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National Fragile X Foundation. Sunday, November 3rd, 2013. Everyone was shocked. except me. Is it wrong that I felt slightly relieved to get my 10 year old son's FXS diagnosis last week? It made me want to scream, "I know he's fine! But, I also knew on some levels he struggled and those struggles would just get harder over time. My only grief is that I know he'll have tough decisions to make about starting his own family. I feel lost in all the online data right now! Where do we go from here? Friday, Nov...

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National Fragile X Foundation. Sunday, November 3rd, 2013. Everyone was shocked. except me. Is it wrong that I felt slightly relieved to get my 10 year old son's FXS diagnosis last week? It made me want to scream, I know he's fine! But, I also knew on some levels he struggled and those struggles would just get harder over time. My only grief is that I know he'll have tough decisions to make about starting his own family. I feel lost in all the online data right now! Where do we go from here? Friday, Nov...
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fragile x | fragile-x.livejournal.com Reviews

https://fragile-x.livejournal.com

National Fragile X Foundation. Sunday, November 3rd, 2013. Everyone was shocked. except me. Is it wrong that I felt slightly relieved to get my 10 year old son's FXS diagnosis last week? It made me want to scream, "I know he's fine! But, I also knew on some levels he struggled and those struggles would just get harder over time. My only grief is that I know he'll have tough decisions to make about starting his own family. I feel lost in all the online data right now! Where do we go from here? Friday, Nov...

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fragile-x.livejournal.com fragile-x.livejournal.com
1

Hi!: fragile_x

https://fragile-x.livejournal.com/6952.html

My name is Neha and my younger brother has fragile x. I have yet to be tested to find out if I am a carrier or not, but I am hoping that this summer I will be able to finally get that done. That I thought might help spark the community a bit. This is from postsecret. I have never have seen a more true secret. Post a new comment. Anonymous comments are disabled in this journal. We will log you in after post. We will log you in after post. We will log you in after post. We will log you in after post.

2

Entries feed for fragile_x

https://fragile-x.livejournal.com/friends

0} " class=" actions-entryunit item actions-entryunit item- comments js-elem-color- svgicon ". 8 & ($index 1) % 3 = = 0" ng-cloak. 4 & ($index 1) % 5 = = 0" ng-cloak. 9 & ($index 1) % 10 = = 0" ng-cloak. 9 & ($index 1) % 10 = = 0" ng-cloak. Sorry, there are no available entries to display. Follow us on Facebook. Follow us on Twitter. 1999 LiveJournal, Inc.

3

Its the Little things.: fragile_x

https://fragile-x.livejournal.com/7304.html

Its the Little things. 1 My son sat through Wall-E all the way to the end. Did not get up, did not get upset, did not get overly excited (though he did get excited). He enjoyed the movie through its entirety. 2 I took my son to the gym yesterday to go in the kids club as we were leaving I asked him to get his backpack and he replied "Okay". This girl, about his age, looked and me and said "he can talk? 4 Turning on the TV to the channel he likes on his own. Post a new comment. Anonymous comments are disa...

4

Looking for research participants: fragile_x

https://fragile-x.livejournal.com/5340.html

Looking for research participants. My name is Katherine Koenig and I am a graduate student and researcher at Case Western Reserve University in Cleveland, OH. This research has received approval from the Case Western Reserve University Institutional Review Board and the Cuyahoga County Board of Mental Retardation and Developmental Disabilities. Thank you again for your time and consideration. Please feel free to repost this and pass it on to individuals who may be interested. Thanks again.

5

Everyone was shocked... except me: fragile_x

https://fragile-x.livejournal.com/9116.html

Everyone was shocked. except me. Is it wrong that I felt slightly relieved to get my 10 year old son's FXS diagnosis last week? It made me want to scream, "I know he's fine! But, I also knew on some levels he struggled and those struggles would just get harder over time. My only grief is that I know he'll have tough decisions to make about starting his own family. I feel lost in all the online data right now! Where do we go from here? Should our whole family have testing? Post a new comment.

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National Fragile X Foundation. Sunday, November 3rd, 2013. Everyone was shocked. except me. Is it wrong that I felt slightly relieved to get my 10 year old son's FXS diagnosis last week? It made me want to scream, "I know he's fine! But, I also knew on some levels he struggled and those struggles would just get harder over time. My only grief is that I know he'll have tough decisions to make about starting his own family. I feel lost in all the online data right now! Where do we go from here? Friday, Nov...

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