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The Órán Nibbs Fund - HomeÓrán Nibbs is a little boy who is suffering with severe Mitochondrial Disease. This fund is to improve his life and pay for his ongoing care and medical needs
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Órán Nibbs is a little boy who is suffering with severe Mitochondrial Disease. This fund is to improve his life and pay for his ongoing care and medical needs
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The Órán Nibbs Fund - Home | helporan.com Reviews
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Órán Nibbs is a little boy who is suffering with severe Mitochondrial Disease. This fund is to improve his life and pay for his ongoing care and medical needs
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Mitochondrial Disease - The Órán Nibbs Fund
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The Órán Nibbs Fund. Oacute;rán's Story. How you can help. Oacute;rán's Updates. What is Mitochondrial Disease. Diseases of the mitochondria appear to cause the most damage to cells of the brain, heart, liver, skeletal muscles, kidney and the endocrine and respiratory systems. This is what our wee Órán goes through each day at only 3 years of age. And you know what, it's going to get harder. To read and find out more. Two Short Clips on what is Mitochondrial Disease. Create a free website.
Órán's Story - The Órán Nibbs Fund
http://www.helporan.com/oacuteraacutens-story.html
The Órán Nibbs Fund. Oacute;rán's Story. How you can help. Oacute;rán's Updates. Oacute;rán's Story. Further tests were needed and boy did they test! From ECG’s to muscle biopsy our wee man had more tests than most adults do in a life time. The medical team in Temple Street had to adopt a wait-and-see approach because some symptoms of Mitochondrial Disease are so similar to many other diseases at different ages. Again we ask…can you help us help him? Do what you can:. An event - lots of ideas on this site.
How you can help - The Órán Nibbs Fund
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The Órán Nibbs Fund. Oacute;rán's Story. How you can help. Oacute;rán's Updates. But what can I do? You might have read here how much of a rollercoaster Órán's life has been so far. He 's only 3 years old and has been through more medically than most of us would in a lifetime! What we aim to do here is to raise money. Some of the things that Órán needs now and in the future:. Specialised stem cell research in the USA - not to cure but to give him a better quality of life - estimated cost €50, 000. Charit...
The Órán Nibbs Fund - Órán's Updates
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The Órán Nibbs Fund. Oacute;rán's Story. How you can help. Oacute;rán's Updates. Thanks so much for helping us help him! Please continue your support and whatever you do: Do what you can: Donate, Organise, Attend and Share. Órán's progress after treatment. Our hope is that you will continue to fight with us, raise awareness and above all else.help us, help him. The Flora Women's Mini Marathon takes place this June. If you or anyone you know might be interested in taking part please click here. This is a ...
Links - The Órán Nibbs Fund
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The Órán Nibbs Fund. Oacute;rán's Story. How you can help. Oacute;rán's Updates. Visit the following web links to find out more about Mitochondrial Disease and to raise awareness of this disease. Many of these organisations have been a great help to us in caring for Órán:. United Mitochondrial Disease Foundation. Living Well With Mitochondrial Disease - A Handbook for Patients, Parents and Families. Mito Families Ireland (Facebook Group). Mito Action (Facebook Page). Temple Street Children's Hospital.
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The Órán Nibbs Fund - Home
The Órán Nibbs Fund. My name is Órán and I am three years old. I was born with Mitochondrial Disease, a rare progressive genetic disorder. This means that I can't walk or talk, crawl or do all of the fun things that I see my brother and sister doing. It takes a lot of extra people to care for me. Because I am so sick I have gotten other illnesses too like epilepsy and hypotonia. My family and all my friends love me very much and want the best for me but the care that I need costs a lot of extra money.
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