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Home | fightingformaya.com Reviews
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fightingformaya.com
Blog
http://www.fightingformaya.com/menu.html
Click here to read the latest #FightingForMaya blog post.
Donations/ T-Shirts
http://www.fightingformaya.com/donations--t-shirts.html
There are two ways that you can help fund the research project at Texas Children's Hospital and raise awareness of SCAR7 (Atypical TPP1 Deficiency) and other rare disorders. The first is by purchasing a #FightingForMaya T-Shirt and the second is by donating directly to the SCAR7 research project at Texas Children's Hospital. Details are below. Does your company match your donations to non-profits? Once you receive your shirt, we ask that every Friday you show that you are #fightingformaya, by:. Please in...
Campaign
http://www.fightingformaya.com/friends-of--fightingformaya.html
News
http://www.fightingformaya.com/news.html
How to Survive a Rare Disease. September 20, 2016. Two Heroes You Can Help Right Now. June 20, 2016. NRI to commence project focused on Atypical TPP1 Deficiency, a disorder closely related to Late Infantile Neuronal Ceroid Lipofuscinosis 2. This project is funded by the friends and family of Fighting for Maya. To learn more about the Jan and Duncan Neurological Institute at Texas Children's and their important work, Click Here. To learn more about Dr. Marco Sardiello, Click Here. June 10, 2016.
About Us
http://www.fightingformaya.com/about-us.html
Patients typically present initially with language delay followed by movement disorders, motor deterioration, dementia, and early death. During the later stages of the diseases, feeding and tending to everyday needs become very difficult. Currently, there is no cure for TPP1 Deficiency or CLN2. This project is dependent upon Maya’s friends and family for funding. If you donate from this page, funds go directly to the research project for Atypical TPP1 Deficiency/SCAR7. Adding the hashtag, #fightingformaya.
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Fighting For Maya: Pioneer(s)
http://bjames358.blogspot.com/2016/12/pioneers.html
Friday, December 30, 2016. Despite Dr. Em's proclamation, and there is some truth to it, I'd argue that there are so many other Pioneers that continue to step forward to battle Batten Disease. At the risk of forgetting to thank others, I'd like to take a moment and thank the people of Columbus, Ohio for stepping forward in the battle against Batten Disease. From the brave world class medical care at. For this, I am eternally thankful. Seriously, there is so much to say, and so few words. I keep looking b...
Fighting For Maya: A #FightingForMaya Update
http://bjames358.blogspot.com/2016/11/a-fightingformaya-update.html
Sunday, November 13, 2016. When Maya was born, she had what we believe was an unrelated condition called gastroschisis, that required her to have surgery immediately after birth and spend five weeks in the NICU. She was diagnosed during the 19th week of pregnancy and Suzette and I braced for her challenging, yet not impossible arrival. Little did I know. That moment and conversation meant a lot. As of this week:. We have sold over 900. Raised over $13,000. From shirts alone;. Or bought a shirt. Be this y...
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FIGHTING FOR LIVES
Friday, 26 May 2017. Fighting for Lives Financial Statement - January to December 2016. Click picture to enlarge. Links to this post. Fighting for Lives Financial Statement - January to December 2015. Click picture to enlarge. Links to this post. Sunday, 25 October 2015. Fighting for Lives Financial Statement - January to December 2014. CLICK IMAGE TO ENLARGEN. Links to this post. Wednesday, 14 October 2015. Current List of Event Holders and Donors - World Fighting for Lives Weekend 2015. Alex Stenroos -...
fightingforlizzy-nina.blogspot.com
Lizzy's Page - Living with Spinal Muscular Atrophy
Lizzy's Page - Living with Spinal Muscular Atrophy. All about Lizzy's life and my life as Lizzy's caregiver. Lizzy has Spinal Muscular Atrophy Type 1 and is a miracle! She has NEVER been able to stand, walk or sit(with out assistance). She is such an amazing child with the determination to over come many of her battles with this terrible disease. She is a happy child and is always smiling. Wednesday, January 14, 2015. Dealing with so many deaths to people that were so close to me is the hardest thing I h...
