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FA Parents' GroupFriedreich's Ataxia Parents' Group Website
http://www.faparents.org/
Friedreich's Ataxia Parents' Group Website
http://www.faparents.org/
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View this contact
Summit Solutions
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View this contact
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FA Parents' Group | faparents.org Reviews
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Friedreich's Ataxia Parents' Group Website
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Fundraising
http://www.faparents.org/fapg/Fundraising
This is where you come in. FARA. Make it simple to donate to their organizations, and we strongly encourage everyone to do that, and to spread the word and get others to donate. If you donate to NAF or MDA be sure to indicate exactly where you'd like your donation to go. But how about doing more? FARA, NAF, and MDA are more than happy to help you organize your own fundraiser or to be part of an existing event.
About FA
http://www.faparents.org/fapg/AboutFA
What is Friedreich's Ataxia? Progressive loss of coordination (ataxia) in the arms and legs. Muscle weakness due to incoordination and atrophy. Some vision impairment, hearing loss, and slurred speech. Aggressive scoliosis (curvature of the spine). Diabetes mellitus or carbohydrate intolerance. A heart condition (enlarged heart - hypertrophic cardiomyopathy) that may or may not advance. By Dr Grazia of the Mayo Clinic. Portions printed with permission from Friedreich's Ataxia Research Alliance (FARA).
Guide for New Parents
http://www.faparents.org/fapg/LivingWithFA/Coping/newparent.cfm
Guide for Parents of a Recently Diagnosed Ataxian. You have found this document probably because you are a parent or in a extended-parenting role (if you are a newly diagnosed ataxian go to http:/ www.internaf.org/ataxia.html. Your ataxian has been recently diagnosed, and you are furiously searching for information while trying to keep your emotions under control. Many parents have been where you are and every one of them sympathizes with you right now for having to go through this. Your ataxianâ s socia...
FAPG Membership Request
http://www.faparents.org/fapg/Members/RequestMembership.cfm
Use this form to request membership to the FAPG website and mailing list. Become a website member. You will be able to post photos and news links on this site). Become a mailing list member. You will be added to the FAPG mailing list). Children - name, birth year, type of ataxia:. Only parents of ataxians are allowed to be members of the mailing list). To make sure you're a real person please type in the word(s) shown below.
FAPG Website Login
http://www.faparents.org/fapg/Members
Enter your email address and password to log in to the site. If you don't know your password. Not a member yet? Are you the parent of an ataxian?
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Support Services – FAAV
http://faav.com.au/support-services
Https:/ www.curefa.org/. Http:/ www.fara.org.au/. Friedreich's Ataxia Research Association; is dedicated to the pursuit of a treatment and cure for Friedreich's Ataxia (FA), a fatal, genetic, neurological degenerative disease that affects 1 in 30,000 people. FA initially causes lack of co-ordination, slurred speech and impaired walking, usually striking during the childhood and adolescent years. FA around the world. South Australia: http:/ www.fainsa.org/. Queensland: http:/ www.fan.asn.au/.
Ataxia Links
http://www.ataxians.org/ataxians/links
You can find much more information about ataxia at the following places (selecting any of these links will open the site in a new browser window):. National Ataxia Foundation (NAF). Friedreich's Ataxia Research Alliance (FARA). Muscular Distrophy Association (MDA). Friedreich Ataxia Research Assocation - Australia. Friedreich's Ataxia Parents' Group (FAPG). International Network of Ataxia Friends (InterNAF). Help Friedreich's Ataxia in South Australia. If you would like a site added to this list.
East Tennessee Pediatric Cardiology | Family Support | Knoxville, TN | Drs. Liske & Bremer
http://www.etpc-hearts.com/organizations.html
Preparing for your visit. Paperwork to prepare for your visit. Care of the child with heart disease. To schedule an appointment or for more information please call our offices at 865-971-6897. East Tennessee Pediatric Cardiology. Michael R. Liske, MD, FACC, FASE Yvonne A. Bremer, MD, FACC, FAAP. 2001 Laurel Avenue, Suite NG4. Knoxville, Tennessee 37916. We have not found a web-site dedicated solely to this condition. You may find valuable information on the site for velocardiofacial syndrome.
The FA Project
http://www.thefaproject.org/fa_story.html
The FA Project is committed towards creating awareness of Friedreich's Ataxia, a life altering disease. We aim to educate the public by increasing the visibility of related information and resources and creating a support system for those afflicted with FA. Ultimately it is our goal to provide those living with FA the tools and resources necessary to lead the best life possible. 8226; FA Stories. 8226; Sue Kittel. 8226; Richie Currier. 8226; Jade Perry. The Story of a Man's Unbreakable Spirit. A: 1 Find ...
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FA Parents' Group
FA Parents Group History and Introduction. If you are the parent of a child with FA or an undiagnosed ataxia, we invite you to join our free email support group. Fill out and submit the form on the membership request. We welcome you to explore this site to learn about other families like yours! To learn about important upcoming events, visit the FARA. Are You the Parent of a Newly Diagnosed Child? If you would like to view resources for families with a newly diagnosed child check out these resources:.
Tuesday & Thursday Nights at The Riverhouse
Tuesday and Thursday Nights at The Riverhouse. Brought to you by FAPA "Fortune favors the bold.". Wednesday, May 10, 2006. Back in the day. The Philippine Poker community has experienced a Golden Age type boom in the past few months. You can hardly go through the day without overhearing some college punk go through another Bad Beat Story. Internet shops will always have one or two people busy with internet poker. And you can almost always find a poker game. ANYWHERE. Posted by FAPA @ 12:58:00 PM. As the ...
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