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The European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria (or E.S.PKU) is the umbrella organisation of about 23 national and regional associations from 23 countries established by parents.

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Envira Default Settings - E.S.PKU | espku.org Reviews

https://espku.org

The European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria (or E.S.PKU) is the umbrella organisation of about 23 national and regional associations from 23 countries established by parents.

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PKU Day - E.S.PKU

https://www.espku.org/en/pku-day

European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria. GuthrieMemorialDinner – June 28th – PKUDay. PKU Day Website launched. ESPKU on Rare Disease Day 2016. 28th of June is International PKU Day Like many rare diseases, it is a characteristic of Phenylketonuria that the general public is not sufficiently informed on the disorder and the needs of patients. As of today, International PKU Day becomes more visible: The newly created logo appears in light blue, green and dark bl...

2

Travelling to the E.S.PKU Conference 2015 - E.S.PKU

https://www.espku.org/tr

European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria. GuthrieMemorialDinner – June 28th – PKUDay. PKU Day Website launched. ESPKU on Rare Disease Day 2016. Travelling to the E.S.PKU Conference 2015. Travelling to the E.S.PKU Conference 2015. Dear participants of the 2015 E.S.PKU Annual Conference,. In a few days we will meet to one of the biggest PKU Events of the year, the ESPKU Annual Conference 2015 in Berlin. Am Seegraben 2,. Tel: 49 30 756 5751-0. See you in Berlin!

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GEMEINSCHAFTEN & ORGANISATIONEN | SWISS PKU

http://swisspku.ch/leben-mit-pku/gemeinschaften-organisationen

GEMEINSCHAFTEN & ORGANISATIONEN. Deutsche Interessengemeinschaft PKU und verwandte Stoffwechselstörungen e.V. (DIG-PKU). Österreichische Gesellschaft für angeborene Stoffwechselstörungen O E G A ST. Association de parents d’enfants phénylcétonuriques A.P.E.P. PKU forening for Danmark. National Society for Phenylketonuria. PKU Félagið á Íslandi. Associazione Prevenzione Malattie Metaboliche Congenite A.pmM.C. Associazione Studio Malattie Metaboliche Ereditarie ONLUS Cometa A.S.M.M.E. Stiftung Denk an mich.

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Finanziati da COMETA A.S.M.M.E - Cometa A.S.M.M.E.Cometa A.S.M.M.E.

http://www.cometaasmme.org/finanziati-da-cometa-a-s-m-m-e

Ci sono delle leggi che tutelano le persone affette da M.M.E? Screening neonatale metabolico allargato. Centri M.M.E. Finanziati da COMETA A.S.M.M.E. Pergamene e bomboniere solidali. Volontariato in Cometa A.S.M.M.E. Come diventare socio di Cometa A.S.M.M.E. Dona il 5×1000 Cometa A.S.M.M.E.ONLUS. Fare una donazione a Cometa A.S.M.M.E. Bancarelle – Manifestazioni. Progetti finanziati da Cometa A.S.M.M.E.:. PROGETTI FINANZIATI da Cometa A.S.M.M.E. PROGETTO DI RICERCA SULLA MALATTIA DI NIEMANN-PICK. HP DESK...

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Statuto Cometa A.S.M.M.E. ONLUS - Cometa ASSMECometa A.S.M.M.E.

http://www.cometaasmme.org/statuto

Ci sono delle leggi che tutelano le persone affette da M.M.E? Screening neonatale metabolico allargato. Centri M.M.E. Finanziati da COMETA A.S.M.M.E. Pergamene e bomboniere solidali. Volontariato in Cometa A.S.M.M.E. Come diventare socio di Cometa A.S.M.M.E. Dona il 5×1000 Cometa A.S.M.M.E.ONLUS. Fare una donazione a Cometa A.S.M.M.E. Bancarelle – Manifestazioni. Progetti finanziati da Cometa A.S.M.M.E.:. PROGETTI FINANZIATI da Cometa A.S.M.M.E. PROGETTO DI RICERCA SULLA MALATTIA DI NIEMANN-PICK. 32) E&#...

