dravet.eu

Dravet Syndrome European Federation

Dravet Syndrome European Federation. News & Events. Dravet Syndrome European Federation. A life without Seizures. The Dravet Syndrome European Federation (DSEF) is dedicated to finding a cure for Dravet Syndrome through funding research and to save lives by increasing awareness and early detection. Alone we are strong, together we are stronger. Dravet Syndrome European Foundation. Was set up in 2014 by eight organizations in seven countries, aiming to jointly fight for a cure for this terrible disease.

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Dravet Syndrome European Federation | dravet.eu Reviews

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Dravet Syndrome European Federation. News & Events. Dravet Syndrome European Federation. A life without Seizures. The Dravet Syndrome European Federation (DSEF) is dedicated to finding a cure for Dravet Syndrome through funding research and to save lives by increasing awareness and early detection. Alone we are strong, together we are stronger. Dravet Syndrome European Foundation. Was set up in 2014 by eight organizations in seven countries, aiming to jointly fight for a cure for this terrible disease.

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Dravet Syndrome European Federation | dravet.eu Reviews

https://dravet.eu

Dravet Syndrome European Federation. News & Events. Dravet Syndrome European Federation. A life without Seizures. The Dravet Syndrome European Federation (DSEF) is dedicated to finding a cure for Dravet Syndrome through funding research and to save lives by increasing awareness and early detection. Alone we are strong, together we are stronger. Dravet Syndrome European Foundation. Was set up in 2014 by eight organizations in seven countries, aiming to jointly fight for a cure for this terrible disease.

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dravet.eu

1

News | Dravet Syndrome European Federation

http://dravet.eu/category/news

Dravet Syndrome European Federation. News & Events. HAVE YOU HEARD ABOUT SUDEP? Sudden Unexpected Death in Epilepsy SUDEP is a rare event and refers to a death in a person with epilepsy in which there is no other clear cause of death (such a cancer, stroke, Read more. Let’s DISCUSS Dravet. June 23 is Dravet Awareness Day all over the world. Our Federation has one vision: a life without seizures! Novel open-access mouse model of Dravet syndrome. Message from Dr. Charlotte Dravet. New mouse model available.

2

Make a donation | Dravet Syndrome European Federation

http://dravet.eu/make-a-donation

Dravet Syndrome European Federation. News & Events. If you would like to support our projects, please find below the details for bank transfer:. Bank Name: BANCA PROSSIMA. Bank Address: BANCA PROSSIMA, Piazza Ferrari, 10, 20121 MILANO (MI). Contact and Social Media. Federation Europeenne pour le Syndrome de Dravet. 4, rue de Rennes 29200 Brest France. Recent News and Events. Let’s DISCUSS Dravet. Dravet Syndrome European Federation 2015.

3

Newsletter sign-up | Dravet Syndrome European Federation

http://dravet.eu/newsletter

Dravet Syndrome European Federation. News & Events. Subscribe to our mailing list. Contact and Social Media. Federation Europeenne pour le Syndrome de Dravet. 4, rue de Rennes 29200 Brest France. Recent News and Events. Let’s DISCUSS Dravet. Dravet Syndrome European Federation 2015.

4

Message from Dr. Charlotte Dravet | Dravet Syndrome European Federation

http://dravet.eu/message-from-dr-charlotte-dravet

Dravet Syndrome European Federation. News & Events. Message from Dr. Charlotte Dravet. The second edition of the International Dravet Syndrome Awareness Day, held on 23rd June 2015, was marked by members of Dravet Syndrome European Federation at the conference The Future of Refractory Epilepsy Syndromes . A video message. From Dr. Charlotte Dravet was presented on this occasion. 24th May 2016 at 11:57 pm. Leave a Reply Cancel reply. Your email address will not be published. Required fields are marked *.

5

New mouse model available | Dravet Syndrome European Federation

http://dravet.eu/new-mouse-model-available

Dravet Syndrome European Federation. News & Events. New mouse model available. A new mouse model for Dravet syndrome is now available. Through the Jackson Laboratory: http:/ jaxmice.jax.org/strain/026133.html. This new strain to address two problems associated with some of the prior models: (a) the difficulties for many labs to have access to them, and (b) the difficulty to maintain a colony in the C57BL/6 background due to the severity of the phenotype in the constitutive lines. Contact and Social Media.

