hollyzzdavis.blogspot.com

Holly Daze

Thursday, June 2, 2016. Stanford MRI / NIRS Research. We are currently participating in a longitudinal 5 year study on girls with fragile X. T oday was the last day of the first research session. At Stanford. We had two main activities. To complete, the NIRS and an MRI. I'm sad to report that my fear came to reality and given a day to perseverate on the upcoming MRI Holly ended up having a panic attack and we only got 1 partial scan of the 3 needed. Earlier today we were successful in completing the NIRS.

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Thursday, June 2, 2016. Stanford MRI / NIRS Research. We are currently participating in a longitudinal 5 year study on girls with fragile X. T oday was the last day of the first research session. At Stanford. We had two main activities. To complete, the NIRS and an MRI. I'm sad to report that my fear came to reality and given a day to perseverate on the upcoming MRI Holly ended up having a panic attack and we only got 1 partial scan of the 3 needed. Earlier today we were successful in completing the NIRS.

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Holly Daze | hollyzzdavis.blogspot.com Reviews

https://hollyzzdavis.blogspot.com

Thursday, June 2, 2016. Stanford MRI / NIRS Research. We are currently participating in a longitudinal 5 year study on girls with fragile X. T oday was the last day of the first research session. At Stanford. We had two main activities. To complete, the NIRS and an MRI. I'm sad to report that my fear came to reality and given a day to perseverate on the upcoming MRI Holly ended up having a panic attack and we only got 1 partial scan of the 3 needed. Earlier today we were successful in completing the NIRS.

INTERNAL PAGES

hollyzzdavis.blogspot.com

1

Holly Daze: October 2013

http://hollyzzdavis.blogspot.com/2013_10_01_archive.html

Thursday, October 31, 2013. Little Pumpkin Patch - Video. This Halloween season really got away from us. Every weekend has been super busy and there has simply been too much to do. This year we were not able to make it out to the Patch in Livermore where we normally go. But I did promise Holly a pumpkin Patch. This little one is set up right next to Bay street and we have driven by several times. So on Tuesday I took Holly and we picked up a few pumpkins to carve before the season ends. When we got home ...

2

Holly Daze: September 2013

http://hollyzzdavis.blogspot.com/2013_09_01_archive.html

Monday, September 30, 2013. Happy Birthday Mira - 6/4 - Video. Swinging - http:/ youtu.be/NPaFRB5wOvU. Holly Swings at Mira's Birthday Party. Mira Jumps into Foam Pit - http:/ youtu.be/nloapXHuduU. Nervous and a little scared the first time, Brave Mira jumps into the Foam Pit. Alana Jumps into Foam Pit - http:/ youtu.be/SXJfzEINAWw. As Mira waits her turn she watches Alana take a big jump into the Foam Pit. Jumping Everywhere - http:/ youtu.be/OOXLFc8OYMY. Picture Time - http:/ youtu.be/TSlghUA cjA.

3

Holly Daze: October 2014

http://hollyzzdavis.blogspot.com/2014_10_01_archive.html

Friday, October 31, 2014. It's Lyra's 1st pumpkin carving. Good thing she did this before it was full of guts. Daddy takes the too off the first pumpkin. Can I eat this? Cleaning out the guts. But she gives it a try. So does she. Yum. This is your pumpkin Lyra. Ok so then let's stir this up. Holly starts to draw her pumpkin face. It's very serious work. But now it's time for more pumpkin guts. Check it out Lyra. Let me get my spoon. I'll just put this in my bowl for later. Do you want some sissy? It's Ha...

4

Holly Daze: March 2014

http://hollyzzdavis.blogspot.com/2014_03_01_archive.html

Monday, March 3, 2014. Posted by Vicki Davis. Subscribe to: Posts (Atom). Subscribe To Holly Daze. Article: Fragile X Girls, Development. Article: Math and Fragile X. California Academy of Sciences. East Bay Regional Center. EB Parent's of Kids with Special Need's Meet-up Group. Families for Early Autism Treatment. Minocycline Promising in Fragile X Syndrome. My Facebook Page (Vicki Davis). National Fragile X Site. Oakland Area Mom's group. Small Voice Early Intervention Program. Through the Looking Glass.

