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hydrobabies.blogspot.com

hydrobabies

A blog about raising twins with special needs: prematurity, hydrocephalus and CP.

http://hydrobabies.blogspot.com/

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A blog about raising twins with special needs: prematurity, hydrocephalus and CP.
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7 the beginning
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hydrobabies | hydrobabies.blogspot.com Reviews

https://hydrobabies.blogspot.com

A blog about raising twins with special needs: prematurity, hydrocephalus and CP.

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hydrobabies.blogspot.com hydrobabies.blogspot.com
1

hydrobabies: November 2014

http://www.hydrobabies.blogspot.com/2014_11_01_archive.html

Life with our 25 weekers. How i became a princess. One day I was driving the boys home from their babi's (my mom) house and we were talking about their day at school. Aiden mentioned something was pretty, and since he used the word in the wrong context I decided to turn our conversation into a teaching point. Anyway, instead of answering my question he pointed at me with this gigantic smile and proclaimed, half asking, "You're a princess? And that, my friends, is how I became a princess. Tomorrow we'll g...

2

hydrobabies: it doesn't define us

http://www.hydrobabies.blogspot.com/2012/07/it-doesnt-define-us.html

Life with our 25 weekers. It doesn't define us. A word that, 10 months ago, meant nothing to me. Today, I think about this word a hundred times a day. While I will raise my children to know that this condition doesn't define them, I used it in the title of my blog for a very important reason. I want others to find us. At a time when I had no clue what the future held for us, I searched and searched for a glimpse of what's it's like to have a child with Hydrocephalus, but I found next to nothing. Dear Bab...

3

hydrobabies: cerebral palsy

http://www.hydrobabies.blogspot.com/2013/01/cerebral-palsy.html

Life with our 25 weekers. While cerebral palsy (pronounced seh-ree-brel pawl-zee) is a blanket term commonly referred to as “CP” and described by loss or impairment of motor function, cerebral palsy is actually caused by brain damage. The brain damage is caused by brain injury or abnormal development of the brain that occurs while a child’s brain is still developing — before birth, during birth, or immediately after birth. Today is January 17th. Today, Ryan was diagnosed with CP. When I was put on hospit...

4

hydrobabies: January 2014

http://www.hydrobabies.blogspot.com/2014_01_01_archive.html

Life with our 25 weekers. On this very day. We are so proud of you each and every day. You are truly a blessing and have changed our lives in more ways than one. Diclaimer: Most of the video is cute, baby kisses. Some of it contains a child whining. I apologize in advance. Seems as though throwback Thursday is a phrase that will soon be coined as an official word in Webster's dictionary. Oh no wait, it's a phrase, not a word. So that won't work. So what, wikipedia or something? And then there was sleep.

5

hydrobabies: again and again

http://www.hydrobabies.blogspot.com/2015/01/again-and-again.html

Life with our 25 weekers. Here we are on that hospital flow again. Aiden's been really sick lately and so we finally brought him to the ER today. Mainly to check for a shunt malfunction. 14 hours later and we're shacked up in a private suite (it's the little things, right? At this point we know it's not the shunt. Poor munchkin is not happy 😞. Subscribe to: Post Comments (Atom). From the fullness of grace, we have received one blessing after another" John 1:16. It doesn't define us.

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project26weekpreemies.wordpress.com project26weekpreemies.wordpress.com

Additional Resources |

https://project26weekpreemies.wordpress.com/additional-resources

Looking for other preemie resources? Check these websites out:. Real Advice from Preemie Moms. Life after NICU is a support group for parents at all stages of the NICU experience, from pre-delivery until long after heading home… because the journey doesn’t end on discharge day. Our site. This blog was created in efforts to raise awareness about prematurity and all things encompassing life in/after NICU. We welcome anyone to share stories and insight, especially dads. Check these blogs out:. You are comme...

preemiemomblog.blogspot.com preemiemomblog.blogspot.com

Preemie Resource Blog: September 2012

http://preemiemomblog.blogspot.com/2012_09_01_archive.html

Wednesday, September 26, 2012. RSV and Synagis FAQ. Every year, as we head into the fall, parents being gearing up for the upcoming cold and flu season. Parents of preemies and other babies with chronic diseases have another virus they need to be concerned about: RSV. Respiratory Syncytial Virus (RSV) is an infection that can cause bronchiolitis and pneumonia in very young infants, particularly those under the age of 1. RSV is transmitted through similar ways as a cold. Avoid those who are sick, and ask ...

ourvalentinesdaysurprise.blogspot.com ourvalentinesdaysurprise.blogspot.com

Our Valentine's Day Surprise: June 2013

http://ourvalentinesdaysurprise.blogspot.com/2013_06_01_archive.html

One IVF, Two Embryos, Two Heartbeats, Two Micro Preemies turned Toddlers.Faith, Courage and everything in between. Monday, June 24, 2013. DIY Gel Nails At Home. Apparently there is also enough of the gel/activator to do a fill in or two too - so we'll see how the next few days go and if I make it to the fill in stage. If think at that point I will likely use a color polish on them too. Saturday, June 22, 2013. I am a day late but yesterday was National ASK Day. Friday, June 21, 2013. How I am feeling:.

