emerydreifussmd.org
HomeThe International Foundation for Emery-Dreifuss Muscular Dystrophy
http://www.emerydreifussmd.org/
The International Foundation for Emery-Dreifuss Muscular Dystrophy
http://www.emerydreifussmd.org/
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Larissa Velez
14 B●●●●Ln S
Kin●●●ark , NY, 11754
US
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Larissa Velez
14 B●●●●Ln S
Kin●●●ark , NY, 11754
US
View this contact
Larissa Velez
14 B●●●●Ln S
Kin●●●ark , NY, 11754
US
View this contact
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The International Foundation for Emery-Dreifuss Muscular Dystrophy
emerydreifussmd.org
Cardiac
http://www.emerydreifussmd.org/cardiac.html
International Foundation for Emery-. You can also be diagnosed with thinning heart (Cardiomyopathy) walls as a result of this disease making the annual procedure of Echo-. Heart Block will usually begin at first degree and can progress all the way to atrial standstill which means the bridge will stop working completely. Which is why a Pacemaker is required. Heart Block is diagnosed using an EKG which is done by a Cardiologist or Electro-. Cardiac Issues in EDMD. Superventricular Tachycardia in EDMD is of...
Home
http://www.emerydreifussmd.org/index.html
International Foundation for Emery-. This site is dedicated to the families and friends of people effected by Emery-. Dreifuss Muscular Dystrophy. We want to build a global community to promote supportive communication and education for families, as well as tools to communicate and educate the medical community. Find us on Facebook and our Forum and connect with other families with or effected by EDMD. GENETIC STUDY FOR EMERY-. For more information, please contact:. Dr Peter Kang at. Register with us and...
Donate
http://www.emerydreifussmd.org/page20.html
International Foundation for Emery-. Donate to our Cause. All donations are tax deductible. Click here to see our 501C3 registration information. 100% of donations are used for research purposes. This means we do not take a salary nor do we use any of the donated money for maintenance of the website or other information dissemination purposes. You may donate using the links below or mail checks or money orders to the address below. Please do not mail cash for your own protection. Kings Park, NY 11754.
Natural
http://www.emerydreifussmd.org/natural.html
International Foundation for Emery-. While the effects of Emery-. Dreifuss vary wildly between patients there are some patients that are able to perform low impact daily activities to help to slow the process of contractures or help the muscles to lengthen. It has been found in EDMD patients that muscle wasting will speed up once the age of 50 is reached. While the medical community knows that this happens they are not entirely sure why that age triggers such a rapid loss of muscle tissue. Pilates is ano...
Resources
http://www.emerydreifussmd.org/resources.html
International Foundation for Emery-. Medical Alert Wallet Card. Review our Medical Professionals. Page for a listing of doctors with a history in dealing with EDMD. For the latest research grants and articles.
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Wavenet
Emery Down Village Forum - Lyndhurst Village Forum
Emery Down Village Forum. Follow us on Facebook. Friends of Christ Church. Sunday at Six Rocks! How We Used To Live. The Lychgate Project - Emery Down's War Memorial. Welcome to the Emery Down village website -. A website for the village by the village. It brings together all the key areas of village life - the Village Hall, Church, Almshouses and the village Telephone Kiosk. Restored almshouses get a royal seal of approval. Charity behind the project. Mrs Jan Smart, Chairman of the Trustees said. Commen...
Emery Down and Bank Village Hall
Emery Down and Bank Village Hall. The Emery Down and Bank Village Hall is available for hire for local events, group meetings or private parties. Mill Lane, Emery Down, Lyndhurst, Hampshire. New Forest National Park Authority. Silver Street Telephone Kiosk. Emery Down and Bank Village Hall Trust.
Emery Down Telephone Kiosk
Emery Down Telephone Kiosk. New Forest National Park Authority. Welcome to the Emery Down. Is now a centre for Local and New Forest Information, History, Advice, Book Exchange and to purchase Fruit and Vegetables etc. About this Telephone Kiosk. Shows the location of the kiosk which is also on the Lyndhurst Parish Walk shown by purple dotted lines. Leaflets about the walk and the New Forest in general, along with a large scale map are displayed in the kiosk. CSS Design by www.mitchinson.net.
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International Foundation for Emery-. We are not doctors. This is not medical advice. You need to verify all information provided with your doctors. The information on this site was provided by medical professionals. If your doctors need to verify any of the information on this site please contact us or have your doctors contact us so we my connect them or you with the doctors themselves. This site is dedicated to the families and friends of people effected by Emery-. GENETIC STUDY FOR EMERY-. Information...
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Their Profile - Emerye - Skyrock.com
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