5

Holly Daze: June 2013

http://hollyzzdavis.blogspot.com/2013_06_01_archive.html

Saturday, June 29, 2013. Easter Egg Hunt and Fair with Mira. Posted by Vicki Davis. Subscribe to: Posts (Atom). Subscribe To Holly Daze. Easter Egg Hunt and Fair with Mira. Ballet Recital - Video. Easter Party at Chloes House - Video. Build - your own pizza dinner. A Day of Rest. Hollys Classmate Sofia Has a Birthday Party. Random Pictures from 2013. Play date with Ewan. Dinner with Friends at the Public Market - Video. Super Silly Music Show with Mira - Video. Ice Skating Parties and Playdates. HELLOHEL...

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fragilemom.blogspot.com

fragilemom: Asics - Try These Running Shoes on For Size

http://fragilemom.blogspot.com/2013/01/run-run-run.html

More Than a Mother of Three Children with Fragile X Syndrome. Monday, January 14, 2013. Asics - Try These Running Shoes on For Size. Okay, is it weird to adore shoes? Seriously, great shoes. I love the color! January 16, 2013 at 1:34 PM. Subscribe to: Post Comments (Atom). All Things are Possible. Codd Christmas Pic 2012. Other FX Blogs I Read. FXS A Day at A Time. It's All About Potential. It's Who I am. Life With My Xmen. Love and Survival with Fragile X. X Marks the Spot. Day to Day with Debra.

fragx.blogspot.com

???: November 2008

http://fragx.blogspot.com/2008_11_01_archive.html

Tuesday, November 25, 2008. Things I'm thankful for, some more serious than others, and not necessarily in order. My Lord and Saviour, Jesus Christ. My family, immediate, extended, even my in-laws are awesome. I could go on for days just on this one, but I won't, because it would cause me to miss turkey dinner. That reminds me.yes I'm thankful for dinner, and the turkey who gave it's life for us. And dressing (Yummmm! Sweet potato casserole, rolls, dessert.yuuummmmeee! My parents, for raising me right, a...

allaboutpotential.wordpress.com

Still My Baby | It's All About Potential

https://allaboutpotential.wordpress.com/2010/08/05/still-my-baby

It's All About Potential. Notes from the Journey. A Break →. August 5, 2010. Nathan is such a cuddly sort these days. Actually, he’s a bit of a cling-on. Hanging on me, hugging, rubbing, snuggling….it’s almost creeping me out. See, I don’t mind at home, but in public, having your 7 years old hang off your waist, is not so cool. I hate to discourage him, but I wonder at what age is it that PDAs with your mother are not okay. But, don’t call him a baby. He’s MUCH to big for that. August 5, 2010 at 2:43 pm.

allaboutpotential.wordpress.com

Fast & Painful | It's All About Potential

https://allaboutpotential.wordpress.com/2011/03/24/fast-painful

It's All About Potential. Notes from the Journey. March 24, 2011. If you’ve been following my random blogging, you know that we’ve been struggling with whether or not to try medication for Nathan. It has become painfully obvious that doing “everything we can” for him has to include medication. His “preference” is to have us go back to the pyschiastrist who originally dx Nathan and have him determine the first cycle. ARE YOU KIDDING ME? And Thursday next week, we should be on a medication trial. Fill in y...

allaboutpotential.wordpress.com

Morning Routines | It's All About Potential

https://allaboutpotential.wordpress.com/2012/09/12/morning-routines

It's All About Potential. Notes from the Journey. September 12, 2012. Poor Nathan. The bus comes to our house at 7:30 am this year, getting to school at 8:45 am It takes me 17 minutes to drive from home, so I can understand at least a 45 minute drive, which is what he had when he started school in Kindergarten. But an hour and 15 minutes? Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). Mama Needs 2 Rant.

allaboutpotential.wordpress.com

The True Gift | It's All About Potential

https://allaboutpotential.wordpress.com/on-earning-the-true-gift

It's All About Potential. Notes from the Journey. I received this during our struggle to find a diagnosis for Nathan. I hope it brings comfort to you as it did to me. Editors note: Erma Bombeck is on vacation. She left behind a few of the “classics” most often requested by readers. This one first appeared in 1980. Somehow I visualize God hovering over Earth selecting his instruments for propagation with great care and deliberation. As he observes, he instructs his angels to write in a giant ledger. God s...