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dravet.pl

Aktualności i wydarzenia – DRAVET.PL

http://www.dravet.pl/index.php/category/aktualnosci

Standardy leczenia napadów i stanów padaczkowych. O chorobach słów kilka. Leki w szkole i przedszkolu. Leki sieroce w UE. Alternatywy – czyli dieta ketogenna. Kategorie Archiwów: Aktualności i wydarzenia. Inoutic Team znów na trasie maratonu! Możliwość komentowania Inoutic Team znów na trasie maratonu! W dniu 22 maja Inoutic Team. Po raz kolejny zmierzyła się z dystansem maratońskim biorąc udział w biegu XLPL EKIDEN. Tym razem w biegu brały udział dwie drużyny z firmy Inoutic. Czyli aż 12 osób. Stowarzys...

dravetssweden.se

Om DSAS | DSAS - Dravets Syndrome Association Sweden

http://www.dravetssweden.se/om-dsas

Dravets Syndrome Association Sweden. Grundad av föräldrar i mars 2013. Vi är en intresseförening för familjer i Sverige med barn eller unga vuxna som har diagnosen Dravets Syndrom. DSAS är riksomfattande, ideell, allmännyttig, partipolitiskt och religiöst obunden. Föreningen ska bl.a. arbeta med att:. Informera allmänhet och myndigheter om Dravets Syndrom och om de problem och behov som är förenade med Dravets Syndrom (DS). Motverka fördomar om DS. Verka för vetenskaplig forskning och utveckling inom DS.

dravet.pl

Przydatne odnośniki i adresy – DRAVET.PL

http://www.dravet.pl/index.php/przydatne-odnosniki-i-adresy

Standardy leczenia napadów i stanów padaczkowych. O chorobach słów kilka. Leki w szkole i przedszkolu. Leki sieroce w UE. Alternatywy – czyli dieta ketogenna. Przydatne odnośniki i adresy. Europejska Federacja Zespołu Dravet /. Dravet Syndrome European Federation. Europejski portal o chorobach rzadkich i lekach sierocych. Strona startowa PL, język angielski]. Północnoamerykański portal informacyjny związany z Zespołem Dravet. Instytut Matki i Dziecka w Warszawie. Bajka o padaczce ….

dravet.ro

Dravet | Poveşti reale

http://www.dravet.ro/povesti-reale

Ce este Sindromul Dravet. Noi, Părinţii (blog). Pentru cei abia diagnosticați. Dispozitive de detectare a crizelor. Centrul de zi “Există Speranță”. Elev în clasa I. Alimentație sănătoasă pentru copiii cu epilepsie. Poţi ajuta şi tu. Cum să te implici. Davis s-a născut perfect sănătos și a luat nota 10 Apgar. A avut o dezvoltare normală, ca la carte, și absolut nicio problemă medicală până la vârsta de 7 luni, când a făcut prima convulsie… în afebrilitate! Cum să te implici. Află cum poţi ajuta.

dravet.ro

Dravet | Dispozitive de detectare a crizelor

http://www.dravet.ro/informatii-medicale/dispozitive-de-detectare-a-crizelor

Ce este Sindromul Dravet. Noi, Părinţii (blog). Pentru cei abia diagnosticați. Dispozitive de detectare a crizelor. Centrul de zi “Există Speranță”. Elev în clasa I. Alimentație sănătoasă pentru copiii cu epilepsie. Poţi ajuta şi tu. Cum să te implici. Dispozitive de detectare a crizelor. Dispozitive de detectare a crizelor. Tehonologii de detecţie şi alarmare a crizelor de epilepsie partea I. Pe partea de îngrijitor/asistent, anxietatea este omniprezentă: înainte de criză, aşteptând apariţia ei şi apoi ...

dravet.ro

Dravet | Proiecte

http://www.dravet.ro/proiecte

Ce este Sindromul Dravet. Noi, Părinţii (blog). Pentru cei abia diagnosticați. Dispozitive de detectare a crizelor. Centrul de zi “Există Speranță”. Elev în clasa I. Alimentație sănătoasă pentru copiii cu epilepsie. Poţi ajuta şi tu. Cum să te implici. Centrul de zi "Există Speranță". Elev în clasa I. Alimentație sănătoasă pentru copiii cu epilepsie. Cum să te implici. Pentru realizarea proiectelor noastre, avem nevoie de sprijinul tău. Află cum poţi ajuta. Made by Dravet.ro. Ce este Sindromul Dravet.

