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Fight Pompe – juan day at a time

Juan day at a time. Scroll down to content. December 31, 2012. December 31, 2012. I’m Glad The World Did Not End. The Mayans were wrong and we’re all still here. We’re closing out 2012 with a big cheer! I’d like to take this chance to write some thoughts and give thanks to a year that has gone. Work has been good. I’m thankful and blessed to have gainful employment when some people do not. It allows me to do the things I need to do outside of work. I’m looking forward to another good year at ...It’s also...

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ju●●●●●@gmail.com

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Fight Pompe – juan day at a time | fightpompe.com Reviews

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Juan day at a time. Scroll down to content. December 31, 2012. December 31, 2012. I’m Glad The World Did Not End. The Mayans were wrong and we’re all still here. We’re closing out 2012 with a big cheer! I’d like to take this chance to write some thoughts and give thanks to a year that has gone. Work has been good. I’m thankful and blessed to have gainful employment when some people do not. It allows me to do the things I need to do outside of work. I’m looking forward to another good year at ...It’s also...

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Fight Pompe – juan day at a time | fightpompe.com Reviews

https://fightpompe.com

Juan day at a time. Scroll down to content. December 31, 2012. December 31, 2012. I’m Glad The World Did Not End. The Mayans were wrong and we’re all still here. We’re closing out 2012 with a big cheer! I’d like to take this chance to write some thoughts and give thanks to a year that has gone. Work has been good. I’m thankful and blessed to have gainful employment when some people do not. It allows me to do the things I need to do outside of work. I’m looking forward to another good year at ...It’s also...

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fightpompe.com

1

Food | Fight Pompe

http://www.fightpompe.com/category/food

Skip to primary content. Skip to secondary content. Juan day at a time. There’s A New Secret Burger Steak Place Opening Soon. July 15, 2012. A friend of mine is set to open up another restaurant by mid August. Umami Hambaagu House promises to server the best “melt in your mouth” Japanese Burger Steaks in town. If their previous restaurants are any indication this promises to be something worth trying. For now the location is hush-hush. If you want to find out where it is, head on to their web site. There...

2

Look Ma’ I Made It To Rappler! | Fight Pompe

http://www.fightpompe.com/look-ma-i-made-it-to-rappler

Skip to primary content. Skip to secondary content. Juan day at a time. Look Ma’ I Made It To Rappler! July 18, 2012. I wrote a blog post/article last July 14 titled ThisAbility: 10 Life Lessons I Learned Growing Up With Pompe Disease. I initially just wanted to post it on my blog. After receiving favorable feedback from friends and family I realized that I wanted to share it with more people. I’ve been a fan of the people behind Rappler for some time. Notably Maria Ressa and Patricia Evangelista. Patric...

3

Rappler | Fight Pompe

http://www.fightpompe.com/tag/rappler

Skip to primary content. Skip to secondary content. Juan day at a time. Look Ma’ I Made It To Rappler! July 18, 2012. I wrote a blog post/article last July 14 titled ThisAbility: 10 Life Lessons I Learned Growing Up With Pompe Disease. I initially just wanted to post it on my blog. After receiving favorable feedback from friends and family I realized that I wanted to share it with more people. Continue reading →. I’m Glad The World Did Not End. What Would Jesse Do? Farewell To Our Fallen Hero.

4

Media | Fight Pompe

http://www.fightpompe.com/media

Skip to primary content. Skip to secondary content. Juan day at a time. I’ll be compiling some articles and videos about me on this page. One thought on “ Media. July 18, 2012 at 3:39 am. Thank you for being an inspiration to many who opted not, who simply can’t and those who are not. Thank you for reminding us to appreciate life. All the best po. Leave a Reply Cancel reply. Your email address will not be published. Required fields are marked *. You may use these. Proudly powered by WordPress.

