The Hashimoto’s Encephalopathy SREAT Alliance (“HESA”) is a 501(c)(3) nonprofit organization formed in 2012. HESA’s purpose is collect, archive, and share information regarding Hashimoto’s Encephalopathy (
http://www.hesaonline.org/
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About HESA - Hashimoto's Encephalopathy SREAT Alliance | hesaonline.org Reviews
https://hesaonline.org
The Hashimoto’s Encephalopathy SREAT Alliance (“HESA”) is a 501(c)(3) nonprofit organization formed in 2012. HESA’s purpose is collect, archive, and share information regarding Hashimoto’s Encephalopathy (
hesaonline.org
Misdiagnosis - Hashimoto's Encephalopathy SREAT Alliance
http://www.hesaonline.org/hesreat-101/misdiagnosis
Understanding the Brain and the Immune System. Disability Benefits in the US, UK, and Canada. Filing an Insurance Appeal. Tips for the Undiagnosed. The Second Edition of "Understanding Hashimoto's Encephalopathy" is coming soon. You can learn more about HE/SREAT with us on Facebook, Twitter, Google , and more . I believe you.". Misdiagnosis in HE/SREAT is common due to the lack of information about this serious and potentially life threatening condition. 8211; Dr. Josep Dalmau. The Autoimmune Encephaliti...
Tips for the Undiagnosed - Hashimoto's Encephalopathy SREAT Alliance
http://www.hesaonline.org/tips-for-the-undiagnosed
Understanding the Brain and the Immune System. Disability Benefits in the US, UK, and Canada. Filing an Insurance Appeal. Tips for the Undiagnosed. The Second Edition of "Understanding Hashimoto's Encephalopathy" is coming soon. You can learn more about HE/SREAT with us on Facebook, Twitter, Google , and more . I believe you.". Laquo; How to Find a Specialist. Tips for the Undiagnosed. June 6, 2015. Connecting Rare Disease Patients Globally". Alone we are rare. Together we are strong. ". Provides informa...
For Clinicians - Hashimoto's Encephalopathy SREAT Alliance
http://www.hesaonline.org/for-clinicians
Understanding the Brain and the Immune System. Disability Benefits in the US, UK, and Canada. Filing an Insurance Appeal. Tips for the Undiagnosed. The Second Edition of "Understanding Hashimoto's Encephalopathy" is coming soon. You can learn more about HE/SREAT with us on Facebook, Twitter, Google , and more . I believe you.". The first 18 minutes of the video consist of a book reading by Susannah Cahalan, author of the best seller “ Brain on Fire. Author of “ Brain on Fire: My month of madness. Clinici...
AE Archives - Hashimoto's Encephalopathy SREAT Alliance
http://www.hesaonline.org/tag/AE
Understanding the Brain and the Immune System. Disability Benefits in the US, UK, and Canada. Filing an Insurance Appeal. Tips for the Undiagnosed. The Second Edition of "Understanding Hashimoto's Encephalopathy" is coming soon. You can learn more about HE/SREAT with us on Facebook, Twitter, Google , and more . I believe you.". Autoimmune Encephalitis: Call to Action. June 4, 2015. Autoimmune Encephalitis: Treatment and Expected Outcomes. June 4, 2015. Autoimmune Encephalitis: Patient Perspective. This v...
Finding Support - Hashimoto's Encephalopathy SREAT Alliance
http://www.hesaonline.org/for-patients/finding-support
Understanding the Brain and the Immune System. Disability Benefits in the US, UK, and Canada. Filing an Insurance Appeal. Tips for the Undiagnosed. The Second Edition of "Understanding Hashimoto's Encephalopathy" is coming soon. You can learn more about HE/SREAT with us on Facebook, Twitter, Google , and more . I believe you.". The diagnosis of a rare disease or chronic illness can be frightening. When patients hear the words treatable but not curable. This group is for those who have been given a. There...
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#gyncsm Community: August 2016
http://gyncsm.blogspot.com/2016_08_01_archive.html
A community for those impacted by gynecologic cancer. Est. 2013. Friday, August 12, 2016. The #gyncsm community supports women diagnosed with a number of gynecologic cancers that are considered by the NIH to be rare diseases. In an effort to raise awareness that Ovarian, Endometrial/Uterine, Fallopian Tube, Gestational Trophoblastic Disease, Vaginal and Vulvar Cancers. And join us as we support #Dazzle4Rare during the week of August 15th - 21st. Here's something from #gyncsm that you can share:. It’...
internationalencephalitisconsortium.org
Patients & Families - INTERNATIONALENCEPHALITISCONSORTIUM
http://www.internationalencephalitisconsortium.org/patients--families.html
Diagnostic Algorithm for Initial Evaluation of Encephalitis in Adults. Diagnostic Algorithm for Initial Evaluation of Encephalitis in Children. A diagnosis of encephalitis is a daunting challenge! Those affected by encephalitis – whether patient, family or friend – know and experience its isolating nature. Although each year encephalitis impacts 20,000 people in the United States and 500,000 people globally, it tends to be a hidden, and often overlooked, illness. Encephalitis Global. Encephalitis affects...
internationalencephalitisconsortium.org
Advocacy and Recovery - INTERNATIONALENCEPHALITISCONSORTIUM
http://www.internationalencephalitisconsortium.org/advocacy-and-recovery.html
Diagnostic Algorithm for Initial Evaluation of Encephalitis in Adults. Diagnostic Algorithm for Initial Evaluation of Encephalitis in Children. Back to Resources for Patients and Families. After the acute phase of encephalitis has passed, many survivors wonder, “Is this as good as it gets? Several organizations focus on raising awareness. They seek to increase the profile of encephalitis so as to improve treatment, fund research and create a greater sense of community. These organizations include:. Due t...
internationalencephalitisconsortium.org
About Encephalitis - INTERNATIONALENCEPHALITISCONSORTIUM
http://www.internationalencephalitisconsortium.org/about-encephalitis.html
Diagnostic Algorithm for Initial Evaluation of Encephalitis in Adults. Diagnostic Algorithm for Initial Evaluation of Encephalitis in Children. Back to Resources for Patients and Families. Is an organization that offers support and information on various types of encephalitis, including research, books and publications, newsletters, and stories from survivors, among others. Their work is supported by leading doctors and professionals in the field. The Centers for Disease Control. Several organizations fo...