Web hosting, domain name registration and web services by 1&1 Internet
THIS DOMAIN NAME HAS JUST BEEN REGISTERED FOR ONE OF OUR CUSTOMERS! Do you need affordable web hosting or a domain name? 1&1 Internet is trusted by millions. Find out why. Offers a one-stop shop for all your domain name and web hosting needs so you can maximize your full web potential — without barriers, and without fear. Smart webmasters choose 1&1 Internet for domain name registration and hosting solutions. All-Inclusive Hosting Plans with NO Hidden Charges. 24/7 Phone and E-mail Support.
Fighting for Maia
A Mother's Fight For A Lifetime with her Daughter. Tuesday, January 14, 2014. Links to this post. Labels: living beyond cancer. Wednesday, October 2, 2013. Links to this post. Wednesday, August 14, 2013. So this week, (I can only say partly for everyone's peace of mind because the waiting time for the results is an altogether different story) I MADE time to schedule the CT Scan finally. My creatinine results came back normal and within range so there's no turning back now. This Saturday I face my...That ...
Fighting For Main Street™ | Fighting For Main Street™
Fighting For Main Street. Empowering You, Miles From Wall Street. Virtual consultation services offered. Nationwide or Physical office locations in. Mckinney and Irving TX. Fort Collins, CO. Registered Investment Advisory Firm. We support our clients goals, by providing customized planning strategies and financial advice through long-term personable relationships, assembled on trust, respect and a distinctively detailed level of service. Find us on Google. Fiduciary Standard of Impact. Made by Jay Hafling.
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Fighting For Me | Free, professional counseling for anyone affected by sexual abuse
Welcome to Fighting For Me. Free Sexual Abuse Counseling for Men, Women, and Children. Catch the vision for Fighting For Me as you hear stories from brave survivors. MOST victims of sexual abuse know their perpetrator. Find out more about prevention and healing. 8220;The little 9-year-old girl who was laid down on that bed was NOT the same little girl who got up.”. Nicole shares her story of overcoming childhood sexual abuse and why she’s chosen to partner with Fighting For Me. Amanda Zarate, Founder.
fighting for mei – it's time to stop hiding yourself from the world. darling, they're just as broken as you are.
It's time to stop hiding yourself from the world. darling, they're just as broken as you are. Throwback: 2-Year WP Anniversary, And A Whole Lotta Personal Growth 🎉. December 25, 2016. December 26, 2016. Trigger/Content Warning* * *. Discussion of effects of trauma, mention of abuse and domestic violence, self-harm and suicide attempts, disparaging treatment by police, ED/anorexia nervosa (behaviors, thoughts, depiction of unhealthy weight loss including photo). Continue reading →. December 14, 2016.
www.fightingformen.com
Welcome to: www.fightingformen.com. This web page is parked for FREE, Courtesy of Websitespot.com. Live Humans Standing By 480-624-2500. Register Your First Domain Name Too! Is this your domain? Lets turn it into a websites. Would you like to setup a business email address. LOCAL SEO BE FOUND Top Local ranking on. It is a long established fact that just having a website does not ensure online success. It's important to market your website and the fist place to start is with search engine optimization.
fightingformensrights.blogspot.com
Fighting For Men's Rights
Fighting For Men's Rights. These men are fighting for men's rights and against the evils of feminism. These men are heroes. Send comments to: djones32998@mail.com. Monday, June 15, 2015. FFMR - June 2015: Roissy In DC. The author of the Chateau Heartiste blog regularly shows penetrating insight into the evils of feminism and the lack of men's rights that is evident in western society. Some of his topics include:. Cliches: "Nice guys finish last" is a truism and most people don’t want to believe. Feminist...