dravet.ro

Dravet | Noi, Părinţii

http://www.dravet.ro/noi-parintii

Ce este Sindromul Dravet. Noi, Părinţii (blog). Pentru cei abia diagnosticați. Dispozitive de detectare a crizelor. Centrul de zi “Există Speranță”. Elev în clasa I. Alimentație sănătoasă pentru copiii cu epilepsie. Poţi ajuta şi tu. Cum să te implici. A patra ediție Purple Salsa pentru bolnavii de epilepsie. March 25, 2016. Comunitatea Dravet România, în doliu. November 17, 2015. Suntem alături de familia îndurerată care a pierdut, zilele acestea, un îngeraș cu Dravet. June 17, 2015. April 21, 2015.

dravet.ro

Dravet | Centrul de zi “Există Speranță”

http://www.dravet.ro/proiecte/centrul-de-zi-exista-speranta

Ce este Sindromul Dravet. Noi, Părinţii (blog). Pentru cei abia diagnosticați. Dispozitive de detectare a crizelor. Centrul de zi “Există Speranță”. Elev în clasa I. Alimentație sănătoasă pentru copiii cu epilepsie. Poţi ajuta şi tu. Cum să te implici. Centrul de zi “Există Speranță”. Centrul de zi “Există Speranță”. Centrul “Există Speranță” reprezintă un proiect de parteneriat public-privat, în cadrul căruia Primăria Municipiului București va contribui cu spațiul și utilitățile, iar Asociaț...Proiectul...

dravet.ro

Dravet | Diagnostic şi tratament

http://www.dravet.ro/despre-dravet/diagnostic-si-tratament

Ce este Sindromul Dravet. Noi, Părinţii (blog). Pentru cei abia diagnosticați. Dispozitive de detectare a crizelor. Centrul de zi “Există Speranță”. Elev în clasa I. Alimentație sănătoasă pentru copiii cu epilepsie. Poţi ajuta şi tu. Cum să te implici. O serie de semne clinice pot conduce un neurolog pediatru spre diagnosticul de Sindrom Dravet. Cele mai cunoscute dintre acestea sunt:. Debutul crizelor în primul an de viață. Crizele pot fi inițial pe jumătate din corp, cu generalizare secundară. Din nefe...

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dravet-syndrome.com

Dravet Syndrome information : general information regarding Dravet syndrome epilepsy

Psycho-Motor & Cognitive Development. Psycho-Motor & Cognitive Development. WHAT IS DRAVET SYNDROME? Dravet syndrome is a rare form of epilepsy associated with neurological development disorders. The onset is during the first year of life in a normal developing child. THE HISTORY OF DRAVET SYNDROME. Dravet Syndrome was first described in 1978 as « Severe Myoclonic Epilepsy in Infancy » (SMEI) by Dr Charlotte DRAVET but has been recognized throughout the world since then. THE FIRST 20 QUESTIONS ON.

dravet.ca

dravet.ca | helping people with dravet spectrum disorders reach their full potential

DRAVET “WALK for the KIDS”. Dravet.ca Family, Physician and Researcher Conference 2013. Charlotte Dravet, M.D. Professor Ingrid Scheffer MB BS PhD FRACP. Maria Zak, MN, NP-Paediatrics. Elizabeth J Donner, MD, FRCPC. Emma and Alice Williams. Qu’est-ce que le syndrome de Dravet? Is the Canadian Network. For families, friends and caregivers of people with Dravet spectrum disorders. Distributes funds to qualified donees for research into the care, cure, understanding and treatment of Dravet Spectrum Disorders.

dravet.ch

Home - dravet.ch

Was ist das Dravet Syndrom? Treffen in La Tène 2015. Treffen in La Tène 2014. Treffen in La Tène 2013. Bücher, Broschüren, Filme. Das können Sie tun. 20 km von Lausanne. RUN FOR A CURE 2013. RUN FOR A CURE 2012. Eltern mit einem dravetkranken Kind stehen vor vielfältigen Herausforderungen. Wir bieten betroffenen Familien und deren Bezugspersonen Hilfestellung zu Fragen rund um den Alltag mit Dravet Syndrom, Hilfsmittel, Entlastungsmöglichkeiten, Kostenträger usw. Wir unterstützen betroffene Famil...Die v...

dravet.com

The Discoveryrun, met een Porsche 356 Speedster naar Oostenrijk voor een goed doel: Stichting Dravet Syndroom NL/VL