RareConnect Badges | RareConnect Support & Capacity Building
http://blog.rareconnect.org/resources/rareconnect-badges
Social media case studies. Updates to RareConnect.org. How to promote your Community. Continual and consistent promotion of your RareConnect community is critical to member participation. When promoting this platform highlight the benefits of our communities. Websites, social media channels, and e-newsletters are a great way to promote online communities. Bsites to RareConnect. We have created a badge, or logo, in each language as a way to include the link. Leave a Reply Cancel reply. Follow us on Twitter.
Social media case studies | RareConnect Support & Capacity Building
http://blog.rareconnect.org/category/social-media-case-studies
Social media case studies. Updates to RareConnect.org. Category Archives: Social media case studies. RareConnect webinar: How to start a Twitter account for your rare disease. June 14, 2016. Social media case studies. Social media case studies. Download the slides Descarga la presentación en ESPAÑOL. SPEAKERS: Rob Pleticha (@robpleticha), Online Community Manager RareConnect and Emma Rooney (@blumencasey), Gaucher disease patient advocate Why start a Twitter account? How can I…. Read Post →. By Robert Pl...
Useful links | RareConnect Support & Capacity Building
http://blog.rareconnect.org/resources/useful-links
Social media case studies. Updates to RareConnect.org. 8211; The portal for rare diseases and orphan drugs. 8211; Searchable database which provides patients, family members and the public with information about current ongoing clinical research studies. Provides information about diseases and their related support and advocacy networks. It began as a feature of Genetic Alliance’s website, and this expansion improves both navigation and the number of information sources included. Is a free database acces...
List of #RareDisease Hashtags | RareConnect Support & Capacity Building
http://blog.rareconnect.org/social-media-case-studies/raredisease-list-of-hashtags
Social media case studies. Updates to RareConnect.org. List of #RareDisease Hashtags. March 24, 2016. Social media case studies. Hashtags make it easy to follow a conversation and unite a community around a particular rare disease, or just the #RareDisease. Topic in general. Here is a list of just some of the many rare disease hashtags that exist. Don’t see yours in the list? CMD (congenital muscular dystrophy). CRPS (Complex Regional Pain Syndrome). IPF (Idiopathic Pulmonary Fibrosis). Some people use t...
RareConnect Satellite Meeting during EURORDIS Membership Meeting #ECRD2016 | RareConnect Support & Capacity Building
http://blog.rareconnect.org/uncategorized/rareconnect-satellite-meeting-during-eurordis-membership-meeting-ecrd2016
Social media case studies. Updates to RareConnect.org. RareConnect Satellite Meeting during EURORDIS Membership Meeting #ECRD2016. May 31, 2016. European conference on rare diseases. During the EURORDIS Membership meeting 2016. In Edinburgh, Scotland the RareConnect team presented progress on the platform along with highlighting how rare disease patient groups can take part in the project. Watch videos from the workshop here on Facebook. 8211; Robert Pleticha. RareConnect online community managers. On Ra...
Promoting RareConnect | RareConnect Support & Capacity Building
http://blog.rareconnect.org/category/promoting-rareconnect
Social media case studies. Updates to RareConnect.org. Category Archives: Promoting RareConnect. How to create a profile for a rare disease community on RareConnect. April 14, 2016. See our list of current communities on RareConnect here: https:/ www.rareconnect.org/en/communities We work in partnership with rare disease patient associations to create those communities and offer community management support, human translation and…. Read Post →. May 8, 2014. Read Post →. April 25, 2013. Read Post →. RareC...
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Desde el principio...
Martes, 9 de noviembre de 2010. Hace 10 minutos tenia claro de que queria escribir, lo haiba redactado tod en mi cabeza, que foto iba a poner. era lindo. Pero ladro el perro ¬¬ y toda la inspiracion se fue mientras era reemplazado por la furia. XD. Lo central de todo lo que queria decir es que, no te entiendo. dices algo. haces lo contrario. o quizas solo imagino que lo haces con esas intenciones. la cuestion es que me dejas en una encrucijada. otra vez. Publicado por Katie Hesan Z. Miércoles, 7 de julio...
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About HESA - Hashimoto's Encephalopathy SREAT Alliance
Understanding the Brain and the Immune System. Disability Benefits in the US, UK, and Canada. Filing an Insurance Appeal. Tips for the Undiagnosed. Pediatric Studies, II. Pediatric Studies, III. Understanding Hashimoto's Encephalopathy 2016 Edition:. An Expanded and Updated Guide For Patients, Families, and Caregivers. Now Available on Amazon. Follow us on Facebook, Twitter, LinkedIn, Pinterest, and Instagram! I believe you.". NAIM ), and encephalopathy associated with autoimmune thyroid disease. HESA co...
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