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heterotaxy.org

Heterotaxy Foundation

Skip to main content. The Heterotaxy Foundation is a non-profit organization created to raise funds for research and promote awareness of a rare disease called Heterotaxy Syndrome and is managed by Keegan's Spirit Foundation,. 100% volunteer, 501(c)(3) tax-exempt organization centered on providing hope to those with congenital heart disease. Please click on one of the links above to learn more about the rare disease of Heterotaxy Syndrome, our organization, and how to help.

http://www.heterotaxy.org/

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Heterotaxy Foundation | heterotaxy.org Reviews

https://heterotaxy.org

Skip to main content. The Heterotaxy Foundation is a non-profit organization created to raise funds for research and promote awareness of a rare disease called Heterotaxy Syndrome and is managed by Keegan's Spirit Foundation,. 100% volunteer, 501(c)(3) tax-exempt organization centered on providing hope to those with congenital heart disease. Please click on one of the links above to learn more about the rare disease of Heterotaxy Syndrome, our organization, and how to help.

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sarahs-pregnancy.blogspot.com sarahs-pregnancy.blogspot.com

Sarah's Pregnancy: January 2010

http://sarahs-pregnancy.blogspot.com/2010_01_01_archive.html

Our baby with Heterotaxy. Friday, January 29, 2010. We Found a Keeper! I wouldn't suggest looking at Google images for hydrops. Her heart rate was also higher this time (80-90 bpm. Than last time (60 bpm. But still not where they would like her to be (120-180 bpm. Then came in Dr. Ledella. Happen all the time. She was very personable, and we both liked her a lot. We found a keeper! They want to see me again in two weeks (next week I see Dr. Gremmels. Which is good for baby! Posted by Sarah Gibson. And sa...

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Heterotaxy Foundation

Skip to main content. The Heterotaxy Foundation is a non-profit organization created to raise funds for research and promote awareness of a rare disease called Heterotaxy Syndrome and is managed by Keegan's Spirit Foundation,. 100% volunteer, 501(c)(3) tax-exempt organization centered on providing hope to those with congenital heart disease. Please click on one of the links above to learn more about the rare disease of Heterotaxy Syndrome, our organization, and how to help.

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Heterotaxy Syndrome | The Story of a little boy born with Heterotaxy Syndrome

The Story of a little boy born with Heterotaxy Syndrome. I wear red for Logan. February 2, 2013 by kristenspyker. The Month of February is Congenital Heart Disease Awareness Month. Today had me thinking about the last 3 years and everything we have been thru. Honestly, I don’t know how I got thru it. From getting the devastating diagnosis that kept getting worse every single time we saw a new doctor, to having to rock him in […]. Continue reading →. Birth and NICU Stay. Children's Hospital of Boston.

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Find a Group on Facebook. Regional Coordinators and Facebook Team. Complex Congenital Heart Defects. Isomerism – Asplenia and Polysplenia. Welcome to Heterotaxy Connection! We are so happy you found us! We are constantly trying to find ways to improve our website, find up to date resources, and connect more families affected by Heterotaxy Syndrome. We know that this journey is a difficult one, but we hope that we can partner with you in making your journey a little less scary and much more hopeful.

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