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Organigramma - Cometa ASSMECometa A.S.M.M.E.

http://www.cometaasmme.org/organigramma

Ci sono delle leggi che tutelano le persone affette da M.M.E? Screening neonatale metabolico allargato. Centri M.M.E. Finanziati da COMETA A.S.M.M.E. Pergamene e bomboniere solidali. Volontariato in Cometa A.S.M.M.E. Come diventare socio di Cometa A.S.M.M.E. Dona il 5×1000 Cometa A.S.M.M.E.ONLUS. Fare una donazione a Cometa A.S.M.M.E. Bancarelle – Manifestazioni. Progetti finanziati da Cometa A.S.M.M.E.:. PROGETTI FINANZIATI da Cometa A.S.M.M.E. PROGETTO DI RICERCA SULLA MALATTIA DI NIEMANN-PICK. Associa...

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Cometa A.S.S.M.E. - La nostra storiaCometa A.S.M.M.E.

http://www.cometaasmme.org/storia-cometa-associazione-studio-malattie-metaboliche-ereditarie

Ci sono delle leggi che tutelano le persone affette da M.M.E? Screening neonatale metabolico allargato. Centri M.M.E. Finanziati da COMETA A.S.M.M.E. Pergamene e bomboniere solidali. Volontariato in Cometa A.S.M.M.E. Come diventare socio di Cometa A.S.M.M.E. Dona il 5×1000 Cometa A.S.M.M.E.ONLUS. Fare una donazione a Cometa A.S.M.M.E. Bancarelle – Manifestazioni. Progetti finanziati da Cometa A.S.M.M.E.:. PROGETTI FINANZIATI da Cometa A.S.M.M.E. PROGETTO DI RICERCA SULLA MALATTIA DI NIEMANN-PICK. Nata ne...

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Wer sind wir? auf Verein für Angeborene Stoffwechselstörungen (VfASS)

http://vfass.de/uber-den-vfass/wer-sind-wir

Verein für Angeborene Stoffwechselstörungen (VfASS). Interessenvertretung für alle Eltern und Betroffene mit angeborenen Stoffwechselstörungen. 14052015: Familientreffen der Harnstoffzyklusdefektgruppe. 01112014: Ordentliche Mitgliederversammlung und Fortbildungsveranstaltung. 18-2510.2014: Schulungsfreizeit für Kinder, Jugendliche und junge Erwachsene. 2905-01.06.2014: Treffen der Familien mit Harnstoffzyklusdefekten. 15032014: Ordentliche Mitgliederversammlung und Fortbildunsgveranstaltung. 26062010: G...

vfass.de vfass.de

29.05-01.06.2014: Treffen der Familien mit Harnstoffzyklusdefekten auf Verein für Angeborene Stoffwechselstörungen (VfASS)

http://vfass.de/veranstaltungen/29-05-01-06-2014-treffen-der-familien-mit-harnstoffzyklusdefekte

Verein für Angeborene Stoffwechselstörungen (VfASS). Interessenvertretung für alle Eltern und Betroffene mit angeborenen Stoffwechselstörungen. 14052015: Familientreffen der Harnstoffzyklusdefektgruppe. 01112014: Ordentliche Mitgliederversammlung und Fortbildungsveranstaltung. 18-2510.2014: Schulungsfreizeit für Kinder, Jugendliche und junge Erwachsene. 2905-01.06.2014: Treffen der Familien mit Harnstoffzyklusdefekten. 15032014: Ordentliche Mitgliederversammlung und Fortbildunsgveranstaltung. 26062010: G...

pkuday.org pkuday.org

PKU Day 2016 - PKUDay

http://www.pkuday.org/about/pku-day-2016

Looking back at #PKUDay 2016. Robert Guthrie Memorial Dinner –. Robert Guthrie Legacy Project. Visit the website to learn more about Robert Guthrie. Memories by the Guthrie Family. Share this message to support! Mdash; International PKU Da (@PKU Day) June 28, 2016. International PKU Day is an E.S.PKU. Type and Press “enter” to Search. This website uses cookies to improve your experience. We'll assume you're ok with this, but you can opt-out if you wish. Accept.

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Envira Default Settings - E.S.PKU

European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria. Application deadline for hosting the 2018 ESPKU Annual Conference expired (Updated). Situation of refugee rare metabolic disorder patients (Updated). European PKU Guidelines Published. This website uses cookies to improve your experience. We'll assume you're ok with this, but you can opt-out if you wish. Accept.

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