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A Hemophilia Advocate & Her Family's Healing Journey With A Rare Bleeding Disorder

Hemophilia is a group of rare bleeding disorders that affects a person's ability to clot. This is about a family's journey with von Willebrand Disease, a rare bleeding disorder also called pseudo hemophilia.

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A Hemophilia Advocate & Her Family's Healing Journey With A Rare Bleeding Disorder | fortheloveofstar.com Reviews
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Hemophilia is a group of rare bleeding disorders that affects a person's ability to clot. This is about a family's journey with von Willebrand Disease, a rare bleeding disorder also called pseudo hemophilia.
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1 hemophilia advocate
2 hemophilia
3 advocacy
4 chronic hemophilia disorders
5 Hemophilia Books
6 Hemophilia resources
7 hemophilia parents
8 Project SHARE
9 hemophilia international
10 hemablog
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about hemophilia,our journey,resources,philippine hemophilia foundation,world hemophilia federation,project share,save one life,my girls blood,bleeding disorders,family,featured,hemophilia,philippines,star,von willebrand disease,news,dear google,haplos
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A Hemophilia Advocate & Her Family's Healing Journey With A Rare Bleeding Disorder | fortheloveofstar.com Reviews

https://fortheloveofstar.com

Hemophilia is a group of rare bleeding disorders that affects a person's ability to clot. This is about a family's journey with von Willebrand Disease, a rare bleeding disorder also called pseudo hemophilia.

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cakesbystar.com cakesbystar.com

About | Cakes By Star

https://cakesbystar.com/about-cakes-by-star

You'll never have enough. Are creations of Star Echavez, a 16-year-old homeschooler. Diagnosed with a rare genetic disorder called von Willebrand Disease or pseudo-hemophilia where her blood doesn’t clot normally, Star stopped going to regular school in 2012 because of frequent hospital confinements. Along with her older siblings Zeus and Sofia, Star started a home-based baking business. Part of Star. To know more about Star. 8216;s favorite foundation, check out Save One Life. Leave a Reply Cancel reply.

hivlongevity.com hivlongevity.com

Who Am I « HIV Longevity

http://hivlongevity.com/2009/02/16/who-am-i

Who am I and Why am I Qualified to Write This Here Blog? I’m Vaughn Ripley. I was born with a blood disorder called, hemophilia. I get injections of Factor VIII (pronounced factor eight) to stop severe bleeding that comes from my hemophilia. The blood products that I get to save my life bring lots of baggage with them. Along with a plethora of viruses and sicknesses, I have gotten Hepatitis C and HIV from tainted blood. Ps This post is a chapter in my blog-book,. The Secret to Longevity. Tagged as: about...

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Kona « HIV Longevity

http://hivlongevity.com/kona

Can I put text on the right side of the photo? This is obviously a test of seeing where we stand right justification. Hopefully it works okay. Subscribe to comments on this post ). March 29th, 2013 - 21:19. You look like albino Sadiki… WTJHAND? June 8th, 2013 - 13:27. Quite ripped there Mr. RIPLEY. Very nice. Woof. Leave a comment Cancel reply. Get My Latest Book! My memoir, Survivor: One Man's Battle with HIV, Hemophilia, and Hepatitis C. And, be sure to checkout all of my books here. Find a Cure Transit.

hivlongevity.com hivlongevity.com

Contributors « HIV Longevity

http://hivlongevity.com/contributors

HIVLongevity.com was originally started by Vaughn Ripley as a personal blog. Over time, he has crossed paths with many other HIV survivors and eventually Vaughn started asking some of these other brave souls to author some blog posts on here. If you are an HIV survivor, and would be interested in posting some of your stories and/or thoughts on this blog, feel free to send Vaughn a message. Here is a short bio for each of the contributors on this blog:. Here are some of Vaughn's links:. Get My Latest Book!

