faceis.org

faceIS.org - Infantile Spasms

What is Infantile Spasms. Places to Find Help. Face IS (FACEIS) was founded by Emily Kather in 2010. Emily's son, Ben, was diagnosed with infantile spasms (IS) in August of 2009. Like many parents who've faced IS, Emily encountered many hurdles in the pursuit of finding reliable, expert information and care surrounding her son's condition. Out of her, FACEIS was born. To deliver the expert, vetted information and resources that parents and medical. While infantile spasms is a rare form of epilepsy, it ca...

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Foundation for Awareness of Childhood Epilepsy

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faceIS.org - Infantile Spasms | faceis.org Reviews

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What is Infantile Spasms. Places to Find Help. Face IS (FACEIS) was founded by Emily Kather in 2010. Emily's son, Ben, was diagnosed with infantile spasms (IS) in August of 2009. Like many parents who've faced IS, Emily encountered many hurdles in the pursuit of finding reliable, expert information and care surrounding her son's condition. Out of her, FACEIS was born. To deliver the expert, vetted information and resources that parents and medical. While infantile spasms is a rare form of epilepsy, it ca...

<META> KEYWORDS

1 about us

2 emily’s story

3 mission statement

4 parent advisory board

5 medical advisory board

6 how it's diagnosed

7 treatment

8 parent resources

9 parent faq

10 is research

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about us,emily’s story,mission statement,parent advisory board,medical advisory board,how it's diagnosed,treatment,parent resources,parent faq,is research,is awareness,is awareness week,is research award,is heroes award,donate,acthar,how it's treated

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faceIS.org - Infantile Spasms | faceis.org Reviews

https://faceis.org

What is Infantile Spasms. Places to Find Help. Face IS (FACEIS) was founded by Emily Kather in 2010. Emily's son, Ben, was diagnosed with infantile spasms (IS) in August of 2009. Like many parents who've faced IS, Emily encountered many hurdles in the pursuit of finding reliable, expert information and care surrounding her son's condition. Out of her, FACEIS was born. To deliver the expert, vetted information and resources that parents and medical. While infantile spasms is a rare form of epilepsy, it ca...

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faceis.org

1

faceIS.org - Infantile Spasms

http://www.faceis.org/donate.php

What is Infantile Spasms. Places to Find Help. What is Infantile Spasms. The content of this website is provided for general informational purposes only and is not intended as, nor should it be considered a substitute for,. Professional medical advice. Do not delay seeking or disregard medical advice based on information on this site. Always seek the advice of your physician.

2

faceIS.org - Infantile Spasms

http://www.faceis.org/what_is_is.php

What is Infantile Spasms. Places to Find Help. Infantile Spasms is a neurologic emergency that typically begins in the first 4 to 8 months of life and is characterized by flexion (bending and jerking) of the trunk (torso) or neck and extremities (arms and legs). An episode can range from a subtle head jerk to a flexion that lasts for a few seconds. Most often, the spasms occur in clusters. Please click on this link. To view a short video about infantile spasms and what it looks like. Or other qualified h...

3

faceIS.org - Infantile Spasms

http://www.faceis.org/is_awarness.php

What is Infantile Spasms. Places to Find Help. In 2009, the Child Neurology Foundation announced the creation of infantile Spasms (IS) Awareness Week. Early and aggressive treatment can impact the prognosis of infants diagnosed with IS. Unfortunately, many pediatricians and even child neurologists are unfamiliar with this rare form of epilepsy. This year's IS Awareness week will take place October 24th-30th in Savannah Georgia. What is Infantile Spasms.

4

faceIS.org - Infantile Spasms

http://www.faceis.org/diagnosed.php

What is Infantile Spasms. Places to Find Help. While infantile spasms is a rare form of epilepsy, it can be identified by its distinct (unique) characteristics if physicians and caregivers are aware of the telltale signs. Infantile spasms can be mistaken for colic or an exaggerated Moro reflex, but these do not typically occur in the clusters that are typical of IS. Infantile spasms is typically diagnosed by observing spasms in an infant who also displays hypsarrhythmic EEGs. What is Infantile Spasms.

5

faceIS.org - Infantile Spasms

http://www.faceis.org/treated.php

What is Infantile Spasms. Places to Find Help. FDA Approved Treatment Options. ACTH (Acthar) is a prescription medication that may work by helping the body produce natural hormones such as cortisol and by having a direct effect on the brain. It is in gel form and is given as an injection into the muscle. The gel is designed to slowly release the medication into the body after it is injected. This form of therapy for IS has been around since the 1920s. The ketogenic diet is a high fat, low carbohydrat...

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faceIS.org - Infantile Spasms

What is Infantile Spasms. Places to Find Help. Face IS (FACEIS) was founded by Emily Kather in 2010. Emily's son, Ben, was diagnosed with infantile spasms (IS) in August of 2009. Like many parents who've faced IS, Emily encountered many hurdles in the pursuit of finding reliable, expert information and care surrounding her son's condition. Out of her, FACEIS was born. To deliver the expert, vetted information and resources that parents and medical. While infantile spasms is a rare form of epilepsy, it ca...

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