friendsofbrianna.com

Friends of Brianna Home Page | Childhood Illnesses | Batten Disease | Brianna Skriver Needs Your Help and Donations |

12 year old Brianna Skriver has a mystery disease that went undiagnosed for almost 7 years. She has recently been diagnosed with Batten Disease: an untreatable and uncurable disease that is always fatal. Brianna and her family need your donations to help pay for costly medical trials and treatments. Please help Brianna's doctors and family discover a cure for a disease that has left this once healthy, happy little girl without the ability to walk, talk, eat or ******* liquids.

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12 year old Brianna Skriver has a mystery disease that went undiagnosed for almost 7 years. She has recently been diagnosed with Batten Disease: an untreatable and uncurable disease that is always fatal. Brianna and her family need your donations to help pay for costly medical trials and treatments. Please help Brianna's doctors and family discover a cure for a disease that has left this once healthy, happy little girl without the ability to walk, talk, eat or ******* liquids.

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1 follow @briannaskriver

2 wwwbdsra org

3 wwwcurebatten org

4 brianna skriver's story

5 media

6 events

7 donate

8 site map

9 coupons

10 reviews

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https://friendsofbrianna.com

12 year old Brianna Skriver has a mystery disease that went undiagnosed for almost 7 years. She has recently been diagnosed with Batten Disease: an untreatable and uncurable disease that is always fatal. Brianna and her family need your donations to help pay for costly medical trials and treatments. Please help Brianna's doctors and family discover a cure for a disease that has left this once healthy, happy little girl without the ability to walk, talk, eat or ******* liquids.

INTERNAL PAGES

friendsofbrianna.com

1

Brianna Skriver's Story | How did our happy healthy little girl get so sick?

http://www.friendsofbrianna.com/Briannas_Story.html

My wonderful daughter Brianna Skriver was born on March 5th, 2002. Brianna thrived and grew into a curious little toddler. She was running around and getting into just about everything. Climbing and jumping off of almost anything. She had no fear. In 2007 we moved to Wilmington, N.C., Brianna was in kindergarten. She was my very overly active child. The teachers and doctors came to agreement that Brianna was ADHD. With the doctors advice I started Brianna on medicine for ADHD. Since then she is still reg...

2

Brianna Skriver In The News | Brianna Skriver's recent diagnosis with Batten Disease and story of struggle in the news and media.

http://www.friendsofbrianna.com/media.html

BATTEN DISEASE IN THE NEWS. We're so grateful that Brianna's struggle is getting national media attention. We are proactively seeking out bigger venues to showcase her story. Besides our local and regional newspapers and TV news channels we've reached out to The Ellen Show. And Dr. Phil. And www.bdsra.org. 06/11/2015 - Gordon Gray's daughters diagnosed with Batten Disease. 12/11/2013 - ClickOrlando WKMG Local 6 - Central Florida Girl With Mystery Illness Finally Gets Diagnosis.

3

Events and Fundraisers to Help Brianna Battle Batten Disease | Brianna Skriver Invites You to Join Her Supporters

http://www.friendsofbrianna.com/events.html

December 1, 2012. Coco Key Hotel and Water Resort. In the Parakeet Playground Ballroom. Orlando, FL 32819. Water park tickets will be at a discounted rate of $12.00 with proceeds going to Brianna. There will also be a bake sale, silent auction, raffle and face painting. Friends of Brianna, Inc. 2012-2015. Design by Chilton Signs and Design, LLC.

4

Friends of Brianna Home Page | Childhood Illnesses | Batten Disease | Brianna Skriver Needs Your Help and Donations |

http://www.friendsofbrianna.com/index.html

BRIANNA NEEDS YOUR HELP. Brianna Skriver is 13 years old and for nearly 8 years she had to survive an illness that no one could diagnose or treat with any measure of success. Finally, we've gotten an answer to this mystery. Brianna has Batten Disease CLN6. Unfortunately, there is still no known treatment or cure, and it's always fatal. On 12/11/2013 Click Orlando WKMG Local 6 News with Lisa Bell reported the story of Brianna's new diagnosis. Last year her story. Donate Now on Paypal.

5

Donate To Help Brianna Battle With Batten Disease

http://www.friendsofbrianna.com/donate.html

As always thank you for your love and support and your kindness as we ask during this holiday season if you would like to give to Brianna any amount is acceptable, our goal is to eventually have enough money to get Brianna a wheelchair van for her to get around easier. No donation is too small, every time you donate to Brianna, everything goes to her. From Brianna and her family. Donate Now on Paypal. Friends of Brianna, Inc. 2012-2015. Design by Chilton Signs and Design, LLC.

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livingwithfibroblog.wordpress.com

sunshine award nomination | living with fibro blog

https://livingwithfibroblog.wordpress.com/sunshine-award-nomination

Living with fibro blog. A note to B and Jay. Is given to bloggers who positively and creatively inspire other bloggers. The instructions that come with the Sunshine Award are simple:. After acknowledging the person who gave this award in a blog post;. I have to do the Q&A below and finally. Pass on the award to 10 deserving and inspiring bloggers, inform them and link to their blogs. Per the instructions of the sunshine award here are my answers to the 10 questions:. Who is your favorite philosopher?

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my book | living with fibro blog

https://livingwithfibroblog.wordpress.com/my-book

Living with fibro blog. A note to B and Jay. My first book of poetry is available for purchase on the Amazon Kindle store and the Createspace marketplace. A portion of the sales from the Kindle version of my book will support three foundations close to my heart Rockstar Ronan. And the National Fibromyalgia and Chronic Pain Association. Purchase the Kindle version here. 5 thoughts on “ my book. November 26, 2012 at 10:57 am. November 28, 2012 at 12:29 pm. November 30, 2012 at 4:33 am. The gluten free chef.

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Friends of Brianna Home Page | Childhood Illnesses | Batten Disease | Brianna Skriver Needs Your Help and Donations |

BRIANNA NEEDS YOUR HELP. Brianna Skriver is 13 years old and for nearly 8 years she had to survive an illness that no one could diagnose or treat with any measure of success. Finally, we've gotten an answer to this mystery. Brianna has Batten Disease CLN6. Unfortunately, there is still no known treatment or cure, and it's always fatal. On 12/11/2013 Click Orlando WKMG Local 6 News with Lisa Bell reported the story of Brianna's new diagnosis. Last year her story. Donate Now on Paypal.

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