growing-up-aiden.blogspot.com

Growing Up Aiden

Aiden was born in September of 2007. 3 weeks after he was born, my husband and I found out he has 1p36 Deletion Syndrome. I thought writing this blog would be a good way to tell Aiden's story. Sunday, June 26, 2011. Monday, February 7, 2011. Vacation - Bryce Canyon. Vacation - Zion National Park. I think it was 95 or 100 degrees the two days we were there. We got up early in the morning to enjoy the park for a bit. Aiden's favorite thing was the bus. There was no air conditioning on the bus b...We had tw...

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Aiden was born in September of 2007. 3 weeks after he was born, my husband and I found out he has 1p36 Deletion Syndrome. I thought writing this blog would be a good way to tell Aiden's story. Sunday, June 26, 2011. Monday, February 7, 2011. Vacation - Bryce Canyon. Vacation - Zion National Park. I think it was 95 or 100 degrees the two days we were there. We got up early in the morning to enjoy the park for a bit. Aiden's favorite thing was the bus. There was no air conditioning on the bus b...We had tw...

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Growing Up Aiden | growing-up-aiden.blogspot.com Reviews

https://growing-up-aiden.blogspot.com

Aiden was born in September of 2007. 3 weeks after he was born, my husband and I found out he has 1p36 Deletion Syndrome. I thought writing this blog would be a good way to tell Aiden's story. Sunday, June 26, 2011. Monday, February 7, 2011. Vacation - Bryce Canyon. Vacation - Zion National Park. I think it was 95 or 100 degrees the two days we were there. We got up early in the morning to enjoy the park for a bit. Aiden's favorite thing was the bus. There was no air conditioning on the bus b...We had tw...

INTERNAL PAGES

growing-up-aiden.blogspot.com

1

Growing Up Aiden: June 2011

http://www.growing-up-aiden.blogspot.com/2011_06_01_archive.html

Aiden was born in September of 2007. 3 weeks after he was born, my husband and I found out he has 1p36 Deletion Syndrome. I thought writing this blog would be a good way to tell Aiden's story. Sunday, June 26, 2011. Subscribe to: Posts (Atom). Climbing on Couch - 29 months (Feb 2010). Using walker - 28 months (Jan 2010). Crawling to Piano - 15 months (Dec 2008). Crawling on Hands and Knees - 14 months (Nov 2008). Laying Down to Sitting up - 14 months (Nov 2008). Crawling - 13 months (Oct 2008). Online Re...

2

Growing Up Aiden: Vacation - Zion National Park

http://www.growing-up-aiden.blogspot.com/2011/02/vacation.html

Aiden was born in September of 2007. 3 weeks after he was born, my husband and I found out he has 1p36 Deletion Syndrome. I thought writing this blog would be a good way to tell Aiden's story. Monday, February 7, 2011. Vacation - Zion National Park. The tart dessert was amazing ) and the Spotted Dog Cafe. Subscribe to: Post Comments (Atom). Climbing on Couch - 29 months (Feb 2010). Using walker - 28 months (Jan 2010). Crawling to Piano - 15 months (Dec 2008). Crawling - 13 months (Oct 2008). First Wave -...

3

Growing Up Aiden: Potty Time

http://www.growing-up-aiden.blogspot.com/2010/02/potty-time.html

Aiden was born in September of 2007. 3 weeks after he was born, my husband and I found out he has 1p36 Deletion Syndrome. I thought writing this blog would be a good way to tell Aiden's story. Wednesday, February 10, 2010. Children with 1p36 Deletion Syndrome usual learn to use the potty later than other children if they learn at all. We bought Aiden an Elmo potty when he was 18 months old just to introduce him to it. Subscribe to: Post Comments (Atom). Climbing on Couch - 29 months (Feb 2010). Nothing B...

