gemma-memyselfandi.blogspot.com
Me, myself and I (and CF): CF and Me
http://gemma-memyselfandi.blogspot.com/p/cf-and-me.html
Me, myself and I (and CF). Woe to that child which when kissed on the forehead tastes salty. He is bewitched and soon must die'. My To Do List. Twice daily for about 30-40 minutes with pep mask and percussion (patting). Alzi three times a day, Salbutamol twice a day, Hypertonic Saline (7%) three times a day and Pulmozyme once a day, all through the I-Neb or EFlow. To see me doing my physio and I-Neb. Tablets and Inhalers etc:. Nutrizym 22 - taken with food. Symbicort Turbohaler - twice a day. 07th Oct 10...
gemma-memyselfandi.blogspot.com
Me, myself and I (and CF): April 2013
http://gemma-memyselfandi.blogspot.com/2013_04_01_archive.html
Me, myself and I (and CF). Woe to that child which when kissed on the forehead tastes salty. He is bewitched and soon must die'. My To Do List. Friday, 12 April 2013. I'm really happy to say that yesterday my lung function was 49%, my weight 55.8kg and my oxygen saturation (sats) levels were 99%! So what I have been doing differently? Sometimes I feel guilty if I go out for a meal out as the papers make me feel like I shouldn't be able to afford my electricity and gas, never mind a meal out, because I am...
gemma-memyselfandi.blogspot.com
Me, myself and I (and CF): Introducing CF
http://gemma-memyselfandi.blogspot.com/p/introduction-to-cf.html
Me, myself and I (and CF). Woe to that child which when kissed on the forehead tastes salty. He is bewitched and soon must die'. My To Do List. A short video for children and for beginners! For my Youtube channel which has some CF videos - click. You can not catch CF or develop it, you are unfortunately born with it (so relax you can come near me! CF affects most parts of the body (great! This affects the body in many ways:. Other problems CF can cause:. 8226; All the treatments I am on and my digestive ...
lungsbehavingbadly.blogspot.com
Lungs Behaving Badly.: Shingle bells.
http://lungsbehavingbadly.blogspot.com/2015/06/shingle-bells.html
Enjoying life with our daughter Sophie who has Cystic Fibrosis and was also born with a Tracheo-Oesophageal Fistula and Oesophageal Atresia. Monday, 1 June 2015. Sounds lovely doesn't it? Nice little ring to its name you'd say. A tiny little 'dry' patch of skin, which someone (that would be me) assumed was a small graze from a tumble Sophie had taken while playing. Off to school we go. I receive a phone call from the hubster to inform me of a weird rash Sophie has. What kind of a rash is it? Knowing seve...
lungsbehavingbadly.blogspot.com
Lungs Behaving Badly.: VX770/VX809
http://lungsbehavingbadly.blogspot.com/p/vx770vx809.html
Enjoying life with our daughter Sophie who has Cystic Fibrosis and was also born with a Tracheo-Oesophageal Fistula and Oesophageal Atresia. Link to original post. There has been a huge buzz in the CF community for some time now but last week some results were announced that could potentially change the future for our little ones and the many many people living with Cystic Fibrosis. The drug is VX770. Here's the science bit. This is the reason that when a person with CF sweats, they taste very salty and ...
lungsbehavingbadly.blogspot.com
Lungs Behaving Badly.: MRSA Vs Vancomycin
http://lungsbehavingbadly.blogspot.com/2013/02/mrsa-vs-vancomycin.html
Enjoying life with our daughter Sophie who has Cystic Fibrosis and was also born with a Tracheo-Oesophageal Fistula and Oesophageal Atresia. Tuesday, 26 February 2013. Very long overdue post, sorry! Well in my defence I have a reason why I have left it so long before writing this. Right lets zoom back to Sophie's 5 day admission for nebulised Vancomycin. This was our last real shot of trying to eradicate MRSA. To stop promixin for the 5 days while Soph had the Vanc. To nebulise Vancomycin 4 times per day.
lungsbehavingbadly.blogspot.com
Lungs Behaving Badly.: Unwelcome guest.
http://lungsbehavingbadly.blogspot.com/2010/10/unwelcome-guest.html
Enjoying life with our daughter Sophie who has Cystic Fibrosis and was also born with a Tracheo-Oesophageal Fistula and Oesophageal Atresia. Friday, 1 October 2010. The weather has gotten colder. The days are getting shorter. The sun has been hidden by a sky full of darkness. People are taking to their houses and only venturing out into the unknown for necessities, hoping that on those short journeys they wont cross paths with. It's only a cold you hear people say. I hate the viral season. Sophie isn't r...
lungsbehavingbadly.blogspot.com
Lungs Behaving Badly.: Four little letters.
http://lungsbehavingbadly.blogspot.com/2014/11/four-little-letters.html
Enjoying life with our daughter Sophie who has Cystic Fibrosis and was also born with a Tracheo-Oesophageal Fistula and Oesophageal Atresia. Friday, 14 November 2014. For anyone that has hidden under a rock for the last week I'd like to draw your attention to this. Http:/ blogs.channel4.com/snowblog/eureka-moment-offers-hope-cystic-fibrosis-cure/24757. For those of you who don't feel inclined to read it allow me to summarise. Okay, I hear you say but why has it caused such a frenzy? I'm a sceptic at hear...
lungsbehavingbadly.blogspot.com
Lungs Behaving Badly.: What is TOF/OA?
http://lungsbehavingbadly.blogspot.com/p/what-is-tofoa.html
Enjoying life with our daughter Sophie who has Cystic Fibrosis and was also born with a Tracheo-Oesophageal Fistula and Oesophageal Atresia. What is wrong in TOF/OA? The oesophagus (gullet or ‘foodpipe’) is the passage through which food moves on its route from the mouth to the stomach. It starts in the neck, just behind the larynx (Adam’s apple), and ends below the diaphragm where it joins the stomach at an acute angle. Instead returns to the mouth. TOF/OA REQUIRES SURGERY;. Subscribe to: Posts (Atom).
lungsbehavingbadly.blogspot.com
Lungs Behaving Badly.: Play time in the outpatients department!
http://lungsbehavingbadly.blogspot.com/2010/07/play-time-in-outpatients-department.html
Enjoying life with our daughter Sophie who has Cystic Fibrosis and was also born with a Tracheo-Oesophageal Fistula and Oesophageal Atresia. Tuesday, 6 July 2010. Play time in the outpatients department! Sophie gets so worked up at clinic appointments that she wont let the nurses weigh, or measure her height, she wont let the doctors listen to her chest and the whole appointment is full of lots of screaming and crying-exhausting! Go Sophie. We also managed to get her onto the sitting scales by puttin...
