with Muscular Dystrophy. An online muscular dystrophy book and blog. Catalog of All Posts. Don’t think about it so much. 5 Gift ideas for people with muscular dystrophy. So I thought I’d assemble a list of items that have helped me out while dealing with muscular dystrophy because they might make great gifts for yourself or someone you know. 1 Some great slippers. 2 An electric blanket. Reachers are so helpful in my life for doing anything from picking up things off the floor to doing laundry. I...
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There’s more than one way to win | Life with Muscular Dystrophy
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Life with Muscular Dystrophy. An online muscular dystrophy book and blog. Catalog of All Posts. Use a camera bag to hold your wallet, cell, & more. Basketball and my muscular dystrophy →. There’s more than one way to win. In grade school we used to play a game called “Steal the Bacon” in gym class. It involved splitting into two teams, assigning each kid a number, and sending the teams to opposite ends of each side of the basketball court. That was until I figured out how to win in a different way. This ...
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Pay attention to what makes you uncomfortable | Life with Muscular Dystrophy
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Life with Muscular Dystrophy. An online muscular dystrophy book and blog. Catalog of All Posts. I think I get better customer service. What is disability discrimination if not this… →. Pay attention to what makes you uncomfortable. But avoiding an uncomfortable situation that involves the slightest bit of confrontation is probably not in my best interest. I should do what makes me uncomfortable. But starting a conversation can lead to a lot of things, like learning a bunch of new information, meeting som...
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What is disability discrimination if not this… | Life with Muscular Dystrophy
http://musculardystrophybook.com/what-is-disability-discrimination-if-not-this
Life with Muscular Dystrophy. An online muscular dystrophy book and blog. Catalog of All Posts. Pay attention to what makes you uncomfortable. Awesome surfer with muscular dystrophy →. What is disability discrimination if not this…. I have been researching some possible vacation ideas, specifically cruises in the British Isles. One of the cruise lines, Windstar, talks about accessibility on their cruises, which can be found here. Windstar does not discriminate against persons on the basis of disability.
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How wheelchair tennis improved my function | Life with Muscular Dystrophy
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Life with Muscular Dystrophy. An online muscular dystrophy book and blog. Catalog of All Posts. SSDI and Becker Muscular Dystrophy. The Mind and the Brain →. How wheelchair tennis improved my function. I started playing wheelchair tennis in 2006 after seeing a photo of the amazing Nick Taylor. Playing in an electric wheelchair. I had no idea you could play competitive wheelchair sports in a power chair. I started playing tennis again, albeit from a chair now, and it changed my life. Your email address wi...
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London in a Power Wheelchair | Life with Muscular Dystrophy
http://musculardystrophybook.com/london-in-a-power-wheelchair
Life with Muscular Dystrophy. An online muscular dystrophy book and blog. Catalog of All Posts. Awesome surfer with muscular dystrophy. A book about FSH MD →. London in a Power Wheelchair. I recently had an amazing time in London despite traveling with an electric wheelchair AND having a few drama-filled incidents. I learned a few things and wanted to share them with people in chairs who might want to travel there. Quick Summary (for those of you who don’t want to read below). Bed at Thornbury Castle.
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Health | Life with Muscular Dystrophy
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Life with Muscular Dystrophy. An online muscular dystrophy book and blog. Catalog of All Posts. September 21, 2012. A few years ago I was going to aquatherapy quite a bit. I loved it — exercising in the water and then doing some swimming afterwards. After seeing some of the Paralympic swimming online a few weeks ago I decided … Continue reading →. Why I don’t need a (total) cure. April 26, 2011. I don’t care what you can’t do anymore. What CAN you do? March 1, 2011. A great tabletop hand cycle. One of th...
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Events | Life with Muscular Dystrophy
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Life with Muscular Dystrophy. An online muscular dystrophy book and blog. Catalog of All Posts. Cincinnati Children’s Hospital Q&A. May 9, 2012. The Cincinnati Children’s Hospital is putting together a free online live Q&A with Dr. Jeffrey Towbin and Dr. John Jeffries From CCH on May 22nd, 2012 at 7:00pm ET to help families who struggle with early onset Cardio Myopathy related to … Continue reading →. Follow me on Twitter. Get an email whenever a new post is added! Don’t think about it so much.
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