Rhys is heading to America for a life changing operation - Selective Dorsal Rhizotomy
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Help Heal Rhys | Rhys is heading to America for a life changing operation – Selective Dorsal Rhizotomy | helphealrhys.wordpress.com Reviews
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Rhys is heading to America for a life changing operation - Selective Dorsal Rhizotomy
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NICE work | Help Heal Rhys
https://helphealrhys.wordpress.com/2013/06/05/nice-work
Rhys is heading to America for a life changing operation – Selective Dorsal Rhizotomy. Skip to primary content. June 5, 2013. It’s getting close to being 12 months since Rhys had his surgery in St Louis and in the coming weeks I’ll write a post about how he’s doing. In the run up to his op lots of people asked me ‘Why isn’t SDR available on the NHS? 8217; There was a heap of reasons and I wrote about it here. In a post from September. Incredibly, he’s been persuaded to take action on several fronts.
Up On The Roof | Help Heal Rhys
https://helphealrhys.wordpress.com/2012/10/05/up-on-the-roof
Rhys is heading to America for a life changing operation – Selective Dorsal Rhizotomy. Skip to primary content. Up On The Roof. October 5, 2012. Rhys was reluctant to really do anything in physio yesterday and needed lots of coaxing to do anything. That’s a combination of being sore, fed up and having a new pair of splints to wear which aren’t all that comfortable. He took a few independent steps though which was encouraging. So even though we’ve had a week here it still feels like we’ve been...Good to h...
calves | Help Heal Rhys
https://helphealrhys.wordpress.com/2012/12/01/the-tipping-point/calves
Rhys is heading to America for a life changing operation – Selective Dorsal Rhizotomy. Skip to primary content. November 30, 2012. At 4000 × 3000. In The Tipping Point. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. You are commenting using your Twitter account. ( Log Out. You are commenting using your Facebook account. ( Log Out.
Creating Change | Help Heal Rhys
https://helphealrhys.wordpress.com/2014/03/31/creating-change
Rhys is heading to America for a life changing operation – Selective Dorsal Rhizotomy. Skip to primary content. March 31, 2014. It’s been a while since I’ve posted on here, partly as I slipped out of the habit and partly as there seemed less to report. But today definitely feels like a good news day. A recurring question before Rhys had his surgery was ‘why isn’t SDR available on the NHS? 8217; There were a number of reasons which I’ve written about on this blog before. The picture was taken at the annua...
Happy SDR Birthday | Help Heal Rhys
https://helphealrhys.wordpress.com/2013/06/27/happy-sdr-birthday
Rhys is heading to America for a life changing operation – Selective Dorsal Rhizotomy. Skip to primary content. June 27, 2013. One of the rehab activities suggested to us by the team in St Louis was indoor climbing. They had a 2 metre high wall in the physio room there which the kids would use for physio. As much as going back to work makes things feel more ‘normal’ you can’t help but feel like you’ve somehow deserted your post. The question ‘did I do enough? Now though, Rhys has got that good at riding ...
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Candor CP Featured on Huffpo | Learning to Run: My Cerebral Palsy Journey
https://slayingspasticity.com/2014/08/21/candor-cp-featured-on-huffpo
Learning to Run: My Cerebral Palsy Journey. My Experience with Selective Dorsal Rhizotomy Surgery. Skip to primary content. Candor CP Featured on Huffpo. August 21, 2014. We had a great writeup today about Candor CP and what we hope to achieve by Nicole Luongo. On The Huffington Post. This entry was posted in Uncategorized. 2 thoughts on “ Candor CP Featured on Huffpo. August 22, 2014 at 04:57. Well done Frantz. Hope you’re well. G. August 24, 2014 at 23:36. Thanks. How is Rhyss? Enter your comment here.
One Year Out! | Learning to Run: My Cerebral Palsy Journey
https://slayingspasticity.com/2013/02/18/one-year-post-sdrcerebral-palsy-treatment
Learning to Run: My Cerebral Palsy Journey. My Experience with Selective Dorsal Rhizotomy Surgery. Skip to primary content. February 18, 2013. Since then I have experienced the success and frustrations of intense physical therapy and done things that I never thought I would be capable of doing. After more than 10 years of constantly searching for a treatment and seeing countless doctors who advised me to:. 8220;Get over it.”. 8220;Be happy you can walk.”. 8220;There is nothing more you can do.”. You are ...
The Spartan Race | Learning to Run: My Cerebral Palsy Journey
https://slayingspasticity.com/2013/06/09/the-spartan-race
Learning to Run: My Cerebral Palsy Journey. My Experience with Selective Dorsal Rhizotomy Surgery. Skip to primary content. June 9, 2013. Yesterday, a group of friends and I did The Spartan Sprint. A few details about the course:. The course was 4 “hilly miles.”. There were 25 obstacles spread through the course. It rained pretty heavily the day before so the entire course was very muddy and slippery. For every obstacle a racer did not complete there was a 30 burpee. 8211; this one was a mixed bag. I...
10 Months Out: Slow and Steady | Learning to Run: My Cerebral Palsy Journey
https://slayingspasticity.com/2012/12/20/10-moths-post-selective-dorsal-rhizotomy-cerebral-palsy-treatment
Learning to Run: My Cerebral Palsy Journey. My Experience with Selective Dorsal Rhizotomy Surgery. Skip to primary content. 10 Months Out: Slow and Steady. December 20, 2012. Similarly 3 friends have independently told me that my speed when walking has improved dramatically and they no longer have to slow down as much as they used to when walking with me. I never really focus on walking faster – it just started happening. The lesson I should,. Of my gait and movement and just let the improvements come.
What is SDR? - Support 4 SDR
http://www.support4sdr.org/what-is-sdr.html
SDR in the UK. Selective Dorsal Rhizotomy (SDR). Is a surgical procedure performed on children with Cerebral Palsy. Though there are many variations a typical child would have have severe stiffness (spasticity) in their lower limbs making walking difficult or impossible. Most also see a dramatic change in their posture, overall comfort and temperament. SDR, quite literally, changes lives. EMG) responses from muscles in the lower extremities, the surgical team identifies the rootlets that cause spasticity...
A view from the other side of the fence | written off
https://writtenoff.net/2013/05/22/a-view-from-the-other-side-of-the-fence
Making the big C smaller. The blog and me. A view from the other side of the fence. In Notes on cancer. Our logo, designed in collaboration with our friends at B&B. As well as the many kind offers of help, many people have also enquired about donating to the charity and we have finally set up a donation page, which you can visit at https:/ mydonate.bt.com/charities/theeleanorrosefoundation. Thank you to anyone and everyone who takes the time to donate. As Ellie’s illness progressed and we tried different...
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Help Heal Rhys | Rhys is heading to America for a life changing operation – Selective Dorsal Rhizotomy
Rhys is heading to America for a life changing operation – Selective Dorsal Rhizotomy. Skip to primary content. Skip to secondary content. September 14, 2016. Normally you celebrate anniversaries in 5 and 10 year cycles but this is a 4 year cycle that feels significant. It was the summer of 2012 that Rhys had his SDR surgery in St Louis. The moment that’s etched in my mind is on youtube here. Watching the opening of the Paralympics in Rio last week reminded of that moment. I wrote about that on this blog.
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