4

Growing Up Aiden: February 2011

http://www.growing-up-aiden.blogspot.com/2011_02_01_archive.html

Aiden was born in September of 2007. 3 weeks after he was born, my husband and I found out he has 1p36 Deletion Syndrome. I thought writing this blog would be a good way to tell Aiden's story. Monday, February 7, 2011. Vacation - Bryce Canyon. Vacation - Zion National Park. I think it was 95 or 100 degrees the two days we were there. We got up early in the morning to enjoy the park for a bit. Aiden's favorite thing was the bus. There was no air conditioning on the bus but the windows were ope...We had tw...

5

Growing Up Aiden: Stairs

http://www.growing-up-aiden.blogspot.com/2011/06/stairs.html

Aiden was born in September of 2007. 3 weeks after he was born, my husband and I found out he has 1p36 Deletion Syndrome. I thought writing this blog would be a good way to tell Aiden's story. Sunday, June 26, 2011. July 6, 2011 at 9:57 AM. Subscribe to: Post Comments (Atom). Climbing on Couch - 29 months (Feb 2010). Using walker - 28 months (Jan 2010). Crawling to Piano - 15 months (Dec 2008). Crawling on Hands and Knees - 14 months (Nov 2008). Laying Down to Sitting up - 14 months (Nov 2008). Our Preci...

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pattils-ourkiddo.blogspot.com

Our kiddos: March 2015

http://pattils-ourkiddo.blogspot.com/2015_03_01_archive.html

Tidbits from our family in our everyday "normal" life. Some people blog about specific diagnosis of their kids but we have three individual kids. Each kid has their own Title as you would have it that the doctors gave them, and they are also all adopted so I add bits about it but mostly concentrate on who they are.OUR KIDDOS! Monday, March 9, 2015. It has been so long since I put a post in here! We are still kicking. Subscribe to: Posts (Atom). Andres,AAliyah and NeVaeh. View my complete profile. Lexi's ...

pattils-ourkiddo.blogspot.com

Our kiddos: May 2014

http://pattils-ourkiddo.blogspot.com/2014_05_01_archive.html

Tidbits from our family in our everyday "normal" life. Some people blog about specific diagnosis of their kids but we have three individual kids. Each kid has their own Title as you would have it that the doctors gave them, and they are also all adopted so I add bits about it but mostly concentrate on who they are.OUR KIDDOS! Saturday, May 10, 2014. You know this holiday means so much! Jesus died on the cross and he has risen for our sins to be forgiven! Dad Passed away ten years ago the day before Easter.

kyleemcglin.blogspot.com

Kylee: October 2010

http://kyleemcglin.blogspot.com/2010_10_01_archive.html

Our Princess with 1P36. Saturday, October 9, 2010. The princess arriving to the benefit. This made me cry. They announced the princess Kylee was there and everyone cleared a path for her to come thru. It was so amazing. The pink castle is a card box. My good friend Matt made it for us. There is also a collage of pictures from our family photo session and then a large picture frame for people to sign. That really made a nice keepsake. Saturday, October 2, 2010. Subscribe to: Posts (Atom).

kyleemcglin.blogspot.com

Kylee: March 2011

http://kyleemcglin.blogspot.com/2011_03_01_archive.html

Our Princess with 1P36. Tuesday, March 22, 2011. This will be my last post. Kylee. Has passed away on Sunday morning at 5:43 am with Jason and I by her side. We had the best last two weeks with her right up to the very end. She was so happy and had alot. To say. Jason and I were with her when she passed and it was so peaceful. I can not thank the staff at Children's Hospital enough or Melissa Borth. For everything they have done for us during this time. Kylee. Monday, March 14, 2011. Is sleeping a lot.

kyleemcglin.blogspot.com

Kylee: April 2010

http://kyleemcglin.blogspot.com/2010_04_01_archive.html

Our Princess with 1P36. Friday, April 23, 2010. No More Blue Spells. Crisis. I am leaning towards the dysautonomia. Has not been formally diagnosed with it but just matches the symptoms. To a tee. She has been in this. Funk" during these blue spells. Just unhappy and crying and then all of a sudden she was out of it and was the happiest little girl you have ever seen and let me tell you I am loving it. So heart looks great.no more blue spells and my happy girl is back. I'll take it. Monday, April 12, 2010.

