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CONTACTS AT IBMPFD.COM

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David Sweetman

P.O.●●●● 189

D●r , Nevada, 89010

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001.7●●●●●23359
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David Sweetman

P.O.●●●● 189

D●r , Nevada, 89010

US

001.7●●●●●23359
d-●●●●●●●●●@att.net

View this contact

n/a

David Sweetman

P.O.●●●● 189

D●r , Nevada, 89010

US

001.7●●●●●23359
d-●●●●●●●●●@att.net

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Index | ibmpfd.com Reviews
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1 ibmpfd
2 in blue
3 survey forms
4 please
5 research projects
6 references
7 at uci
8 links
9 approved treatments
10 for caregivers
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Index | ibmpfd.com Reviews

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ibmpfd.com ibmpfd.com
1

New Page 1

http://www.ibmpfd.com/Genetic%20Testing.htm

The following link is to the Gene Tests center associated with UC Irvine that can provide genetic testing for the known mutations in VCP gene. The Patient Information. Paper provides specific information on how to obtain DNA testing for IBMPFD, as well as some information on symptoms, inheritance, and other aspects of this genetic disease. Information that may be useful from the Mitomed web site include:. IBMPFD Educational Brochures for Patients and Families. For Non-Genetics Health Care Professionals.

2

New Page 1

http://www.ibmpfd.com/references.htm

VCP evolved very early in the development of animal life forms. The following chart (excerpted from a paper below) illustrates the many functions of VCP; thus, the difficulty in finding treatments for IBMPFD, but the importance of understanding VCP for a variety of other medical effects, e.g., other diseases, aging, some cancers. The following are references that can be accessed by clicking on the associated link (i.e., the title):. This is the ENMC Impact Report for 2015. Giles D. J. Watts. HIBM Researc...

3

New Page 1

http://www.ibmpfd.com/equipment.htm

There are many different kinds of accessories and equipment that can help both the care-giver and the affected person cope with many of the difficulties IBMPFD presents. Obtaining funding assistance for many accessories is available; however, there is often a lot of paperwork involved. The article from MDA Quest magazine The Best Offense is a GOOD DEFENSE. Provides some tips and suggestions to facilitate the process. Spin Life ( http:/ www.spinlife.com/. Medicaleshop ( http:/ www.medicaleshop.com/. The f...

4

Survey Forms

http://www.ibmpfd.com/survey_forms.htm

Survey form identifies a number of symptoms of IBMPFD. Completing the form allows researchers to establish a data base to understand rates of degeneration and other factors. The completed form may either be directly e-mailed to Dr. Weihl and Dr. Kimonis; or may be printed an mailed. The IBMPFD Quality of Life. The mailing addresses are:. Conrad C. Weihl MD/PhD Clinical Instructor Washington University School of Medicine. Department of Neurology 660 S. Euclid Ave. St Louis, MO 63110. Virginia Kimonis, MD.

5

New Page 1

http://www.ibmpfd.com/Caregivers.htm

Caregivers are requested to share their experiences with others by sending me information to add to this website. This page is a work in progress so suggestions for contents are needed and most welcome. Since IBMPFD is adult onset, many of those affected will be able to use Medicare. Medicare Caregivers. Web site provides information for caregivers regarding use of Medicare, care options, and financial issues. 10 Essential Tips for Caregivers. The Family Caregiver Alliance. The Strength for Caring. A lis...

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About Me

http://www.quadd.info/aboutme.htm

Welcome to the QuadD Web site! This web site is intended to provide access to information about Donna and David's Desert Domain (QuadD), including pictures, renewable energy information, and our past travels. Hello, my name is David Sweetman and I am retired in Dyer, NV. And as an ET Reactor Operator (SS qualified aboard the nuclear powered submarine, USS Kamehameha SSBN-642 http:/ www.hullnumber.com/SSBN-642. After the Navy, my major jobs were as a plant operator at coal/natural gas and nuclear power pl...

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Index

Inclusion Body Myopathy associated with. Paget's disease of bone and Frontotemporal Dementia. Click on the Subject (. To Link to these Items:. Use the linked survey form page to provide research information. One form for symptoms description has an embedded link to e-mail to Drs. Kimonis and Weihl. Another form for Quality of Life has an embedded link to Dr. Kimonis. Either form may be printed and mailed. Active research projects needing participants. A list of substances that have helped me may help oth...

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