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FSHD

“I have learnt it is so important to give all people afflicted by any life changing disease, the hope that something is being done to help find a cure”. “100% of tax deductible donations have been allocated to medical research grants and education” Bill Moss AO – Founder and Chairman Transparency, accountability, education and research are Continue Reading »

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CONTACTS AT FSHDGLOBAL.ORG

FSHD Global Research Foundation

FSHD Global Research Foundation

Lev●●● 10

Sy●●ey , NSW, 2000

AU

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FSHD Global Research Foundation

Lata Moss

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Sy●●ey , NSW, 2000

AU

61.0●●●●7037
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la●●@fshdglobal.org

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FSHD Global Research Foundation

Lata Moss

Lev●●● 10

Sy●●ey , NSW, 2000

AU

61.0●●●●7037
61.0●●●●7038
la●●@fshdglobal.org

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&#8220;I have learnt it is so important to give all people afflicted by any life changing disease, the hope that something is being done to help find a cure&#8221;. &#8220;100% of tax deductible donations have been allocated to medical research grants and education&#8221; Bill Moss AO &#8211; Founder and Chairman Transparency, accountability, education and research are Continue Reading &raquo;
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FSHD | fshdglobal.org Reviews

https://fshdglobal.org

&#8220;I have learnt it is so important to give all people afflicted by any life changing disease, the hope that something is being done to help find a cure&#8221;. &#8220;100% of tax deductible donations have been allocated to medical research grants and education&#8221; Bill Moss AO &#8211; Founder and Chairman Transparency, accountability, education and research are Continue Reading &raquo;

INTERNAL PAGES

fshdglobal.org fshdglobal.org
1

Supporters – FSHD

https://fshdglobal.org/supporters

Supporters – FSHD. OUR ROLE and IMPACT. OUR ROLE and IMPACT. Thank you to our valued Corporate Partners and sponsors for their ongoing support towards finding treatments and an ultimate cure for FSHD. Our Corporate Partners assist the Foundation in many ways including donations, Corporate Sponsorship, Workplace Giving, Gifts in Kind and more. Should you wish to become a Corporate Partner of FSHD Global Research Foundation, please email admin@fshdglobal.org. Sydney's best kept secret! Jaycar Electronics i...

2

Ambassadors – FSHD

https://fshdglobal.org/who-we-are/ambassadors

Ambassadors – FSHD. OUR ROLE and IMPACT. OUR ROLE and IMPACT. Rochelle Collis, together with her partner Zoya Wong, own and operate one of Sydney’s busiest cosmetic franchise clinics at Laser Clinics Australia, Bondi Junction. Rochelle is a devoted executive woman, managing an average of 650 clients per week, 20 staff and 5 cosmetic injectors. Dedicated to driving a new kind of laser, skin and cosmetic clinic, Rochelle has reinvented and reimagined the way in which women and men can go about improving an...

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info4carers.com - Advocacy

http://www.info4carers.com/index.php/resource-directory/advocacy.html

You Are Not Alone. EBook Interactive You Are Not Alone. EBook You Are Not Alone. In Their Own Words. Did you know about? Disability and Chronic Illness. Published on Friday, 09 September 2011 11:31. Written by David Marler. Australians For Affordable Housing. Phone number: (03) 92351019. Website: www.housingstressed.org.au. Website: www.justice.qld.gov.au/guardian/ag.htm. Website: www.adcq.qld.gov.au. Australians Mad As Hell. Website: www.australiansmadashell.com.au. Community Resource Unit Inc. Website:...

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Observatoire National Français des patients atteints de DMFSH

http://www.fshd.fr//pin/FR

Société Française de Myologie. Blog du groupe FSH de l'AFM. Registre italien de la FSH. Site de la FSH Society. Site de l'université de Rochester. En tant que patient. En tant que médecin. Afin de participer à l'Observatoire, plusieurs options s'ouvrent à vous. L'idéal serait de remplir les deux questionnaires. De manière à avoir un dossier complet. L'auto-questionnaire et la fiche d'évaluation clinique peuvent être remplis à des moments différents. Être en possession d'un résultat de test génétique.

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Observatoire National Français des patients atteints de DMFSH

http://www.fshd.fr//connect/FR

Société Française de Myologie. Blog du groupe FSH de l'AFM. Registre italien de la FSH. Site de la FSH Society. Site de l'université de Rochester. Se connecter à l'observatoire. Les identifiants ne sont pas corrects. Veuillez réessayer. Attention, vous n'avez plus le droit qu'à deux essais. Vous avez dépassé le nombre d'essais de connexion autorisés. Vous pourrez réessayer dans 1 jour. Si vous avez oublié vos identifiants, merci de le signaler ici. Date de naissance :. Trouver un centre près de chez soi.

