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Goldenhar Cycle ChallengeJohn O' Groats to Lands End on the 28th may 2011 for Goldenhar syndrome
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John O' Groats to Lands End on the 28th may 2011 for Goldenhar syndrome
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Goldenhar Cycle Challenge | goldenhar-jog2le.blogspot.com Reviews
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John O' Groats to Lands End on the 28th may 2011 for Goldenhar syndrome
goldenhar-jog2le.blogspot.com
Goldenhar Cycle Challenge: Rider No1 Goldenhar cycle challenge from John O'Groats to Lands End 28th May 2011
http://goldenhar-jog2le.blogspot.com/2011/03/goldenhar-cycle-challenge-from-john.html
John O' Groats to Lands End on the 28th may 2011 for Goldenhar syndrome. Thursday, 10 March 2011. Rider No1 Goldenhar cycle challenge from John O'Groats to Lands End 28th May 2011. Hi To all. I'll just take a minute to let you know a little about myself. It all started about 12 years ago when my little boy was born with goldenhar syndrome. The symptoms vary from child to child but to give you some idea here is the link to the website http:/ www.goldenhar.org.uk/. For donating and printing the tshirts.
Goldenhar Cycle Challenge: March 2011
http://goldenhar-jog2le.blogspot.com/2011_03_01_archive.html
John O' Groats to Lands End on the 28th may 2011 for Goldenhar syndrome. Tuesday, 22 March 2011. Rider No.2 - Richard Offord - Intro. Just as an introduction to you all I am 45 years young and am married to Lynn with 3 lovely children, Ryan, Heather and Lucy. Heather was born with Goldenhar syndrome and has been a constant source of inspiration and parental pride to us for the way she has dealt with all her issues with a never say never approach and a smile on her face. January 2011 saw me complete aroun...
Goldenhar Cycle Challenge: Rider No.2 - Richard Offord - Intro
http://goldenhar-jog2le.blogspot.com/2011/03/rider-no2-richard-offord-intro.html
John O' Groats to Lands End on the 28th may 2011 for Goldenhar syndrome. Tuesday, 22 March 2011. Rider No.2 - Richard Offord - Intro. Just as an introduction to you all I am 45 years young and am married to Lynn with 3 lovely children, Ryan, Heather and Lucy. Heather was born with Goldenhar syndrome and has been a constant source of inspiration and parental pride to us for the way she has dealt with all her issues with a never say never approach and a smile on her face. January 2011 saw me complete aroun...
Goldenhar Cycle Challenge: Craig and Richard's 28th May John O' Groats to Lands End journey :0)
http://goldenhar-jog2le.blogspot.com/2011/05/craig-and-richards-28th-may-john-o.html
John O' Groats to Lands End on the 28th may 2011 for Goldenhar syndrome. Monday, 30 May 2011. Craig and Richard's 28th May John O' Groats to Lands End journey :0). My family made there way to the start of John O’Groats. We made a stop to change drivers and met a lovely couple who had a lovely chocolate brown Labrador/Shetland pony (there words not ours) and saw the signs on the car and donated £20 to the group. Sadly we didn’t get their names, but Thank you. As we were heading towards. We set off on the ...
Goldenhar Cycle Challenge: May 2011
http://goldenhar-jog2le.blogspot.com/2011_05_01_archive.html
John O' Groats to Lands End on the 28th may 2011 for Goldenhar syndrome. Monday, 30 May 2011. Craig and Richard's 28th May John O' Groats to Lands End journey :0). My family made there way to the start of John O’Groats. We made a stop to change drivers and met a lovely couple who had a lovely chocolate brown Labrador/Shetland pony (there words not ours) and saw the signs on the car and donated £20 to the group. Sadly we didn’t get their names, but Thank you. As we were heading towards. We set off on the ...
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Goldenhar Cycle Challenge
John O' Groats to Lands End on the 28th may 2011 for Goldenhar syndrome. Monday, 30 May 2011. Craig and Richard's 28th May John O' Groats to Lands End journey :0). My family made there way to the start of John O’Groats. We made a stop to change drivers and met a lovely couple who had a lovely chocolate brown Labrador/Shetland pony (there words not ours) and saw the signs on the car and donated £20 to the group. Sadly we didn’t get their names, but Thank you. As we were heading towards. We set off on the ...
Goldenhar heilkenni
Upplýsingasíða á íslensku um goldenhar heilkenni. Síðan er skrifuð af læknanema sem jafnframt er aðstandandi barna með goldenhar heilkenni í þeim tilgangi að gera upplýsingar um heilkennið aðgengilegar fyrir aðstandendur og aðra sem á þurfa að halda. Almennt um goldenhar heilkenni. Goldenhar er eitt af talsvert mörgum nöfnum á sama heilkenni og líklega það elsta. Heilkennið er líka þekkt undir:. Oculoauriculovertebral spectrum ( OAVS. Oculoauriculovertebral dysplasia ( OAV dysplasia. Þeir líkamshlutar se...
Goldenhar Familieninitiative e.V.
Herzlich willkommen auf www.goldenhar.de! Sind Sie selbst betroffen? Kennen Sie betroffene Familien? Erfahrungsaustausch und das Gespräch mit anderen Betroffenen ist oft das Wertvollste. Andere Kinder zu sehen, die ähnliche Fehlbildungen wie sie selbst haben, und mit Ihnen Zeit zu verbringen hilft den Kindern. Ein reger Erfahrungsaustausch erfolgt für registrierte Mitglieder über das Diskussionsforum. Infos zur Anmeldung siehe extra Seite.
Gruppo Italiano Sindrome Di Goldenhar Web Page
GRUPPO ITALIANO SINDROME DI GOLDENHAR. Web hosted by Xtranet.
Goldenhar UK | Supporting families throughout the U.K. who face the day to day challenges of supporting relatives with Goldenhar Syndrome, Hemifacial Microsomia and Microtia.
Mayor of Swindon’s Charity Night 2015. Swindon’s Symphony Orchestra 2015. Annual Golden Ball 2014. British 10K London Run 2014. Mayor of Swindon’s Charity Night 2015. Swindon’s Symphony Orchestra 2015. Annual Golden Ball 2014. British 10K London Run 2014. GOLDENHAR UK FAMILY WEEKEND. 8220;Being different is hard, but being different is what makes me, me”. Welcome To Goldenhar UK. Donations allow us to help families and children who have been affected by Goldenhar Syndrome… Read more. Make a Donation Today.
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