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INTRODUCTION TO I-CAH | I-CAH Registry

The International-CAH (I-CAH) network is an initiative to improve the clinical management of the rare disease Congenital Adrenal Hyperplasia.

http://www.i-cah.org/

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PAGE TITLE
INTRODUCTION TO I-CAH | I-CAH Registry | i-cah.org Reviews
<META>
DESCRIPTION
The International-CAH (I-CAH) network is an initiative to improve the clinical management of the rare disease Congenital Adrenal Hyperplasia.
<META>
KEYWORDS
1 i-cah
2 network
3 i-cah network
4 executive
5 read
6 research
7 adrenal
8 clinical
9 patients
10 registry
CONTENT
Page content here
KEYWORDS ON
PAGE
for patients,for physicians,registry,news,welcome to i cah,introduction to i cah,i cah network,latest news,new research studies,i cah,i cah longitudinal module
CONTENT-TYPE
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INTRODUCTION TO I-CAH | I-CAH Registry | i-cah.org Reviews

https://i-cah.org

The International-CAH (I-CAH) network is an initiative to improve the clinical management of the rare disease Congenital Adrenal Hyperplasia.

INTERNAL PAGES

i-cah.org i-cah.org
1

NEWS | I-CAH Registry

http://www.i-cah.org/news

Read about all the latest news and events happening at I-CAH here. If you have any questions or are looking for a particular event please contact us. Two new studies are underway that will be supported by the newly developed longitudinal module in the I-CAH registry:  Management of Fludrocortisone and salt therapy in 0-3 year old children with congenital adrenal hyperplasia (CAH) (Claahsen, . I-CAH project group meets at ESPE. I-CAH longitudinal module launched. Launch of I-CAH Network Website. Sheffield...

2

TAIN Reports Successful Infacort® Trial | I-CAH Registry

http://www.i-cah.org/news/tain-reports-successful-infacort-trial

TAIN Reports Successful Infacort Trial. TAIN Reports Successful Infacort Trial. Posted on Wednesday, 04/Dec/2013. Cardiff, UK. The TAIN Consortium funded by the European Commission (FP7-HEALTH No: 281654) announced that a clinical trial of Infacort. Immediate release hydrocortisone granules for paediatric use) successfully achieved its primary outcome of demonstrating bioequivalence versus immediate release hydrocortisone tablets. Infacort.

3

FOR PATIENTS | I-CAH Registry

http://www.i-cah.org/for-patients

I-CAH seeks to support patients, children and parents by providing information, support and links, as well as developing research that will underpin improvements in the treatment of Congenital Adrenal Hyperplasia. I-CAH patient information sheet (child). I-CAH patient information sheets (adult). Congenital Adrenal Hyperplasia - Living with CAH Support Group (UK). Congenital Adrenal Hyperplasia adult information booklet - Dr G. Conway. CAH Support Group Links. CAH is Us - Parent and Patient support group.

4

FOR PHYSICIANS | I-CAH Registry

http://www.i-cah.org/for-physicians

I-CAH seeks to include physicians in research to optimise the care of patients with Congenital Adrenal Hyperplasia. I-CAH would encourage physicians to enrol their patients in the I-CAH Registry and participate in research. This website provides relevant links to the I-CAH Registry. And a list of recent publications. Merke DP, Bornstein SR. Congenital adrenal hyperplasia. Lancet. 2005;365(9477):2125-36. Auchus RJ, Witchel SF, Leight KR, Aisenberg J, Azziz R, Bachega TA, et al. Guidelines for the Deve...

5

Launch of I-CAH Network Website | I-CAH Registry

http://www.i-cah.org/news/launch-of-i-cah-network-website

Launch of I-CAH Network Website. Launch of I-CAH Network Website. Posted on Monday, 10/Nov/2014. Sheffield, UK. The I-CAH Network website has now been launched. The I-CAH Network is an initiative to improve the clinical management of Congenital Adrenal Hyperplasia (CA.

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INTRODUCTION TO I-CAH | I-CAH Registry

The International-CAH (I-CAH) network is an initiative to improve the clinical management of the rare disease Congenital Adrenal Hyperplasia. With a newly-created I-CAH Registry as its centrepiece, the initiative also focuses on providing information to patients and clinicians and developing research to optimise healthcare. The I-CAH Registry delivers a means of connecting clinical and research centres from around the world within a Virtual Research Environment (VRE) and will underpin research in...TAIN ...

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