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EMILY JEAN and KOOLEN DE VRIES SYNDROME [formerly 17q21.31 microdeletion syndrome]

A blog about 17q21.31 microdeletion syndrome / Koolen Syndrome. A journey following the highs and lows of raising a child with special needs.

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EMILY JEAN and KOOLEN DE VRIES SYNDROME [formerly 17q21.31 microdeletion syndrome] | emily17q.blogspot.com Reviews
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A blog about 17q21.31 microdeletion syndrome / Koolen Syndrome. A journey following the highs and lows of raising a child with special needs.
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EMILY JEAN and KOOLEN DE VRIES SYNDROME [formerly 17q21.31 microdeletion syndrome] | emily17q.blogspot.com Reviews

https://emily17q.blogspot.com

A blog about 17q21.31 microdeletion syndrome / Koolen Syndrome. A journey following the highs and lows of raising a child with special needs.

INTERNAL PAGES

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1

EMILY JEAN and KOOLEN DE VRIES SYNDROME [formerly 17q21.31 microdeletion syndrome]: HaPpY ChRiStMaS

http://emily17q.blogspot.com/2012/12/happy-christmas.html

Our journey after a diagnosis of Koolen DeVries Syndrome [also known as 17q21.31 Microdeletion Syndrome]. Follow our highs and lows but most of all follow the achievements and happiness and share in our joys watching our inspirational little girl growing up. Sunday, 23 December 2012. Subscribe to: Post Comments (Atom). Hi - thank you for stopping by at our family blog. Im Emilys Mum Tracey. . View my complete profile. Emily (Age 3 1/2). Emily and Her Big Brother Joshua. So glad you came to visit.

2

EMILY JEAN and KOOLEN DE VRIES SYNDROME [formerly 17q21.31 microdeletion syndrome]: Eye surgery .....

http://emily17q.blogspot.com/2013/09/eye-surgery.html

Our journey after a diagnosis of Koolen DeVries Syndrome [also known as 17q21.31 Microdeletion Syndrome]. Follow our highs and lows but most of all follow the achievements and happiness and share in our joys watching our inspirational little girl growing up. Tuesday, 17 September 2013. So I begin this post by yet again apologising for not posting in such a long time! So why post now? These two images are the 'before' shots for both of her surgeries. So what happened you are probably asking? Emily's anxie...

3

EMILY JEAN and KOOLEN DE VRIES SYNDROME [formerly 17q21.31 microdeletion syndrome]: HaPpY NeW YeaR

http://emily17q.blogspot.com/2013/01/happy-new-happy.html

Our journey after a diagnosis of Koolen DeVries Syndrome [also known as 17q21.31 Microdeletion Syndrome]. Follow our highs and lows but most of all follow the achievements and happiness and share in our joys watching our inspirational little girl growing up. Thursday, 3 January 2013. I just wanted to stop by to wish all of my followers and those who are just beginning their journey and therefore have found my blog when searching for information on 17q21.31 Microdeletion Syndrome / Koolen Syndrome -.

4

EMILY JEAN and KOOLEN DE VRIES SYNDROME [formerly 17q21.31 microdeletion syndrome]: October 2011

http://emily17q.blogspot.com/2011_10_01_archive.html

Our journey after a diagnosis of Koolen DeVries Syndrome [also known as 17q21.31 Microdeletion Syndrome]. Follow our highs and lows but most of all follow the achievements and happiness and share in our joys watching our inspirational little girl growing up. Tuesday, 25 October 2011. Week 3 and 4 - The Build. At week 3 and 4 we aren't having to use our imagination quite so much it is starting to take shape. And the bricks have arrived - yippeeeee.. Subscribe to: Posts (Atom). View my complete profile.

