hnpp.blogspot.com

HNPP - Our Story

HNPP - Our Story. I wanted to start this blog to share our family's experience with HNPP. There is not a lot of information available so the more we can share the more we can help each other and help in the research process. We would love to hear from you too. - Our Family. Tuesday, June 10, 2014. MDA Website and HNPP. I wrote the following letter to the MDA in regards to their website:. I will let you know if I hear back or if anything changes on the website. Friday, June 6, 2014. In the second chapter ...

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HNPP - Our Story. I wanted to start this blog to share our family's experience with HNPP. There is not a lot of information available so the more we can share the more we can help each other and help in the research process. We would love to hear from you too. - Our Family. Tuesday, June 10, 2014. MDA Website and HNPP. I wrote the following letter to the MDA in regards to their website:. I will let you know if I hear back or if anything changes on the website. Friday, June 6, 2014. In the second chapter ...

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posted by,jerusharen,1 comment,email this,blogthis,share to twitter,share to facebook,share to pinterest,the myelin project,from the website,no comments,great news,the invisible disease,judgement is painful,my second daughter,thank you,older posts

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HNPP - Our Story | hnpp.blogspot.com Reviews

https://hnpp.blogspot.com

HNPP - Our Story. I wanted to start this blog to share our family's experience with HNPP. There is not a lot of information available so the more we can share the more we can help each other and help in the research process. We would love to hear from you too. - Our Family. Tuesday, June 10, 2014. MDA Website and HNPP. I wrote the following letter to the MDA in regards to their website:. I will let you know if I hear back or if anything changes on the website. Friday, June 6, 2014. In the second chapter ...

INTERNAL PAGES

hnpp.blogspot.com

1

HNPP - Our Story: July 2012

http://www.hnpp.blogspot.com/2012_07_01_archive.html

HNPP - Our Story. I wanted to start this blog to share our family's experience with HNPP. There is not a lot of information available so the more we can share the more we can help each other and help in the research process. We would love to hear from you too. - Our Family. Wednesday, July 25, 2012. Should I Test My Children? On one of the online HNPP support groups I am part of, one member asked us this question:. Should I test my children for HNPP? Subscribe to: Posts (Atom). Should I Test My Children?

2

HNPP - Our Story: June 2011

http://www.hnpp.blogspot.com/2011_06_01_archive.html

HNPP - Our Story. I wanted to start this blog to share our family's experience with HNPP. There is not a lot of information available so the more we can share the more we can help each other and help in the research process. We would love to hear from you too. - Our Family. Monday, June 13, 2011. Join the HNPP Group. Here is a link if this group is right for you. Click to join hnpp. Friday, June 10, 2011. How HNPP relates to CMT. Researchers Probe the Origins of Charcot-Marie-Tooth Disease. There is even...

3

HNPP - Our Story: My Second Daughter

http://www.hnpp.blogspot.com/2013/03/my-second-daughter.html

HNPP - Our Story. I wanted to start this blog to share our family's experience with HNPP. There is not a lot of information available so the more we can share the more we can help each other and help in the research process. We would love to hear from you too. - Our Family. Wednesday, March 27, 2013. Even those with it can't fully understand what another sufferer is going through if their symptoms are different and especially if theirs are less severe. Compassion is so important. View my complete profile.

4

HNPP - Our Story: Thank You

http://www.hnpp.blogspot.com/2013/03/thank-you.html

HNPP - Our Story. I wanted to start this blog to share our family's experience with HNPP. There is not a lot of information available so the more we can share the more we can help each other and help in the research process. We would love to hear from you too. - Our Family. Wednesday, March 27, 2013. Subscribe to: Post Comments (Atom). Busy by choice, otherwise life gets too boring. View my complete profile. Simple template. Powered by Blogger.

5

HNPP - Our Story: MDA Website and HNPP

http://www.hnpp.blogspot.com/2014/06/mda-website-and-hnpp.html

HNPP - Our Story. I wanted to start this blog to share our family's experience with HNPP. There is not a lot of information available so the more we can share the more we can help each other and help in the research process. We would love to hear from you too. - Our Family. Tuesday, June 10, 2014. MDA Website and HNPP. I wrote the following letter to the MDA in regards to their website:. I will let you know if I hear back or if anything changes on the website. August 13, 2014 at 8:31 AM.