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new « HIV Longevity

http://hivlongevity.com/tag/new

So Long and Thanks for All the Fish. Posted by Vaughn Ripley. This might very well be my final blog post on HIVLongevity.com. I'm not dying or anything like that. I'm a thriver. I'm a survivor. I can't die. Yet. Nay, I am merely changing over to my new fulltime blog HealthyWealthyTribe.com. It is with mixed emotions that I officially close down this blog and transfer over to my new one. But, I promise to give you every bit as much inspiration and motivation at my new one (perhaps more! And chime-in on my...

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introduction « HIV Longevity

http://hivlongevity.com/tag/introduction

So Long and Thanks for All the Fish. Posted by Vaughn Ripley. This might very well be my final blog post on HIVLongevity.com. I'm not dying or anything like that. I'm a thriver. I'm a survivor. I can't die. Yet. Nay, I am merely changing over to my new fulltime blog HealthyWealthyTribe.com. It is with mixed emotions that I officially close down this blog and transfer over to my new one. But, I promise to give you every bit as much inspiration and motivation at my new one (perhaps more! And chime-in on my...

hivlongevity.com hivlongevity.com

HIV Medication « HIV Longevity

http://hivlongevity.com/2009/02/18/hiv-medication

When I was first diagnosed with HIV, there were no medicines available to combat this deadly disease. At the end of the 80's AZT became available. Early on I didn't take any of the medicines that were becoming available, but it was apparent that I would need them. Since I started on meds, I have ingested a ton of HIV and AIDS related medicines and homeopathic remedies. Tenofovir disoproxil fumarate) is a NRTI (nucleotide as opposed to a nucleoside) type of medicine used in combination with other medicine...

hivlongevity.com hivlongevity.com

Introduction to the Secret « HIV Longevity

http://hivlongevity.com/2009/02/16/introduction-to-the-secret

Introduction to the Secret. I am an HIV hemophiliac. I was infected through a bad blood transfusion of Factor VIII sometime in mid-1980. More than 22,000,000 people have died from AIDS. In 2003 alone, HIV/AIDS-associated illnesses caused the deaths of approximately 3,000,000 people. The Centers for Disease Control and Prevention (CDC) estimates that as of 2003 nearly 950,000 United States residents are living with the HIV infection. They also estimate a total number of HIV hemophiliacs at somewhere aroun...

hivlongevity.com hivlongevity.com

Side Effects « HIV Longevity

http://hivlongevity.com/2009/02/26/side-effects

Let's take a moment and talk about the confounded side effects of HIV and its associated medication. Sometimes side effects are unavoidable. And, we usually weigh the pros and cons. For instance, my current triple drug cocktail gives me diarrhea on a daily basis. This is a pain in the ass (no pun intended)! Here are many of the side effects that I am currently experiencing, or have experienced in the past:. Doesn’t fiber loosen your stool? Well Yes But, it also helps to regulate and control your bowels&#...

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Amalgamation « HIV Longevity

http://hivlongevity.com/2013/07/29/amalgamation

My original intention with this blog was to create an online book of sorts. I planned to write several articles and consider them chapters in a bigger book that details the trials of living with HIV. It also details what I've done to survive this plague. I've now been living with this virus for nearly twenty-eight years! Here are the titles (with links) of all of the chapters (there's a whopping 21 chapters) of this book. The Secret to Longevity. CHAPTER 1 - Introduction to the Secret. CHAPTER 5 - Fitness.

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A Hemophilia Advocate & Her Family's Healing Journey With A Rare Bleeding Disorder

For The Love Of Star. For The Love Of Star. True journalism is about service. World Federation of Hemophilia. Philippine Children's Medical Center. World Federation of Hemophilia. Why we need to raise awareness about hemophilia. To be a woman in a man’s world. Finding courage among blood sisters. Coming soon: Hemophilia Law. Face-to-face with a rare bleeding disorder. Three strikes in a row. Hugh Jackman supports hemophilia advocacy. August 31, 2016. True journalism is about service. February 23, 2016.

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