5

EMILY JEAN and KOOLEN DE VRIES SYNDROME [formerly 17q21.31 microdeletion syndrome]: September 2012

http://emily17q.blogspot.com/2012_09_01_archive.html

Our journey after a diagnosis of Koolen DeVries Syndrome [also known as 17q21.31 Microdeletion Syndrome]. Follow our highs and lows but most of all follow the achievements and happiness and share in our joys watching our inspirational little girl growing up. Sunday, 23 September 2012. Long time no hear. So, I think the first thing I need to be saying is "Sorry it's been so long since my last post". Emily had a couple of seizures at school. Introduction of ICT equipment in to school for her. Subscribe to:...

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merchantfamily5.blogspot.com merchantfamily5.blogspot.com

merchant dorks: June 2011

http://merchantfamily5.blogspot.com/2011_06_01_archive.html

Sunday, June 12, 2011. I decided to paint my hallway this weekend. to my suprise the kids wanted to help. i was nervous but i agreed. they actually did a very good job. they did however manage to get alot of paint on themselves. the paint turned out really nice. i did have to go back to the store for another can of paint though. Neylan had gotten paint on her nose and she didn't realize it. Gavin almost helped me with the whole hallway. Posted by merchant dorks. Subscribe to: Posts (Atom).

merchantfamily5.blogspot.com merchantfamily5.blogspot.com

merchant dorks: October 2011

http://merchantfamily5.blogspot.com/2011_10_01_archive.html

Monday, October 31, 2011. HOLY COW I AM POSTING A BLOG. W had a good time this year. jason and i dressed up this year. many people did not recognize jason at all. i ended up doing gavin's makeup he did not want me to at first but then he loved it until it was time to pull it off. jason just ripped it off like a bandaid. This was my pitiful attempt to decorate the car for trunk or treat. Posted by merchant dorks. Subscribe to: Posts (Atom). Click on picture to read logan's journey. View my complete profile.

merchantfamily5.blogspot.com merchantfamily5.blogspot.com

merchant dorks: July 2011

http://merchantfamily5.blogspot.com/2011_07_01_archive.html

Tuesday, July 26, 2011. The first set of pictures is "your favorite super hero " night. gavin told me on the way home the night before that his favorite super hero was Jesus. talk about proud momma. logan wanted iron man and neylan had her supergirl costume from halloween. Yes i know he looks more like moses because the gray but they did not have a brown beard and wig. it is hard to find costume stuff when it is not close to halloween. Posted by merchant dorks. Saturday, July 16, 2011. Click on picture t...

merchantfamily5.blogspot.com merchantfamily5.blogspot.com

merchant dorks: MORE PICS FROM CAMPING

http://merchantfamily5.blogspot.com/2012/10/more-pics-from-camping.html

Tuesday, October 2, 2012. MORE PICS FROM CAMPING. Posted by merchant dorks. October 2, 2012 at 1:00 PM. Subscribe to: Post Comments (Atom). Click on picture to read logan's journey. EMILY JEAN and 17q21.31 MICRODELETION SYNDROME. Today you are you. A Summer's Worth of Pics in One Post. But God.you promised! MORE PICS FROM CAMPING. CAMPING TRIP NUMBER 2. Scary Maze Game Anyone? We are the merchant dorks. my husband and i have been married almost 14 years. we have three kids-gavin,logan,neylan.

merchantfamily5.blogspot.com merchantfamily5.blogspot.com

merchant dorks: Florida trip

http://merchantfamily5.blogspot.com/2012/08/florida-trip.html

Saturday, August 18, 2012. Just a couple of pics from when we were in florida. Posted by merchant dorks. August 18, 2012 at 10:46 AM. Hello VA Beach. welcome back! August 18, 2012 at 7:44 PM. Ps that was me. Betty. August 18, 2012 at 7:45 PM. Subscribe to: Post Comments (Atom). Click on picture to read logan's journey. EMILY JEAN and 17q21.31 MICRODELETION SYNDROME. A Summer's Worth of Pics in One Post. But God.you promised! View my complete profile.