5

restaurants | Fight Pompe

http://www.fightpompe.com/tag/restaurants

Skip to primary content. Skip to secondary content. Juan day at a time. There’s A New Secret Burger Steak Place Opening Soon. July 15, 2012. A friend of mine is set to open up another restaurant by mid August. Umami Hambaagu House promises to server the best “melt in your mouth” Japanese Burger Steaks in town. If their previous restaurants are any indication this promises to be something worth trying. For now the location is hush-hush. If you want to find out where it is, head on to their web site. There...

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pompemom.blogspot.com

Pompe Mom's Diary: Before Trip to Taiwan

http://pompemom.blogspot.com/2011/10/before-trip-to-taiwan.html

Thanks to all the prayers, help and support from friends and families, my girls have 2nd chance of life. Still, I hope that there will be a well and sustainable medical system to protect the right of getting free treatment for my girls and all the other LSD patients in Malaysia one day. Wednesday, October 12, 2011. Before Trip to Taiwan. It had been a long time that I failed to write down anything for almost a month, felt a little bit of guity but was really out of time. Did my plan work out? Even before...

conservababe.blogspot.com

Life is wonderful

http://conservababe.blogspot.com/2006_09_01_archive.html

Hearts; DA GIRL. 22 yrs old/registered-resting nurse/laidback/has a twin sissy/got a low heat tolerance/quiet unless excited or tensed/simpleton/total foodie/occasionally lazy/not a morning person/. Hearts; DAR links. Hearts; LINK AWAY. Hearts; SNAPSHOT FOR THE WEEK. Hearts; FAMOUS LINES. Do you know how painful it is to give up on someone coz you dont have any choice but to let go? It's like falling off the 99th floor. and sadly, you still end up alive." =(. Hearts; HEALTHY HUMOR. Hearts; BLAH BLAH.

conservababe.blogspot.com

Life is wonderful

http://conservababe.blogspot.com/2006_08_01_archive.html

Hearts; DA GIRL. 22 yrs old/registered-resting nurse/laidback/has a twin sissy/got a low heat tolerance/quiet unless excited or tensed/simpleton/total foodie/occasionally lazy/not a morning person/. Hearts; DAR links. Hearts; LINK AWAY. Hearts; SNAPSHOT FOR THE WEEK. Hearts; FAMOUS LINES. Do you know how painful it is to give up on someone coz you dont have any choice but to let go? It's like falling off the 99th floor. and sadly, you still end up alive." =(. Hearts; HEALTHY HUMOR. Hearts; BLAH BLAH.

conservababe.blogspot.com

Life is wonderful

http://conservababe.blogspot.com/2006_07_01_archive.html

Hearts; DA GIRL. 22 yrs old/registered-resting nurse/laidback/has a twin sissy/got a low heat tolerance/quiet unless excited or tensed/simpleton/total foodie/occasionally lazy/not a morning person/. Hearts; DAR links. Hearts; LINK AWAY. Hearts; SNAPSHOT FOR THE WEEK. Hearts; FAMOUS LINES. Do you know how painful it is to give up on someone coz you dont have any choice but to let go? It's like falling off the 99th floor. and sadly, you still end up alive." =(. Hearts; HEALTHY HUMOR. Hearts; BLAH BLAH.

conservababe.blogspot.com

Life is wonderful

http://conservababe.blogspot.com/2006_05_01_archive.html

Hearts; DA GIRL. 22 yrs old/registered-resting nurse/laidback/has a twin sissy/got a low heat tolerance/quiet unless excited or tensed/simpleton/total foodie/occasionally lazy/not a morning person/. Hearts; DAR links. Hearts; LINK AWAY. Hearts; SNAPSHOT FOR THE WEEK. Hearts; FAMOUS LINES. Do you know how painful it is to give up on someone coz you dont have any choice but to let go? It's like falling off the 99th floor. and sadly, you still end up alive." =(. Hearts; HEALTHY HUMOR. Hearts; BLAH BLAH.