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hnpp.info

Welcome to Hnpp UK

http://hnpp.info/index.html

Comprehensive Information About HNPP. The CMT-UK International Website - info About HNPP and Other resources. HMSN - HNPP info at NDC, Washington University, St. Louis, USA. US National Library Of Medicine - Genetics Home Reference. GeneClinic HNPP review (05). HNPP:Recent Studies - PubMed. An International Hnpp Yahoo Email Group. HNPPHELP faceboo group (login required). Hereditary neuropathy and CMT Facebook Group - Membership Required. Charcot-Marie-Tooth Association US Forums. CMT and HNPP - Blogs.

erfelijkedrukneuropathie.blogspot.com

tintelend door 't leven met HNPP: eindelijk toch ook een adres in Europa !

http://erfelijkedrukneuropathie.blogspot.com/2014/12/eindelijk-toch-ook-een-adres-in-europa.html

Tintelend door 't leven met HNPP. Informatieve blog over HNPP, aangevuld met persoonlijke ervaringen. Parkeerkaart in Belgische steden. Woensdag 17 december 2014. Eindelijk toch ook een adres in Europa! Gelezen dat een Zwitserse arts zich toch ook onze aandoening onderzoekt. Hij doet wel geen consultaties. Misschien moet ik via An, in Bern, even navraag doen of zij meer kan te weten komen. Ze werkt tenslotte in de medische sector. Http:/ www.mhs.biol.ethz.ch/Research/Suter. Blog van Bibliotheek Ieper.

erfelijkedrukneuropathie.blogspot.com

tintelend door 't leven met HNPP: november 2014

http://erfelijkedrukneuropathie.blogspot.com/2014_11_01_archive.html

Tintelend door 't leven met HNPP. Informatieve blog over HNPP, aangevuld met persoonlijke ervaringen. Parkeerkaart in Belgische steden. Zondag 2 november 2014. Multiple Myeloma My Way: Neuropathy Is A Pain. Multiple Myeloma My Way: Neuropathy Is A Pain. That's not a complaint. It is a description. The heels of my feet have gone to sleep. That's neuropathy [ nu-rop-a-thi ]. It comes. Neuropathie is een pijn! Gelezen op een blog van iemand met kanker en gelijk heeft men! Abonneren op: Berichten (Atom).

erfelijkedrukneuropathie.blogspot.com

tintelend door 't leven met HNPP: december 2014

http://erfelijkedrukneuropathie.blogspot.com/2014_12_01_archive.html

Tintelend door 't leven met HNPP. Informatieve blog over HNPP, aangevuld met persoonlijke ervaringen. Parkeerkaart in Belgische steden. Maandag 22 december 2014. Via BBC-news : hoopvol bericht voor de toekomst , ook van kankerpatiënten. NHS DNA scheme to fight cancer and genetic diseases. Health editor, BBC News website. A new genetics project could help "unlock a series of secrets about devastating diseases", the NHS says. It is focusing on cancer and rare genetic diseases. Each with a different cause a...

erfelijkedrukneuropathie.blogspot.com

tintelend door 't leven met HNPP: Hulpadressen

http://erfelijkedrukneuropathie.blogspot.com/p/hulpadressen.html

Tintelend door 't leven met HNPP. Informatieve blog over HNPP, aangevuld met persoonlijke ervaringen. Parkeerkaart in Belgische steden. Waar kan je terecht? Testen of je HNPP hebt : via DNA-onderzoek in een lab van de unief , waar een centrum voor menselijke genetica is. Abonneren op: Berichten (Atom). Blog van Bibliotheek Ieper. Verslag leesgroep - 8 november 2016 : Dertig dagen (Verbeke). Jon's Slice Of Life. New Clinical reviews – full text articles via pubmed. Leven met polyneuropathie (en leukemie).

erfelijkedrukneuropathie.blogspot.com

tintelend door 't leven met HNPP: augustus 2013

http://erfelijkedrukneuropathie.blogspot.com/2013_08_01_archive.html

Tintelend door 't leven met HNPP. Informatieve blog over HNPP, aangevuld met persoonlijke ervaringen. Parkeerkaart in Belgische steden. Vrijdag 30 augustus 2013. CMT en HNPP zijn verwant, maar veel mensen weten niet waarvoor ze staan.weten niet wat er met je mis is . Dus keer op keer moet je het uitleggen. Bernadette toonde dit schitterend aan met onderstaand filmpje. Woensdag 14 augustus 2013. CMT en HNPP zijn verwant maar niet dezelfde aandoening. Woensdag 7 augustus 2013. I t is with great sadness tha...