merchantfamily5.blogspot.com merchantfamily5.blogspot.com

merchant dorks

http://merchantfamily5.blogspot.com/2012/09/beautiful-site-outside-my-back-door.html

Friday, September 7, 2012. Beautiful site outside my back door yesterday after a horrific storm. the picture does not do it justice. Posted by merchant dorks. Subscribe to: Post Comments (Atom). Click on picture to read logan's journey. EMILY JEAN and 17q21.31 MICRODELETION SYNDROME. A Summer's Worth of Pics in One Post. But God.you promised! Beautiful site outside my back door yesterday afte. View my complete profile.

merchantfamily5.blogspot.com merchantfamily5.blogspot.com

merchant dorks: Scary Maze Game Anyone?

http://merchantfamily5.blogspot.com/2012/10/scary-maze-game-anyone.html

Tuesday, October 2, 2012. Scary Maze Game Anyone? Posted by merchant dorks. Subscribe to: Post Comments (Atom). Click on picture to read logan's journey. EMILY JEAN and 17q21.31 MICRODELETION SYNDROME. A Summer's Worth of Pics in One Post. But God.you promised! MORE PICS FROM CAMPING. CAMPING TRIP NUMBER 2. Scary Maze Game Anyone? We are the merchant dorks. my husband and i have been married almost 14 years. we have three kids-gavin,logan,neylan. View my complete profile.

merchantfamily5.blogspot.com merchantfamily5.blogspot.com

merchant dorks: October 2012

http://merchantfamily5.blogspot.com/2012_10_01_archive.html

Tuesday, October 2, 2012. MORE PICS FROM CAMPING. Posted by merchant dorks. CAMPING TRIP NUMBER 2. A whole lot of pictures coming your way from our camping trip. we went to the caverns, natural bridge, wax museum, waterfalls, the lake. it was really fun. the kids really had a nice time. i am not going to add captions unless i think you need them:). The kids are playing glow stick tag. it is better than fetch whgich they played the last night. Posted by merchant dorks. Scary Maze Game Anyone?

merchantfamily5.blogspot.com merchantfamily5.blogspot.com

merchant dorks: May 2011

http://merchantfamily5.blogspot.com/2011_05_01_archive.html

Wednesday, May 18, 2011. My sister michell came for a visit yesterday and the kids wanted to ride in dana's car that she drove up here with. so we put the top down and went to the store. the car seats just barely fit in there. i guess i can't get a sports car. Posted by merchant dorks. Tuesday, May 17, 2011. Neylan and logan are riding their bikes without training wheels. isn't that something? They are not scared at all. they are doing great. Posted by merchant dorks. Tuesday, May 3, 2011.

merchantfamily5.blogspot.com merchantfamily5.blogspot.com

merchant dorks: March 2011

http://merchantfamily5.blogspot.com/2011_03_01_archive.html

Friday, March 18, 2011. Jason is need of some prayers. he called yesterday and he will no longer be in korea. he could not tell me where. i will only be able to email him. i have really been spoiled with skype up until this point. i dont know many details. just keep him in your prayers. Posted by merchant dorks. Monday, March 7, 2011. Posted by merchant dorks. Saturday, March 5, 2011. Posted by merchant dorks. Friday, March 4, 2011. 16 YEARS OF BLISS. Sixteen years. wow! Posted by merchant dorks.

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EMILY JEAN and KOOLEN DE VRIES SYNDROME [formerly 17q21.31 microdeletion syndrome]

Our journey after a diagnosis of Koolen DeVries Syndrome [also known as 17q21.31 Microdeletion Syndrome]. Follow our highs and lows but most of all follow the achievements and happiness and share in our joys watching our inspirational little girl growing up. Friday, 6 March 2015. The days turn to weeks, weeks to months and before you know it . a whole year has past by since I last blogged. It's been a busy year, a year of fun, a year of growing and a year of some very difficult decision making. So now it...

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