ourvalentinesdaysurprise.blogspot.com ourvalentinesdaysurprise.blogspot.com

Our Valentine's Day Surprise: December 2013

http://ourvalentinesdaysurprise.blogspot.com/2013_12_01_archive.html

One IVF, Two Embryos, Two Heartbeats, Two Micro Preemies turned Toddlers.Faith, Courage and everything in between. Thursday, December 5, 2013. After 2.5 years of therapy anywhere from once to three or more times a week, we are done. That chapter is closed. The evaluators could not say enough positive things about her development. We've once again been reminded that we are one of the lucky ones. Addison falls developmental in line with the average peers her age! Subscribe to: Posts (Atom). Just your typic...

ourvalentinesdaysurprise.blogspot.com ourvalentinesdaysurprise.blogspot.com

Our Valentine's Day Surprise: November 2013

http://ourvalentinesdaysurprise.blogspot.com/2013_11_01_archive.html

One IVF, Two Embryos, Two Heartbeats, Two Micro Preemies turned Toddlers.Faith, Courage and everything in between. Sunday, November 17, 2013. World Prematurity Awareness Day. I have not forgotten. I will never forget. We are 1 in 8. By now if you know me, the hubs, have met the twins, our family or read this blog; you know I am the proud mommy of 26 weekers who are nearly 3 years old. Subscribe to: Posts (Atom). Our Valentine's Day Surprise. Promote Your Page Too. Just your typical 20 something stay at h...

ourvalentinesdaysurprise.blogspot.com ourvalentinesdaysurprise.blogspot.com

Our Valentine's Day Surprise: World Prematurity Awareness Day

http://ourvalentinesdaysurprise.blogspot.com/2013/11/world-prematurity-awareness-day.html

One IVF, Two Embryos, Two Heartbeats, Two Micro Preemies turned Toddlers.Faith, Courage and everything in between. Sunday, November 17, 2013. World Prematurity Awareness Day. I have not forgotten. I will never forget. We are 1 in 8. By now if you know me, the hubs, have met the twins, our family or read this blog; you know I am the proud mommy of 26 weekers who are nearly 3 years old. Subscribe to: Post Comments (Atom). Our Valentine's Day Surprise. Promote Your Page Too. Just your typical 20 something s...

ourvalentinesdaysurprise.blogspot.com ourvalentinesdaysurprise.blogspot.com

Our Valentine's Day Surprise: April 2015

http://ourvalentinesdaysurprise.blogspot.com/2015_04_01_archive.html

One IVF, Two Embryos, Two Heartbeats, Two Micro Preemies turned Toddlers.Faith, Courage and everything in between. Wednesday, April 29, 2015. Addison - 4 year old update. Gah  I cannot believe the twins are four.FOUR. I seriously don't know how that happened. Four years ago we were praying and hoping and wondering if we'd make it this far. Good news is, we are and we are thriving. Has she made huge strides? Has she narrowed the gap between where she is and where she should be? After being on the wait lis...

ourvalentinesdaysurprise.blogspot.com ourvalentinesdaysurprise.blogspot.com

Our Valentine's Day Surprise: November 2014

http://ourvalentinesdaysurprise.blogspot.com/2014_11_01_archive.html

One IVF, Two Embryos, Two Heartbeats, Two Micro Preemies turned Toddlers.Faith, Courage and everything in between. Friday, November 28, 2014. Something to be Thankful for. Last year around this time, I feel like I was in a totally different place. This year I felt like I was really LIVING, present and in the moment. Hubs was on call for work too and while he did get several phone calls that interrupted dinner a few times, he managed to escape having to go back out, so we got to enjoy our meal as a family.

ourvalentinesdaysurprise.blogspot.com ourvalentinesdaysurprise.blogspot.com

Our Valentine's Day Surprise: Breaking the Silence

http://ourvalentinesdaysurprise.blogspot.com/2014/11/breaking-silence.html

One IVF, Two Embryos, Two Heartbeats, Two Micro Preemies turned Toddlers.Faith, Courage and everything in between. Thursday, November 20, 2014. I cannot believe it's been nearly a year since I've blogged about anything. Needless to say a lot has happened over that course of time. After things settled down there, I personally began to go through a very dark time. And then, the panic attacks began. When my anxiety first spiked, I itched from head to toe. Then one day I was on the treadmill at the gym a...

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My Hydrocephalus Baby

A place to talk about the joys and challenges of raising my miracle baby! Avery was born with congenital hydrocephalus in February 2006 and was diagnosed with spastic diplegic cerebral palsy when she was 14 months old. Monday, September 21, 2009. So I got a couple of messages from people wondering where I had disappeared to. I am still blogging! I'm just not doing it here anymore. So if you have been waiting around for me to post something here, please follow me over to my other blog! Encouraged by her m...

hydrobabies.blogspot.com hydrobabies.blogspot.com

hydrobabies

Life with our 25 weekers. Here we are on that hospital flow again. Aiden's been really sick lately and so we finally brought him to the ER today. Mainly to check for a shunt malfunction. 14 hours later and we're shacked up in a private suite (it's the little things, right? At this point we know it's not the shunt. Poor munchkin is not happy &#55357;&#56862;. Subscribe to: Posts (Atom). From the fullness of grace, we have received one blessing after another" John 1:16. It doesn't define us.

hydrobad.blogspot.com hydrobad.blogspot.com

Grains of Sand

No man who bothers about originality will ever be original." - C.S. Lewis. Thursday, August 7, 2014. Now, I want to move on to our characteristics. What types of characteristics do people display in social settings? It's simple; being cordial, intelligent, and quite welcoming. You will never find someone being a jerk [unless they're actual jerks]. Why is that? Let's move on. What about this notion of chasing 'perfection'? That is the beauty of being a human being. We have been given the gift of feeli...

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Hydro Bad – Smoke W**D Everyday

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