allaboutpotential.wordpress.com

It's All About Potential | Nathan's Journey, A Life Accented By Autism | Page 2

https://allaboutpotential.wordpress.com/page/2

It's All About Potential. Notes from the Journey. Newer posts →. July 13, 2010. You have to know that any conversation that starts with Hey, Mom…………is going to be an interesting one. It could be deeply revealing, like:. Hey Mom, did you know that I think you are awesome? Or a little nasty like. Hey Mom, can you get me a kleenex? Hey Mom, come look at this….oh and bring a kleenex…. Or, as I hear in my office, the teenagers breezing in with. But you know what? Hey Mom, can I have just one more hug? The boy...

fragilexawareness.com

Fragile X Blogs | Fragile X AwarenessFragile X Awareness

http://www.fragilexawareness.com/fragile-x-blogs

Spreading Awareness of Fragile X Syndrome and Associated Conditions. Skip to primary content. Skip to secondary content. The FXS Daily News. Building on the Good. FXS Girl, SLP Mom. Just a Bunch of Nothin. 8211; FB -Suzanne Balvanz. Kristie’s Life with Her X Men. Life With My X-Men. Love and Survival with Fragile X. Mrs Rogers’ Neighborhood. My Fragile X Boy. One Day At A Time. Our Fragile X Story. The National Fragile X Foundation Blog. The X Factor After Little Becomes Big. June 4, 2013 at 8:24 pm.

fragilemom.blogspot.com

fragilemom: January 2013

http://fragilemom.blogspot.com/2013_01_01_archive.html

More Than a Mother of Three Children with Fragile X Syndrome. Tuesday, January 22, 2013. Small, Fuzzy, DEAD. If you're a huge lover of nasty, disease-infested critters.Do Not Read Ahead. You ever have those things that you just can't get rid of? Well, I had my moment today. Finally, I decided to use peanut butter. The little sucker can't just pull peanut butter off like a piece of cheese, right? Each morning I look under the sink and on the floor in the pantry to see if there's a body. This morning t...

fragilemom.blogspot.com

fragilemom: April 2012

http://fragilemom.blogspot.com/2012_04_01_archive.html

More Than a Mother of Three Children with Fragile X Syndrome. Saturday, April 28, 2012. I absolutely cannot believe it. I know we always say our kids grow up so fast. Well, it's true. Yes, I know he's only 5, but he's my baby. That means the last one to turn 5. I really just want to freeze him, as is. Period. Last night Benjamin had his 'friends' birthday party. So much fun! Happy birthday my little Boo-Boo! Tuesday, April 10, 2012. What do I hate about our area of Texas? When I got the full story from A...

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hollyzzdavis.blogspot.com

Holly Daze

Thursday, June 2, 2016. Stanford MRI / NIRS Research. We are currently participating in a longitudinal 5 year study on girls with fragile X. T oday was the last day of the first research session. At Stanford. We had two main activities. To complete, the NIRS and an MRI. I'm sad to report that my fear came to reality and given a day to perseverate on the upcoming MRI Holly ended up having a panic attack and we only got 1 partial scan of the 3 needed. Earlier today we were successful in completing the NIRS.

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Holly Zamira Zigmont Davis. Was born 3/11/08 at 1:13 AM. 8lbs 19.49 inches. More Photos are on Vicki's Photo site and I (oma) will be posting more photo as I get them. Http:/ www.flickr.com/photos/vczdavis.

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Thursday, 8 March 2012. Sorry for the lack of blogging recently! People kept telling me I had to hurry up and do a blog so here it is! In a pitiful attempt to get into shape for my sister's wedding and get a beach body for my holiday to Magaluf with the girls, I decided to take advantage of my gym membership and actually go. It turned out I do actually enjoy the gym. ( Obviously not while I'm there - that would be faintly ridiculous). The people who are already fit - why are they there? It is people like...