kyleemcglin.blogspot.com

Kylee: June 2010

http://kyleemcglin.blogspot.com/2010_06_01_archive.html

Our Princess with 1P36. Thursday, June 24, 2010. Wednesday, June 2, 2010. CVS and Hip Dysplasia. We have been without a home computer for some time (part of my reasoning for not post) as ours decided to die. THANK YOU to my wonderful friend Ashley (Beau's mom) who is donating me one to I can stay connected with everyone. I have been lost with out it. Subscribe to: Posts (Atom). This is our story of life with our daughter who has 1P36. Nothing Beats A Quickie! A few of my favorites.

kyleemcglin.blogspot.com

Kylee: November 2010

http://kyleemcglin.blogspot.com/2010_11_01_archive.html

Our Princess with 1P36. Saturday, November 27, 2010. Thank you everyone for all your prayers and support. We could never thank everyone enough. Monday, November 1, 2010. Our Treatment is Over. Our Treatment is Over. Subscribe to: Posts (Atom). This is our story of life with our daughter who has 1P36. Our Treatment is Over. Nothing Beats A Quickie! A few of my favorites. Raising Awereness about Another Important Cause. 1p36 Conference in MN and Doctor Appt Updates. Lexi's School Birthday Party.

kyleemcglin.blogspot.com

Kylee: May 2010

http://kyleemcglin.blogspot.com/2010_05_01_archive.html

Our Princess with 1P36. Thursday, May 6, 2010. We went to the McDonald House. She had a few drops in her oxygen but not much so we just got home. She is looking a little white and not herself but I am sure in a few days she will bounce back. Thank you for all the prayers and well wishes. Saturday, May 1, 2010. I went and sat in on school for Kylee. Is and like to be by her. She also has another friend named Zoe. They ride the bus together and often have vision therapy together. Kylee. Has really grown to...

kyleemcglin.blogspot.com

Kylee: March 2010

http://kyleemcglin.blogspot.com/2010_03_01_archive.html

Our Princess with 1P36. Wednesday, March 17, 2010. Happy St Patrick's Day. Happy St Patrick's Day from the McGlin's. Always has to have the finger in the mouth for pictures. She is so hard to get a good picture on. I think I took 5 and decided this was the best. She had enough. She was all in green and has her toe and finger nails painted green. She is a true Irish girl. Sunday, March 7, 2010. Subscribe to: Posts (Atom). This is our story of life with our daughter who has 1P36. Happy St Patricks Day.

kyleemcglin.blogspot.com

Kylee: December 2010

http://kyleemcglin.blogspot.com/2010_12_01_archive.html

Our Princess with 1P36. Monday, December 6, 2010. The Best Christmas Present. The Best Christmas Present. Oncology appointment today and it was filled. With many emotions. Kylee. Got her beads of courage today. It is a necklace with a bead for everything she has been thru. She gets one bead for radiation, losing her hair, every poke she has gotten, every transfusion and the list goes on). Her MRI results were normal. For the type of cancer Kylee. Has they usually do MRI's. Subscribe to: Posts (Atom).

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Growing Up Aiden

Aiden was born in September of 2007. 3 weeks after he was born, my husband and I found out he has 1p36 Deletion Syndrome. I thought writing this blog would be a good way to tell Aiden's story. Sunday, June 26, 2011. Monday, February 7, 2011. Vacation - Bryce Canyon. Vacation - Zion National Park. I think it was 95 or 100 degrees the two days we were there. We got up early in the morning to enjoy the park for a bit. Aiden's favorite thing was the bus. There was no air conditioning on the bus b...We had tw...

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