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Observatoire National Français des patients atteints de DMFSH

http://www.fshd.fr//indeex/FR

Société Française de Myologie. Blog du groupe FSH de l'AFM. Registre italien de la FSH. Site de la FSH Society. Site de l'université de Rochester. La page que vous cherchez n'existe pas! Trouver un centre près de chez soi. En tant que Patient. En tant que Médecin. Essais cliniques et thérapeutiques. Dernière mise à jour le 06 mars 2017.

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Observatoire National Français des patients atteints de DMFSH

http://www.fshd.fr//genetique/FR

Société Française de Myologie. Blog du groupe FSH de l'AFM. Registre italien de la FSH. Site de la FSH Society. Site de l'université de Rochester. La dystrophie musculaire Facio-Scapulo-Humérale ( DMFSH. Est la troisième en terme de fréquence des myopathies héréditaires, la première chez les adultes. Selon le rapport préliminaire établi par EURORDIS. La DMFSH est caractérisée par une faiblesse des muscles de la face et de la ceinture scapulaire qui peut s’étendre progressivement aux muscles huméraux, abd...

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Home - FSHD Foundation

http://www.fshd.nl/index.php/en

Welcome to our FSHD website! The Dutch FSHD Foundation’s goal is to stimulate, facilitate and financially support solid scientific research into the causes of FSHD, in order to find treatments and develop solutions that help improve patients’ quality of life. Although the cause for FSHD has been discovered, no treatment for this disease has yet been found. That’s why further research remains so important! The FSHD Foundation stimulates, facilitates, and financially supports solid scientific research into...

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FSHD-actie van Rico Dijkstra in Aalsmeer - FSHD Stichting

http://www.fshd.nl/index.php/nl/489-fshd-actie-van-rico-dijkstra-in-aalsmeer

Doelstelling, waarden en geschiedenis. Onderzoeksstrategie uit het laatste beleidsplan. Projecten uit het verleden. Het Spierziektencongres komt er weer aan! FSHD-actie van Rico Dijkstra in Aalsmeer. Geschreven door Kees van der Graaf. Kees van der Graaf. De doelstelling was 5000 euro. Met rode oortjes zijn de klasgenoten vanmiddag na afloop waarschijnlijk gaan tellen. Ik denk dat zij heel ver gekomen zijn. Er werd mij ook verzekerd ,dat er de komende dagen nog meer geld binnen zou komen, wan...Deze acti...

fshd.nl fshd.nl

FSHD in Beeld - FSHD Stichting

http://www.fshd.nl/index.php/nl/492-fshd-in-beeld

Doelstelling, waarden en geschiedenis. Onderzoeksstrategie uit het laatste beleidsplan. Projecten uit het verleden. Het Spierziektencongres komt er weer aan! Geschreven door Kees van der Graaf. Kees van der Graaf. Ik hoop van harte dat wij snel heel veel van de boekjes kunnen wegzetten. Hoe meer hoe liever, want dan weten weer meer mensen iets over wat het is om met FSHD te moeten leven. De begrippen onmacht en veerkracht zijn echt karakteristiek voor FSHD. Het zou toch geweldig zijn als wij ...Iedereen ...

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Onderzoek - FSHD Stichting

http://www.fshd.nl/index.php/nl/onderzoek

Doelstelling, waarden en geschiedenis. Onderzoeksstrategie uit het laatste beleidsplan. Projecten uit het verleden. Hier komt het archief. Hier komen de publicaties. Binnenkort meer informatie over de prioriteiten van de FSHD Stichting. Op de website 'Genetics Home Reference' wordt uitleg gegeven over SMCHD1. Klik hier om het artikel (engelstalig) te lezen. Nederlands succes in de strijd tegen FSHD! Projekten door de Stichting FSHD geheel of gedeeltelijk gefinancierd. Bijgwerkt tot 26 juni 2015. De FSHD ...

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Foundation for Sustainable Health Development Offical Website

Content on this page requires a newer version of Adobe Flash Player. In developing countries, including Nigeria, health development/intervention programmes are poorly funded due to inequitable distribution of limited resources. Priority is given to governance, defence, infrastructure and other capital projects. NATIONAL CONFERENCE ON HEALTH INFORMATION TECHNOLOGY. Under the auspices of the FEDERAL MINISTRY OF HEALTH and in collaboration with. Abuja, FCT. 2nd 4th November 2011.

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FSHD

FSHD – Just another WordPress site. OUR ROLE and IMPACT. OUR ROLE and IMPACT. Affects children and adults. This is a disease that causes irreversible weakening and wasting of muscles. Help us find a cure. Be a part of it and become. An activist for change. The Foundation is committed to advancing global medical research. Education and collaboration to improve quality of life and ultimately find a cure for Facioscapulohumeral Dystrophy. ALLOCATION OF TAXABLE DEDUCTIONS. FY 2008-2016: As of 30th June.

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