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Grace's CDH Journey

Grace was born on March 27th, 2011 with Congenital Diaphragmatic Hernia and after an amazing fight, Died August 9th 2011 from CDH complications.She was the most amazing Girl ever.

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Grace's CDH Journey | gracescdhjourney.blogspot.com Reviews
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Grace was born on March 27th, 2011 with Congenital Diaphragmatic Hernia and after an amazing fight, Died August 9th 2011 from CDH complications.She was the most amazing Girl ever.
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grace's cdh journey,part 2,part 1,posted by,miranda,no comments,email this,blogthis,share to twitter,share to facebook,share to pinterest,remembering,out of nowhwere,2 comments,4 years,comparison,1 comment,what was lost,older posts,our beautiful grace
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Grace's CDH Journey | gracescdhjourney.blogspot.com Reviews

https://gracescdhjourney.blogspot.com

Grace was born on March 27th, 2011 with Congenital Diaphragmatic Hernia and after an amazing fight, Died August 9th 2011 from CDH complications.She was the most amazing Girl ever.

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gracescdhjourney.blogspot.com gracescdhjourney.blogspot.com
1

Grace's CDH Journey: March 2013

http://gracescdhjourney.blogspot.com/2013_03_01_archive.html

Grace was born on March 27th, 2011 with Congenital Diaphragmatic Hernia and after an amazing fight, Died August 9th 2011 from CDH complications.She was the most amazing Girl ever. Friday, March 15, 2013. Everytime they see one now, "is that Grace's helicopter? It seemed like almost every single time they went to the cafeteria with us, they got to see it land. It's still all so unreal sometimes. Did anyone at all hold my baby girl that day? Http:/ www.youtube.com/watch? Saturday, March 9, 2013. I'm still ...

2

Grace's CDH Journey: December 2013

http://gracescdhjourney.blogspot.com/2013_12_01_archive.html

Grace was born on March 27th, 2011 with Congenital Diaphragmatic Hernia and after an amazing fight, Died August 9th 2011 from CDH complications.She was the most amazing Girl ever. Sunday, December 29, 2013. How much love I have, not only through these 5 (big and little) men in my home and my beautiful angel girl, but my savior, who also suffered and the many many people he has laid in my path to encourage, love and guide me. Subscribe to: Posts (Atom). View my complete profile.

3

Grace's CDH Journey: Happy Birthday Beauty Girl

http://gracescdhjourney.blogspot.com/2014/03/happy-birthday-beauty-girl.html

Grace was born on March 27th, 2011 with Congenital Diaphragmatic Hernia and after an amazing fight, Died August 9th 2011 from CDH complications.She was the most amazing Girl ever. Thursday, March 27, 2014. Happy Birthday Beauty Girl. It's Grace's birthday. 3 years old. How quickly and how slowly time has passed. Birthdays are so special. The start of your life. A profound day, even if one doesn't feel it is. A celebration. But how do you celebrate a birthday of someone who is now dead? Three years ago, w...

4

Grace's CDH Journey: I just want to know..

http://gracescdhjourney.blogspot.com/2015/08/i-just-want-to-know.html

Grace was born on March 27th, 2011 with Congenital Diaphragmatic Hernia and after an amazing fight, Died August 9th 2011 from CDH complications.She was the most amazing Girl ever. Sunday, August 2, 2015. I just want to know. I dont have a clue. Was the last touch my baby felt, alive, a loving one? She died in a swing, how long had she been in there? Did she wonder, where I was? I have no idea. Did she truly and honestly have a great day with no issues and suddenly just die? August 03, 2015 1:54 AM. I am ...

5

Grace's CDH Journey: What was lost.

http://gracescdhjourney.blogspot.com/2015/03/what-was-lost.html

Grace was born on March 27th, 2011 with Congenital Diaphragmatic Hernia and after an amazing fight, Died August 9th 2011 from CDH complications.She was the most amazing Girl ever. Monday, March 2, 2015. Grace was the only of my 6 children to be born with anything abnormal. Grace was the only one who had CDH. Grace is the only of my children to have lost her life to CDH and PPHN. And yet, CDH has stolen from all of my children and from myself and my husband. To feel the loss? We didn't just fight through ...