erfelijkedrukneuropathie.blogspot.com

tintelend door 't leven met HNPP: oktober 2014

http://erfelijkedrukneuropathie.blogspot.com/2014_10_01_archive.html

Tintelend door 't leven met HNPP. Informatieve blog over HNPP, aangevuld met persoonlijke ervaringen. Parkeerkaart in Belgische steden. Woensdag 15 oktober 2014. Deze therapie bood men aan in het kuurhotel in Tsjechië, waar we toevallig gelogeerd waren deze zomer. Nu neem ik alvast vitamine B-12, maar dit gaat wellicht nog een stukje verder. Ik las op de FB-groep toch ook over iemand die met dergelijke injecties geholpen is. Abonneren op: Berichten (Atom). Blog van Bibliotheek Ieper. Jon's Slice Of Life.

erfelijkedrukneuropathie.blogspot.com

tintelend door 't leven met HNPP: vitamine b-12 injecties ?

http://erfelijkedrukneuropathie.blogspot.com/2014/10/vitamine-b-12-injecties.html

Tintelend door 't leven met HNPP. Informatieve blog over HNPP, aangevuld met persoonlijke ervaringen. Parkeerkaart in Belgische steden. Woensdag 15 oktober 2014. Deze therapie bood men aan in het kuurhotel in Tsjechië, waar we toevallig gelogeerd waren deze zomer. Nu neem ik alvast vitamine B-12, maar dit gaat wellicht nog een stukje verder. Ik las op de FB-groep toch ook over iemand die met dergelijke injecties geholpen is. Abonneren op: Reacties plaatsen (Atom). Blog van Bibliotheek Ieper.

erfelijkedrukneuropathie.blogspot.com

tintelend door 't leven met HNPP: september 2014

http://erfelijkedrukneuropathie.blogspot.com/2014_09_01_archive.html

Tintelend door 't leven met HNPP. Informatieve blog over HNPP, aangevuld met persoonlijke ervaringen. Parkeerkaart in Belgische steden. Zondag 14 september 2014. Zonder medicijnen lukt het niet meer. En die medicijnen zijn niet de minste :. The main medications recommended for neuropathic pain include:. 8211; this is also used for treatment of headaches. 8211; this is also used for treatment of bladder problems and depression. 8211; these are also used to treat epilepsy. Nog eens alles op een rijtje.

erfelijkedrukneuropathie.blogspot.com

tintelend door 't leven met HNPP: december 2013

http://erfelijkedrukneuropathie.blogspot.com/2013_12_01_archive.html

Tintelend door 't leven met HNPP. Informatieve blog over HNPP, aangevuld met persoonlijke ervaringen. Parkeerkaart in Belgische steden. Zondag 15 december 2013. Wat ik lees over ervaringen met pijn van mensen met hnpp, durf ik niet op mezelf toe te passen. Pijn doethet niet echt als ik geen gevoel heb in mijn voeten, als mijn vingers voor enkele weken "doof" blijven. Maar waar vandaan komt dan die pijn, die me al maanden halve nachten slaap bezorgt, die me berooft van bewegingsvrijheid? HNPP - Our Story.

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hnpp.blogspot.com

HNPP - Our Story

HNPP - Our Story. I wanted to start this blog to share our family's experience with HNPP. There is not a lot of information available so the more we can share the more we can help each other and help in the research process. We would love to hear from you too. - Our Family. Tuesday, June 10, 2014. MDA Website and HNPP. I wrote the following letter to the MDA in regards to their website:. I will let you know if I hear back or if anything changes on the website. Friday, June 6, 2014. In the second chapter ...

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HNPP Forum - Index

Hast du deine Aktivierungs E-Mail. August 17, 2015, 02:19:01 Vormittag. Informationen rund ums Forum - Platz für Wünsche, Anregungen und Sonstiges. In VERSCHOBEN: CMT Herbstta. Am Juli 31, 2014, 06:20:19 Vormittag. Hier können sich neue Benutzer vorstellen. In Antw:Ich stelle mich vor. Am August 12, 2015, 10:28:33 Vormittag. In GM 1 Antikörper (Ganglio. Am Dezember 02, 2014, 07:30:37 Nachmittag. Welche Neurologen könnt Ihr Empfehlen? In Antw:Dr. Auer-Grumbach i. Am September 05, 2014, 12:40:11 Nachmittag.

hnpp.info

Welcome to Hnpp UK

Comprehensive Information About HNPP. The CMT-UK International Website - info About HNPP and Other resources. HMSN - HNPP info at NDC, Washington University, St. Louis, USA. US National Library Of Medicine - Genetics Home Reference. GeneClinic HNPP review (05). HNPP:Recent Studies - PubMed. An International Hnpp Yahoo Email Group. HNPPHELP faceboo group (login required). Hereditary neuropathy and CMT Facebook Group - Membership Required. Charcot-Marie-Tooth Association US Forums. CMT and HNPP - Blogs.

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