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Funding a Cure: Genetics Diseases of Children Conference
http://fundingacure.blogspot.com/2011/03/genetics-diseases-of-children.html
Sunday, March 13, 2011. Genetics Diseases of Children Conference. This past week Shawn and I attended a conference hosted by the New York State Health department. The focus of this conference was on accelerating research into rare genetic disorders. There were many take aways from this conference so this topic may extend to many posts. The main reason we were so excited about attending this conference was to learn how to get Prader-Willi Syndrome onto the newborn screen in New York State. You are the sec...
Funding a Cure: April 2011
http://fundingacure.blogspot.com/2011_04_01_archive.html
Friday, April 15, 2011. When will I ever need to know this? As a 9th grade Algebra teacher I field the question, "When will I ever need to know this? Last month I attended a conference about rare diseases of children and 'networked' with some very smart people. One of those people was James Heywood, the founder of Patients Like Me. PatientsLikeMe was co-founded in 2004 by three MIT. And longtime friend Jeff Cole. Five years earlier, their brother and friend Stephen Heywood was diagnosed with ALS. Amy McD...
Funding a Cure: February 2013
http://fundingacure.blogspot.com/2013_02_01_archive.html
Wednesday, February 13, 2013. Writing a new post so that the posts in this blog are not deleted due to inactivitity :). Prader-Willi Alliance of New York. Links to this post. Subscribe to: Posts (Atom). Go the Extra Mile Event May 22, 2011. One Small Step Rochester August 21, 2011. Prader-Willi Alliance of New York. Amy McDougall (PWANY President), Rachel Johnson (PWANY Vice-President) and Tammy Reals (PWANY Secretary). View my complete profile. Picture Window template. Powered by Blogger.
Funding a Cure: March 2011
http://fundingacure.blogspot.com/2011_03_01_archive.html
Tuesday, March 29, 2011. New York State PWS Conference. One month from today, April 29th and 30th, PWANY will be hosting its 21st annual conference in Albany, NY. Last year was my family's first year attending the NYS conference and it was so much fun connecting with other NYS families, actually, families from all over the country and Canada attended last year! I hope you can make it! Here is the link. Prader-Willi Alliance of New York. Links to this post. Monday, March 21, 2011. Now we need to find it&#...
Funding a Cure: May 2011
http://fundingacure.blogspot.com/2011_05_01_archive.html
Sunday, May 1, 2011. How to win an iPad 2. Happy Prader-Willi Syndrome Awareness Month! It is so exciting to see how many people are hosting events to celebrate our children with Prader-Willi Syndrome. Yesterday, the first two One Small Step 2011 walks took place. It is so exicitng watching all of our hard work start to become a reality. The Foundation for Prader-Willi Research is also holding a contest to win an Apple iPad 2 in connection with the One SMALL Step event. Here is the bulletin. The entire p...
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Funding a Cure
Wednesday, February 13, 2013. Writing a new post so that the posts in this blog are not deleted due to inactivitity :). Prader-Willi Alliance of New York. Links to this post. Sunday, May 1, 2011. How to win an iPad 2. Happy Prader-Willi Syndrome Awareness Month! The Foundation for Prader-Willi Research is also holding a contest to win an Apple iPad 2 in connection with the One SMALL Step event. Here is the bulletin. It’s easy AND you can win the new iPAD 2! How does it work? 4 What’s the catch? Our PWS c...
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