Hét goede doel van de Discovery Run 2017:. Een deel van het inschrijfgeld van alle teams én alle bijdragen van onze sponsors gaan naar de Stichting Dravetsyndroom NL/VL. Kijk op "Sponsor worden? Doe het voor Jake of één van de andere slechts 200 Dravetpatiëntjes in Nederland. Welkom op de site van Team Dirndl Patrol. Het team bestaat uit Edwin Peters en Marcel Wiesenfeld. Edwin is er al bij sinds de 1e editie van The Cannonball Run (voorloper van de DiscoveryRun). Dit jaar wordt zijn 6e jaar! Meer over o...

dravet.de

Home - dravet.de

So können Sie helfen. Erste europäische Konferenz in Paris. Herzlich Willkommen auf der Homepage des Vereins "Dravet-Syndrom e.V.". Wir sind eine Selbsthilfegruppe betroffener Eltern, die diesen Verein im Januar 2012 gegründet haben (mehr zur Vereinsgründung finden Sie unter dem Menüpunkt Über uns ). Vorrangig stehen wir Eltern und Betroffenen, aber auch allen Interessierten zur Verfügung. Wie alle Vereine benötigen auch wir als Elternverein immer Spendengelder, um unsere gemeinnützigen Vereinsziele umzu...

dravet.eu

Dravet Syndrome European Federation

Dravet Syndrome European Federation. News & Events. Dravet Syndrome European Federation. A life without Seizures. The Dravet Syndrome European Federation (DSEF) is dedicated to finding a cure for Dravet Syndrome through funding research and to save lives by increasing awareness and early detection. Alone we are strong, together we are stronger. Dravet Syndrome European Foundation. Was set up in 2014 by eight organizations in seven countries, aiming to jointly fight for a cure for this terrible disease.

dravet.is

Dravet Syndrome

Hvað er Dravet heilkenni. Síðan var opnuð í júní 2012. Upplýsingasíða um Dravet heilkenni. Síðan er á ábyrgð foreldra fyrsta barnsins sem greindist með Dravet heilkenni hér á landi. Að lifa með Dravet. Greining á Dravet heilkenni. SUDEP og Dravet Syndrome. Hvað er Dravet Heilkenni? Dravet heilkenni ,. Kallað Severe Myoclonic Epilepsy of infancy (SMEI),. Dravet, Charlotte. (2011). The core Dravet syndrome phenotype. Dravet, Charlotte og Guerrini, Renzo. (2011). Montrouge: Johm Libbey Eurotext.

dravet.org

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dravet.org.uk

Dravet Syndrome UK

Join Us / Log In. Research Grant Award 2015. Research Grant Award 2013. Research Grant Award 2012. Research Grant Award 2011. Small Research Grant 2011. What is Dravet syndrome? What is Dravet syndrome? Living with Dravet syndrome. Guide for healthcare professionals. Guidance for care providers. Nominate a super sibling. DSUK Assistance Fund 16. London to Paris bike ride 2018. Join Us / Log In. Watch our video stories. What is Dravet syndrome? Fundraiser Gala Dinner 2018. Read our latest newsletter.

dravet.pl

DRAVET.PL | Stowarzyszenie na rzecz osób z ciężką padaczką lekooporną DRAVET.PL

Standardy leczenia napadów i stanów padaczkowych. O chorobach słów kilka. Leki w szkole i przedszkolu. Leki sieroce w UE. Alternatywy – czyli dieta ketogenna. Liczy się współpraca – czyli koszulki DRAVET.pl na trasie maratonu …. Komu pomaga lecznicza marihuana? Czy jej stosowanie powinno być legalne? Janusz Weiss i Zespół Dravet – czyli leki refundowane nie dla wszystkich …. Leki na choroby rzadkie refundowane, ale nie dla wszystkich. Z tym problemem boryka się w Polsce kilkadziesiąt osób....8211; Wszyst...

dravet.pt

Dravet Portugal | Saiba mais sobre o Síndrome de Dravet

Temos em nós todos os sonhos do Mundo. Somos uma associação sem fins lucrativos. Na sua origem esteve um grupo de pais portugueses inconformados com o curso da doença rara que afeta os seus filhos, o Síndrome de Dravet. O Síndrome de Dravet, é uma doença rara e manifesta-se no primeiro ano de vida. Cada criança pode registar até 500 crises por dia, com duração variável (de 1 minuto até várias horas, ou até entrar em coma). 15% das crianças morre antes de atingir a adolescência. April 15, 2017. March 19, ...