going-slowly.blogspot.com

going slowly

Saturday, 14 February 2015. No Valentine's card for me today. No last minute roses, out of season strawberries, expensive champagne or unethical chocolates. No candlelit restaurant or diamond ring. No big, show-offy gestures. Just a long list of tiny, meaningful ones. Just me and you, my love. You and M.E. You made me breakfast in bed, because I was too weary. To rise after a sleepless night. You massaged my aching muscles. You held me close when the tiredness overwhelmed and the anxiety. We're not celeb...

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going slowly | going-slowly.blogspot.com Reviews

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Saturday, 14 February 2015. No Valentine's card for me today. No last minute roses, out of season strawberries, expensive champagne or unethical chocolates. No candlelit restaurant or diamond ring. No big, show-offy gestures. Just a long list of tiny, meaningful ones. Just me and you, my love. You and M.E. You made me breakfast in bed, because I was too weary. To rise after a sleepless night. You massaged my aching muscles. You held me close when the tiredness overwhelmed and the anxiety. We're not celeb...

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1 going slowly

2 pages

3 good reads

4 you and me

5 and faye

6 posted by fran

7 1 comment

8 email this

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going slowly | going-slowly.blogspot.com Reviews

https://going-slowly.blogspot.com

Saturday, 14 February 2015. No Valentine's card for me today. No last minute roses, out of season strawberries, expensive champagne or unethical chocolates. No candlelit restaurant or diamond ring. No big, show-offy gestures. Just a long list of tiny, meaningful ones. Just me and you, my love. You and M.E. You made me breakfast in bed, because I was too weary. To rise after a sleepless night. You massaged my aching muscles. You held me close when the tiredness overwhelmed and the anxiety. We're not celeb...

INTERNAL PAGES

going-slowly.blogspot.com

1

going slowly: and there was that time

http://www.going-slowly.blogspot.com/2014/12/and-there-was-that-time.html

Wednesday, 3 December 2014. And there was that time. And there was that time in. The last days of summer. When we sat beside the ocean,. Listening to the waves. Pounding against the shore. And I felt the spray on my cheeks, and. I felt your hand in my hand. And I was not afraid of the roar. And as we sat beside the ocean,. Watching the sun sink into the briny depths. I felt it's last warmth on my cheeks. And I felt your hand in my hand. And so I was not afraid of the dark. Beneath the pine trees,.

2

going slowly: February 2015

http://www.going-slowly.blogspot.com/2015_02_01_archive.html

Saturday, 14 February 2015. No Valentine's card for me today. No last minute roses, out of season strawberries, expensive champagne or unethical chocolates. No candlelit restaurant or diamond ring. No big, show-offy gestures. Just a long list of tiny, meaningful ones. Just me and you, my love. You and M.E. You made me breakfast in bed, because I was too weary. To rise after a sleepless night. You massaged my aching muscles. You held me close when the tiredness overwhelmed and the anxiety. We're not celeb...

3

going slowly: looking back

http://www.going-slowly.blogspot.com/2014/12/looking-back.html

Wednesday, 31 December 2014. As the old year passes, I take to the hills. Not literally, not physically. But in my mind's eye. Drifting off into that place between waking and dreaming, there is no real time to mull over 2014 before I surrender to sleep. No need really either. These past twelve months, I've done enough mulling to last a lifetime. And not bail out. When the going got tough. That is what 2014 has taught me. To keep on going.no matter how slowly. Health doesn't equal happiness.

4

going slowly: April 2014

http://www.going-slowly.blogspot.com/2014_04_01_archive.html

Sunday, 20 April 2014. It had become a familiar pattern. At least once a week I'd miss one of my morning or afternoon resting slots, choosing to begin a new project or lingering on a task instead. Often this missed rest slot would pass unnoticed and I'd feel a secret inner feeling of glee as I was able to carry on regardless. "See, no need for resting after all. What a waste of time.". The new doctor is of course right. Somehow, I must break this cycle. Somehow, I must slow down. Thursday, 17 April 2014.

5

going slowly: maybe

http://www.going-slowly.blogspot.com/2014/12/maybe.html

Saturday, 20 December 2014. Maybe it needs a bit more time. Maybe this is just a rocky patch. Maybe the mountain is just a little higher than we thought. Maybe it will require a little bit more courage. Maybe I haven't fallen back as far as I thought. No one said it would be the easy. This dream. This life. This living. Learning to fly on my own wings. But maybe it will be worth it. Maybe wellness will come again. At the right moment. Maybe the courage will be there. Maybe I don't have to give up hope.

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katharineandme.blogspot.com

Katharine and M.E.: February 2014

http://katharineandme.blogspot.com/2014_02_01_archive.html

Saturday, 22 February 2014. A while ago I came across Voices from the Shadows. A film “born of desperation” made by the mother and brother of a severe ME sufferer. It tells the true stories of several ME patients and the injustices and abuse they and their families have been subjected to. An introduction. Today, in the twenty-first century. From the Sam and M.E. blog. So, while I may not be big enough, powerful enough (or, indeed, healthy enough) to change the world and its opinion of my illness, I can.

katharineandme.blogspot.com

Katharine and M.E.: On a life-long love of reading

http://katharineandme.blogspot.com/2015/03/on-life-long-love-of-reading.html

Thursday, 5 March 2015. On a life-long love of reading. We all spend our lives telling them - about this, about that, about people. Some stories are so good we wish they'd never end. They're so gripping that we'll go without sleep just to see a little bit more. Some stories bring us laughter and sometimes they bring us tears. But isn't that what a great story does? It makes you feel. Stories that are so powerful, they really are with us forever. To being unable to pick up a book, let alone read it. M...