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reneedwayne.blogspot.com reneedwayne.blogspot.com

The Journey so far...: September 2012

http://reneedwayne.blogspot.com/2012_09_01_archive.html

The Journey so far. This is a story of our journey. There's no focus as our lives keep being pulled in different directions - its hard to focus when your not in one place long enough to get 'comfortable'. Wednesday, September 12, 2012. Ok, the last few weeks have been a complete whirlwind. This was my Friday night. The next few days saw us saying goodbye to our cousins who visited for the summer and hello to my brother and his wife. She's also gotten better at calling me Mama and pointing at me when she ...

reneedwayne.blogspot.com reneedwayne.blogspot.com

The Journey so far...: February 2013

http://reneedwayne.blogspot.com/2013_02_01_archive.html

The Journey so far. This is a story of our journey. There's no focus as our lives keep being pulled in different directions - its hard to focus when your not in one place long enough to get 'comfortable'. Wednesday, February 27, 2013. Ok, I’ve had a number of comments about how out of date our blog is. Yes, it is. So I’m making an effort to provide an update on where we are in our lives. As a family, we’re doing great! This winter has been long but fast. Payton continues, health wise, to be doing great.

reneedwayne.blogspot.com reneedwayne.blogspot.com

The Journey so far...: July 2013

http://reneedwayne.blogspot.com/2013_07_01_archive.html

The Journey so far. This is a story of our journey. There's no focus as our lives keep being pulled in different directions - its hard to focus when your not in one place long enough to get 'comfortable'. Monday, July 29, 2013. Year 2 Update: Happy Birthday Payton. Yes, its officially here. This is a year I hate to love. I love, love it so much because this. Is the year Payton will become more and more an independent person. For this, I LOVE this age. Yes, at age two I start to fear this. Livy’s wi...

reneedwayne.blogspot.com reneedwayne.blogspot.com

The Journey so far...: July 2012

http://reneedwayne.blogspot.com/2012_07_01_archive.html

The Journey so far. This is a story of our journey. There's no focus as our lives keep being pulled in different directions - its hard to focus when your not in one place long enough to get 'comfortable'. Saturday, July 28, 2012. So, a quick Happy Birthday to my Baby Girl. What an amazing year its been. And, what makes it so exciting is how incredibly pleased she is with herself. For the first few days she would walk from point A to B and once she arrived at her destination she would laugh, squeel an...

reneedwayne.blogspot.com reneedwayne.blogspot.com

The Journey so far...: August 2013

http://reneedwayne.blogspot.com/2013_08_01_archive.html

The Journey so far. This is a story of our journey. There's no focus as our lives keep being pulled in different directions - its hard to focus when your not in one place long enough to get 'comfortable'. Wednesday, August 14, 2013. On this day not so many years ago, a little angel whispered in my ear:. I'm not telling you its going to be easy, i'm telling you its going to be worth it". Its been so much more than that. Http:/ testofmetal.com/pages/jabr.php. Posted by A Mused. Subscribe to: Posts (Atom).

reneedwayne.blogspot.com reneedwayne.blogspot.com

The Journey so far...: A few minor adjustments

http://reneedwayne.blogspot.com/2014/12/a-few-minor-adjustments.html

The Journey so far. This is a story of our journey. There's no focus as our lives keep being pulled in different directions - its hard to focus when your not in one place long enough to get 'comfortable'. Sunday, December 21, 2014. A few minor adjustments. Posted by A Mused. Subscribe to: Post Comments (Atom). A few minor adjustments. Heart Function Team Meeting. My Cardiac Sarcoid - Odds and Sods. Ill Love You Forever. Getting into the swing of things. Other Blogs We Love. CDH Warrior Samuel's Journey.

reneedwayne.blogspot.com reneedwayne.blogspot.com

The Journey so far...: My Reality Check

http://reneedwayne.blogspot.com/2014/12/my-reality-check.html

The Journey so far. This is a story of our journey. There's no focus as our lives keep being pulled in different directions - its hard to focus when your not in one place long enough to get 'comfortable'. Saturday, December 13, 2014. My appointment with the cardiologist, as I sat on the cusp of starting prednisone, was whether fluid restrictions were required. He noted that the prednisone would cause me to be thirsty and have cravings, water would help with the cravings and thus he was ok with me not...

reneedwayne.blogspot.com reneedwayne.blogspot.com

The Journey so far...: December 2014

http://reneedwayne.blogspot.com/2014_12_01_archive.html

The Journey so far. This is a story of our journey. There's no focus as our lives keep being pulled in different directions - its hard to focus when your not in one place long enough to get 'comfortable'. Monday, December 29, 2014. Just popping in to provide an update as time progresses with the prednisone and other medications. I still get periodic aches and pains and some "not so great sleeps" but nothing like the first few weeks. I'm happy that I'll start weaning in another week and a half. I'...I thi...

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Grace's CDH Journey

Grace was born on March 27th, 2011 with Congenital Diaphragmatic Hernia and after an amazing fight, Died August 9th 2011 from CDH complications.She was the most amazing Girl ever. Thursday, November 3, 2016. Http:/ gracescdhjourney.blogspot.com/2016/11/from-beginning-part-1.html. March came and it was baby time! We started to walk to my room and I had to stop because I had a huge contraction. Good thing the ER didn't let me walk. That obviously didn't happen. In the CDH community, we often say and think ...

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