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Hydrocephalus Support

Mon, May. 14th, 2012, 01:10 pm. Finally went to the neurologist at the Headache Clinic here. As referenced in the last entry. I've been having these ridiculously painful headaches. They've basically gone away, but I went to the neurologist anyway, since it took a month and a half to get in. Figured out what it was: "Low-pressure headache". Has no pain nerves, but the meninges do definitely have them, and the *bonk* of my brain into the bottom of my head may be the cause of the pain. EDIT: also - the prev...

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Hydrocephalus Support | hydrocephalus.livejournal.com Reviews
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Mon, May. 14th, 2012, 01:10 pm. Finally went to the neurologist at the Headache Clinic here. As referenced in the last entry. I've been having these ridiculously painful headaches. They've basically gone away, but I went to the neurologist anyway, since it took a month and a half to get in. Figured out what it was: Low-pressure headache. Has no pain nerves, but the meninges do definitely have them, and the *bonk* of my brain into the bottom of my head may be the cause of the pain. EDIT: also - the prev...
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Hydrocephalus Support | hydrocephalus.livejournal.com Reviews

https://hydrocephalus.livejournal.com

Mon, May. 14th, 2012, 01:10 pm. Finally went to the neurologist at the Headache Clinic here. As referenced in the last entry. I've been having these ridiculously painful headaches. They've basically gone away, but I went to the neurologist anyway, since it took a month and a half to get in. Figured out what it was: "Low-pressure headache". Has no pain nerves, but the meninges do definitely have them, and the *bonk* of my brain into the bottom of my head may be the cause of the pain. EDIT: also - the prev...

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hydrocephalus.livejournal.com hydrocephalus.livejournal.com
1

Odd symptoms -- shunt malfunction? - Hydrocephalus Support

https://hydrocephalus.livejournal.com/44562.html

Mon, Apr. 16th, 2012, 12:56 pm. Odd symptoms - shunt malfunction? I've been pretty miraculously lucky with my shunt, but I think I miiiiight be having the beginnings of a malfunction. Shunt first put in when I was 9 months old, that one was good for 14 years. Revised when I was 15, I'm 31 now. Revision was just the distal section, I still have the same big-gung-ho-1980s ventricular catheter. In 2008, there was this stretch of headaches. That went on for like, two months. Advil or Tylenol handle it, but I...

2

Success! And possibly further proof that doctors do not read histories - Hydrocephalus Support

https://hydrocephalus.livejournal.com/41885.html

Tue, Dec. 8th, 2009, 03:05 pm. And possibly further proof that doctors do not read histories. My Neurosurgeon's office in CA called me back and said the doctor wanted to see me. The receptionist at the office of my Neuro up here wanted me to call my GP. Yes, I know doctors view hiccups as a frivolous thing and that neuro had only seen me once, but still. He's talked to my other neuro and supposedly has my history). Wed, Dec. 9th, 2009 12:21 am (UTC). Wed, Dec. 9th, 2009 01:24 am (UTC).

3

Getting hungry - Hydrocephalus Support

https://hydrocephalus.livejournal.com/41190.html

Tue, Aug. 18th, 2009, 04:57 pm. When you get hungry, do you usually feel hungry? You know, that rumbling in the tummy, empty belly feeling. Or do you skip all that and go straight to being cranky, light headed, maybe slightly dizzy/nauseous and not thinking clearly? Sat, Sep. 12th, 2009 04:01 am (UTC).

4

weird symptoms--what do y'all think? - Hydrocephalus Support

https://hydrocephalus.livejournal.com/36662.html

Wed, Sep. 10th, 2008, 10:50 am. Weird symptoms- what do y'all think? And there's the rushing I can hear in my ears when I bend over- seems all of this stuff should be related, somehow. my ears are NOT NORMAL. I've had a lot of work done on them over the years, and so that's perhaps unrelated. I have yet to go see a neurologist, neurosurgeon for this stuff, since I recently moved and haven't gotten set up with doctors yet. Wed, Sep. 10th, 2008 04:06 pm (UTC). My shunt was actually exactly 12 yrs old too!

5

Hi! - Hydrocephalus Support

https://hydrocephalus.livejournal.com/43694.html

Thu, Feb. 3rd, 2011, 10:29 pm. Just wanted to poke my head in since the community has been quiet. How's everyone been doing? I know I haven't been posting much in awhile, but I'm always here if you guys need me. :). Fri, Feb. 4th, 2011 11:54 pm (UTC). Sat, Feb. 5th, 2011 02:06 am (UTC). I just realized the other day that May 30 will mark four years since my last surgery. Hooray! Hope everyone else around here is feeling well too.

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Hydrocephalus Support

Mon, May. 14th, 2012, 01:10 pm. Finally went to the neurologist at the Headache Clinic here. As referenced in the last entry. I've been having these ridiculously painful headaches. They've basically gone away, but I went to the neurologist anyway, since it took a month and a half to get in. Figured out what it was: "Low-pressure headache". Has no pain nerves, but the meninges do definitely have them, and the *bonk* of my brain into the bottom of my head may be the cause of the pain. EDIT: also - the prev...

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