katharineandme.blogspot.com

Katharine and M.E.: July 2014

http://katharineandme.blogspot.com/2014_07_01_archive.html

Wednesday, 23 July 2014. Today I'm joining in with the lovely Tammy-Louise Wilkins. For her I'm Not Perfect. This is a topic I feel strongly about: last year I witnessed some quite traumatic consequences of perfectionism (which culminated in sirens and police cars), and as a chronic illness patient I know how important it is to avoid undue pressure and stress. Perfection is - perhaps by definition - impossible and unattainable - and as Regina Spektor sings. Or 10 more seconds of the plank. When I became ...

katharineandme.blogspot.com

Katharine and M.E.: February 2015

http://katharineandme.blogspot.com/2015_02_01_archive.html

Friday, 20 February 2015. Mum, Helen and Heather walk 26.5 miles for ME Research UK! It's less than 6 months since my birthday fundraiser and I have more. Very exciting fundraising news! This time, though, I'm not doing anything myself because. My Mum, her best friend Helen, and my best friend Heather (who is also Helen's daughter) are walking 26 and a half miles in one day - all in the aid of ME Research UK. As part of the Bath Beat. And getting electrocuted by electric fences amongst other obstacles!

katharineandme.blogspot.com

Katharine and M.E.: August 2015

http://katharineandme.blogspot.com/2015_08_01_archive.html

Thursday, 13 August 2015. Things have been quiet around here for quite a while. Thankfully, this isn't due to a deterioration in my health; I've just been working on other projects (such as writing an article for ME Awareness Week for my university's student newspaper. And writing a chapter for an anthology on the unique lived experience of childhood ME). This post has been languishing in my 'drafts' folder for over a year. I feel now is the perfect time to rediscover it. Thing in the world. In the words...

katharineandme.blogspot.com

Katharine and M.E.: March 2015

http://katharineandme.blogspot.com/2015_03_01_archive.html

Thursday, 19 March 2015. I'm worth more than £50. This morning there was a discussion on The Wright Stuff, on Channel 5, entitled "Is the NHS failing M.E. sufferers? It featured the CEO of Action for M.E., Sonya Chowdhury, and Graeme Bloom, who has M.E. While I expected to be left feeling very angry and upset (as I usually am whenever M.E. is mis. Aside from a rather unfortunate remark from Nadine Dorries that "97% of young people with ME/cfs recover" ( if only this were true! How is this right? Firstly,...

katharineandme.blogspot.com

Katharine and M.E.: September 2014

http://katharineandme.blogspot.com/2014_09_01_archive.html

Friday, 12 September 2014. 21st birthday preparations in figures. 2 days to go (and counting! Until my fundraising tea party to celebrate my 21st birthday. 163;693 raised already for ME Research UK through 24 donations so far on my JustGiving page. Made over goodness-knows-how-many hours of preparation, script-drafting, home-video-hunting, brother-bribing, energy-draining, hugely embarrassing and very, very stressful work! I think it was worth it, though. Countless cakes to be baked, iced and decorated.

katharineandme.blogspot.com

Katharine and M.E.: December 2014

http://katharineandme.blogspot.com/2014_12_01_archive.html

Monday, 29 December 2014. What 2014 taught me. Frosty mornings follow wintry nights; sunsets greet us eagerly in the mid-afternoon chill. The year hurtles unwaveringly towards its dignified end, taking its final, icy breaths as we wait patiently, hoping to discover better things on the next page. The year has passed by in a flash of light and dark, highs and lows, hopes and fears; it seems like an eternity has flown by since I said hello to 2014. Uncertainty is the refuge of hope". Never be afraid to rai...

katharineandme.blogspot.com

Katharine and M.E.: March 2014

http://katharineandme.blogspot.com/2014_03_01_archive.html

Monday, 24 March 2014. Last Friday marked quite an achievement. I’ve not graduated or even finished second year (yet), but I have. Made it through an entire term without being sent home or having an ambulance called on me! I also managed to hand in an assessed (summative) essay on time for the first time since coming to university in 2012. It was even handed in online 2 days before the deadline! Tuesday, 11 March 2014. The "Sofa of Doom". Last weekend I went home to have an MRI scan of my brain done at t...

katharineandme.blogspot.com

Katharine and M.E.: Part-time study, one year on

http://katharineandme.blogspot.com/2015/02/part-time-study-one-year-on.html

Thursday, 12 February 2015. Part-time study, one year on. It has been a little over a year since I transferred to part-time study at university – and what a year it’s been! My health had forced me to a point where the decision was effectively taken out of my hands; things were looking bleak and really quite scary, and going part-time was a last-ditch attempt to keep my place on my degree course and retain some independence. I can honestly say that is has been the best decision I have ever. I’m no l...

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going slowly

Saturday, 14 February 2015. No Valentine's card for me today. No last minute roses, out of season strawberries, expensive champagne or unethical chocolates. No candlelit restaurant or diamond ring. No big, show-offy gestures. Just a long list of tiny, meaningful ones. Just me and you, my love. You and M.E. You made me breakfast in bed, because I was too weary. To rise after a sleepless night. You massaged my aching muscles. You held me close when the tiredness overwhelmed and the anxiety. We're not celeb...

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