conservababe.blogspot.com

Life is wonderful

http://conservababe.blogspot.com/2006_01_01_archive.html

Hearts; DA GIRL. 22 yrs old/registered-resting nurse/laidback/has a twin sissy/got a low heat tolerance/quiet unless excited or tensed/simpleton/total foodie/occasionally lazy/not a morning person/. Hearts; DAR links. Hearts; LINK AWAY. Hearts; SNAPSHOT FOR THE WEEK. Hearts; FAMOUS LINES. Do you know how painful it is to give up on someone coz you dont have any choice but to let go? It's like falling off the 99th floor. and sadly, you still end up alive." =(. Hearts; HEALTHY HUMOR. Hearts; BLAH BLAH.

conservababe.blogspot.com

Life is wonderful

http://conservababe.blogspot.com/2005_11_01_archive.html

Hearts; DA GIRL. 22 yrs old/registered-resting nurse/laidback/has a twin sissy/got a low heat tolerance/quiet unless excited or tensed/simpleton/total foodie/occasionally lazy/not a morning person/. Hearts; DAR links. Hearts; LINK AWAY. Hearts; SNAPSHOT FOR THE WEEK. Hearts; FAMOUS LINES. Do you know how painful it is to give up on someone coz you dont have any choice but to let go? It's like falling off the 99th floor. and sadly, you still end up alive." =(. Hearts; HEALTHY HUMOR. Hearts; BLAH BLAH.

conservababe.blogspot.com

Life is wonderful

http://conservababe.blogspot.com/2005_08_01_archive.html

Hearts; DA GIRL. 22 yrs old/registered-resting nurse/laidback/has a twin sissy/got a low heat tolerance/quiet unless excited or tensed/simpleton/total foodie/occasionally lazy/not a morning person/. Hearts; DAR links. Hearts; LINK AWAY. Hearts; SNAPSHOT FOR THE WEEK. Hearts; FAMOUS LINES. Do you know how painful it is to give up on someone coz you dont have any choice but to let go? It's like falling off the 99th floor. and sadly, you still end up alive." =(. Hearts; HEALTHY HUMOR. Hearts; BLAH BLAH.

conservababe.blogspot.com

Life is wonderful

http://conservababe.blogspot.com/2007_04_01_archive.html

Hearts; DA GIRL. 22 yrs old/registered-resting nurse/laidback/has a twin sissy/got a low heat tolerance/quiet unless excited or tensed/simpleton/total foodie/occasionally lazy/not a morning person/. Hearts; DAR links. Hearts; LINK AWAY. Hearts; SNAPSHOT FOR THE WEEK. Hearts; FAMOUS LINES. Do you know how painful it is to give up on someone coz you dont have any choice but to let go? It's like falling off the 99th floor. and sadly, you still end up alive." =(. Hearts; HEALTHY HUMOR. Hearts; BLAH BLAH.

conservababe.blogspot.com

Life is wonderful

http://conservababe.blogspot.com/2007_01_01_archive.html

Hearts; DA GIRL. 22 yrs old/registered-resting nurse/laidback/has a twin sissy/got a low heat tolerance/quiet unless excited or tensed/simpleton/total foodie/occasionally lazy/not a morning person/. Hearts; DAR links. Hearts; LINK AWAY. Hearts; SNAPSHOT FOR THE WEEK. Hearts; FAMOUS LINES. Do you know how painful it is to give up on someone coz you dont have any choice but to let go? It's like falling off the 99th floor. and sadly, you still end up alive." =(. Hearts; HEALTHY HUMOR. Hearts; BLAH BLAH.

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Fight Pompe – juan day at a time

Juan day at a time. Scroll down to content. December 31, 2012. December 31, 2012. I’m Glad The World Did Not End. The Mayans were wrong and we’re all still here. We’re closing out 2012 with a big cheer! I’d like to take this chance to write some thoughts and give thanks to a year that has gone. Work has been good. I’m thankful and blessed to have gainful employment when some people do not. It allows me to do the things I need to do outside of work. I’m looking forward to another good year at ...It’s also...

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