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Graham's Town

Graham was born February 2009 with X-Linked Hydrocephalus which is now known as L1 Syndrome. This is our story of how he continues to change our lives and we face and navigate the challenges of his health issues.

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Graham's Town | grahamstowne.com Reviews
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Graham was born February 2009 with X-Linked Hydrocephalus which is now known as L1 Syndrome. This is our story of how he continues to change our lives and we face and navigate the challenges of his health issues.
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2 big changes
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6 labels dogs
7 fun stuff
8 horseback riding therapy
9 pictures
10 post op
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Graham's Town | grahamstowne.com Reviews

https://grahamstowne.com

Graham was born February 2009 with X-Linked Hydrocephalus which is now known as L1 Syndrome. This is our story of how he continues to change our lives and we face and navigate the challenges of his health issues.

INTERNAL PAGES

grahamstowne.com grahamstowne.com
1

Graham's Town: November 2013

http://www.grahamstowne.com/2013_11_01_archive.html

Graham was born February 2009 with X-Linked Hydrocephalus which is now known as L1 Syndrome. This is our story of how he continues to change our lives and we face and navigate the challenges of his health issues. Tuesday, November 26, 2013. Mama likes to move it. Just a quick post tonight to let you all know that hunting Craigslist like a madwoman has paid off! We were able to find a special needs jogging stroller that will accommodate Graham for many years to come. Links to this post. He loves chasing d...

2

Graham's Town: Keep On Keeping On...

http://www.grahamstowne.com/2013/02/keep-on-keeping-on.html

Graham was born February 2009 with X-Linked Hydrocephalus which is now known as L1 Syndrome. This is our story of how he continues to change our lives and we face and navigate the challenges of his health issues. Saturday, February 2, 2013. Keep On Keeping On. The second story was a Facebook page. For a Hydro Teen (who's had 8 surgeries! We are so proud of you little man! Subscribe to: Post Comments (Atom). Information about X-Linked Hydrocephalus. Vision Challenges and Therapy. View my complete profile.

3

Graham's Town: Turning 5!

http://www.grahamstowne.com/2014/02/turning-5.html

Graham was born February 2009 with X-Linked Hydrocephalus which is now known as L1 Syndrome. This is our story of how he continues to change our lives and we face and navigate the challenges of his health issues. Saturday, February 15, 2014. Once again with Graham getting another year older (he turns 5 tomorrow morning February 16th) I find myself writing that sweet, mischievous, strong, adorable munchkin of mine a letter. But before we get to that,. GRAHAM GOT HIS CAST OFF! Aside from recovering from th...

4

Graham's Town: October 2013

http://www.grahamstowne.com/2013_10_01_archive.html

Graham was born February 2009 with X-Linked Hydrocephalus which is now known as L1 Syndrome. This is our story of how he continues to change our lives and we face and navigate the challenges of his health issues. Thursday, October 31, 2013. Graham had his first full session at Saddle Up. And as we expected he LOVED it! It was amazing to see how well he did, and he so impressed his therapist Mr. Jeff with how great his endurance and willingness to work was! Here are a few pictures from today:. We've had a...

5

Graham's Town: April 2014

http://www.grahamstowne.com/2014_04_01_archive.html

Graham was born February 2009 with X-Linked Hydrocephalus which is now known as L1 Syndrome. This is our story of how he continues to change our lives and we face and navigate the challenges of his health issues. Monday, April 14, 2014. So once again life has gotten the better of me, and I've lapsed in my posts here yet again. At some point I should just put "occasional blogger" in my profile lol! He has even been able to go back to Saddle Up and begin horseback riding therapy again! I missed my pony Mom".

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ourhydromiracle.blogspot.com ourhydromiracle.blogspot.com

Our Hydrocephalus Miracle: May 2012

http://ourhydromiracle.blogspot.com/2012_05_01_archive.html

Capturing the journey of our life with a miracle! Sunday, May 27, 2012. It's that time again, water day. Which signals the end of the school year. I can't believe Carly has finished her first full. And her second end of year celebration at the pre-school. She has one year left at the Dysart Early Childhood Education Center before. Dun, dun, dun. We are so pleased with her development and the education she has received. We have goals for the next year and hope to meet them all. Subscribe to: Posts (Atom).

ourhydromiracle.blogspot.com ourhydromiracle.blogspot.com

Our Hydrocephalus Miracle: August 2011

http://ourhydromiracle.blogspot.com/2011_08_01_archive.html

Capturing the journey of our life with a miracle! Tuesday, August 9, 2011. Is there sand on me? Subscribe to: Posts (Atom). 11/19/07- 18.3 weeks. 1367mm and 13.12mm. 3/6/08- 33.6 weeks. 3211mm and 28.19mm. Head circumference before surgery. Agenesis of the Corpus Callosum. Partial Septum Pellucidum agenesis. Grade III kidney reflux. And Four years pass by in a BLINK! A life of epilepsy. Another year goes by. Countdown to Sesame Place. Musings of a Hydro Mom. View my complete profile.

ourhydromiracle.blogspot.com ourhydromiracle.blogspot.com

Our Hydrocephalus Miracle: March 2012

http://ourhydromiracle.blogspot.com/2012_03_01_archive.html

Capturing the journey of our life with a miracle! Wednesday, March 28, 2012. Carly's birthday party was on Saturday, March 24th and it was so much fun! Cinderella surprised Carly at the door and the girls (and Burke! All loved having her around. The girls all made crowns and ate some lunch then Cinderella rang the door bell. She read books, sang a song, put on glitter makeup on the girls, played "Princess" Says, Danced and took pictures with the girls. She stayed to sing "Happy Birthday" then snuck out.

ourhydromiracle.blogspot.com ourhydromiracle.blogspot.com

Our Hydrocephalus Miracle: Preschool

http://ourhydromiracle.blogspot.com/2013/02/preschool.html

Capturing the journey of our life with a miracle! Tuesday, February 19, 2013. February 13th was Carly's annual IEP. Carly's team of therapists and teachers said she has met all her goals and is above a 5 year old level and would be dismissed from services. Carly started March 2011 and at her first evaluation she was behind by almost a year. And now in 2 years she is above a 5 year old level. Amazing. This girl never ceases to amaze me! Subscribe to: Post Comments (Atom). 11/19/07- 18.3 weeks.

ourhydromiracle.blogspot.com ourhydromiracle.blogspot.com

Our Hydrocephalus Miracle: Christmastime

http://ourhydromiracle.blogspot.com/2012/12/christmastime.html

Capturing the journey of our life with a miracle! Friday, December 28, 2012. The kids got their own christmas tree this year to decorate since I decorate the big tree. They were so excited! Carly telling Santa what she wants for Christmas. Pretty sure it's a Princess and the Pop star barbie. We went out in a plane a few days before Christmas to see the lights. I was a nervous wreck but the kids had a great time sitting in the back of the plane. Subscribe to: Post Comments (Atom). 11/19/07- 18.3 weeks.

ourhydromiracle.blogspot.com ourhydromiracle.blogspot.com

Our Hydrocephalus Miracle: January 2012

http://ourhydromiracle.blogspot.com/2012_01_01_archive.html

Capturing the journey of our life with a miracle! Friday, January 27, 2012. In Carly's room I have this picture framed and it sits on her dresser. She likes to look at it and hold it. She says, "It's me at the doctor when I was a baby.". Yesterday we were in her room getting ready for school and Carly was talking about the picture. She said, "I'm holding your finger, Mommy. Mom, you were happy. You were so happy.". I was SO, SO, SO happy! Saturday, January 7, 2012. Sleeping soundly in her padded bed.

ourhydromiracle.blogspot.com ourhydromiracle.blogspot.com

Our Hydrocephalus Miracle: November 2012

http://ourhydromiracle.blogspot.com/2012_11_01_archive.html

Capturing the journey of our life with a miracle! Sunday, November 25, 2012. Movie night in mom's bed! Thursday, November 1, 2012. I grabbed my cell phone and hit contacts. My finger went straight to my great friend Laura. At about 12:30 I called her and immediately broke down. Within 5 minutes she was walking in the door as the paramedics were getting Carly out and into the ambulance. I was adamant they take us to Thunderbird hospital so off we went. Have I been as scared as I was with this experience.

ourhydromiracle.blogspot.com ourhydromiracle.blogspot.com

Our Hydrocephalus Miracle: Rockin' Around the Christmas Tree

http://ourhydromiracle.blogspot.com/2012/12/rockin-around-christmas-tree.html

Capturing the journey of our life with a miracle! Monday, December 10, 2012. Rockin' Around the Christmas Tree. Subscribe to: Post Comments (Atom). 11/19/07- 18.3 weeks. 1367mm and 13.12mm. 3/6/08- 33.6 weeks. 3211mm and 28.19mm. Head circumference before surgery. Agenesis of the Corpus Callosum. Partial Septum Pellucidum agenesis. Grade III kidney reflux. And Four years pass by in a BLINK! A life of epilepsy. Another year goes by. Countdown to Sesame Place. Musings of a Hydro Mom.

ourhydromiracle.blogspot.com ourhydromiracle.blogspot.com

Our Hydrocephalus Miracle: Halloween hell

http://ourhydromiracle.blogspot.com/2012/11/halloween-hell.html

Capturing the journey of our life with a miracle! Thursday, November 1, 2012. Halloween day Carly started wheezing. I got her an appointment with the doctor and she was diagnosed with bronchitis. She was given 2 breathing treatments at the doctors office and started feeling better. By halloween night she seemed to be feeling well enough to trick or treat so we went out for about an hour. Before bed I gave Carly another breathing treatment and let her go to sleep in my bed. I was alone to deal with it all.

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Graham was born February 2009 with X-Linked Hydrocephalus which is now known as L1 Syndrome. This is our story of how he continues to change our lives and we face and navigate the challenges of his health issues. Monday, April 14, 2014. So once again life has gotten the better of me, and I've lapsed in my posts here yet again. At some point I should just put "occasional blogger" in my profile lol! He has even been able to go back to Saddle Up and begin horseback riding therapy again! I missed my pony Mom".

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