idfcommonground.org

IDF Common Ground › Log In

IDF Common Ground is a private social community created exclusively for teens living with primary immunodeficiencies (PI). Find people with similar experiences living with PI. Compare treatments and symptoms, and ask questions in the IDF discussion forum, group forums and chat rooms. Share your experiences through forum posts, pictures, videos and more. Benefit from a network of others who understand. Only registered and logged in users are allowed to view this site. Please log in now.

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Immune Deficiency Foundation

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Immune Deficiency Foundation

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kb●●●●●@primaryimmune.org

View this contact

Immune Deficiency Foundation

Kim Biscoe

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To●●on , MD, 21204

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kb●●●●●@primaryimmune.org

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IDF Common Ground › Log In | idfcommonground.org Reviews

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IDF Common Ground is a private social community created exclusively for teens living with primary immunodeficiencies (PI). Find people with similar experiences living with PI. Compare treatments and symptoms, and ask questions in the IDF discussion forum, group forums and chat rooms. Share your experiences through forum posts, pictures, videos and more. Benefit from a network of others who understand. Only registered and logged in users are allowed to view this site. Please log in now.

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IDF Common Ground › Log In | idfcommonground.org Reviews

https://idfcommonground.org

IDF Common Ground is a private social community created exclusively for teens living with primary immunodeficiencies (PI). Find people with similar experiences living with PI. Compare treatments and symptoms, and ask questions in the IDF discussion forum, group forums and chat rooms. Share your experiences through forum posts, pictures, videos and more. Benefit from a network of others who understand. Only registered and logged in users are allowed to view this site. Please log in now.

LINKS TO THIS WEBSITE

livingwithcgd.org

Publications

http://www.livingwithcgd.org/resources/publications

Emotional, Social & Family Life. Coordinating Your Child’s Healthcare. Family & Friends. CGD and Attending School. Passing CGD on to Your Children. For Parents of Young Adults with CGD. IDF Young Adult Program. IDF Reel Stories of CGD. IDF ePHR & PI CONNECT. How You Can Help. About Living with CGD. The Immune Deficiency Foundation (IDF) produces a variety of educational materials for patients with primary immunodeficiency diseases (PI) and for the healthcare professionals who care for them.

livingwithcgd.org

For Parents of Young Adults with CGD

http://www.livingwithcgd.org/life-with-cgd/young-adults/for-parents-of-young-adults-with-cgd

Emotional, Social & Family Life. Coordinating Your Child’s Healthcare. Family & Friends. CGD and Attending School. Passing CGD on to Your Children. For Parents of Young Adults with CGD. IDF Young Adult Program. IDF Reel Stories of CGD. IDF ePHR & PI CONNECT. How You Can Help. About Living with CGD. For Parents of Young Adults with CGD. For Parents of Young Adults with CGD. Now that your child is here, you may be asking: Have I done enough? Will everything be OK? It is the goal of every parent to raise a ...

idfscidnewbornscreening.org

National News: Study Findings Support IDF SCID Newborn Screening Campaign | IDF SCID Newborn Screening

http://idfscidnewbornscreening.org/national-news-study-findings-support-idf-scid-newborn-screening-campaign

IDF SCID Newborn Screening. The Immune Deficiency Foundation's Blog for Severe Combined Immunodeficiency Newborn Screening. National News: Study Findings Support IDF SCID Newborn Screening Campaign. Today, The New England Journal of Medicine. Published results of stem cell transplants in infants with Severe Combined Immune Deficiency (SCID), noting the excellent survival among those diagnosed and treated early. This article resulted in national media coverage in The Wall Street Journal. You may use these.

livingwithcgd.org

IDF Young Adult Program

http://www.livingwithcgd.org/life-with-cgd/young-adults/idf-young-adult-program

Emotional, Social & Family Life. Coordinating Your Child’s Healthcare. Family & Friends. CGD and Attending School. Passing CGD on to Your Children. For Parents of Young Adults with CGD. IDF Young Adult Program. IDF Reel Stories of CGD. IDF ePHR & PI CONNECT. How You Can Help. About Living with CGD. IDF Young Adult Program. IDF Young Adult Program. IDF Young Adult Weekends. Tips to Manage Your Health. Advice about Friends, Dating and More. Your Education and Career. IDF holds biennial National Conferences.

livingwithcgd.org

Teens and Parents

http://www.livingwithcgd.org/life-with-cgd/teens-and-parents

Emotional, Social & Family Life. Coordinating Your Child’s Healthcare. Family & Friends. CGD and Attending School. Passing CGD on to Your Children. For Parents of Young Adults with CGD. IDF Young Adult Program. IDF Reel Stories of CGD. IDF ePHR & PI CONNECT. How You Can Help. About Living with CGD. Much of the parental tips for children living with CGD will apply to teens, with the understanding that new issues arise at this age, some of their new desires may include wanting to:. It is important to note ...

livingwithcgd.org

Children and Parents

http://www.livingwithcgd.org/life-with-cgd/children-and-parents

Emotional, Social & Family Life. Coordinating Your Child’s Healthcare. Family & Friends. CGD and Attending School. Passing CGD on to Your Children. For Parents of Young Adults with CGD. IDF Young Adult Program. IDF Reel Stories of CGD. IDF ePHR & PI CONNECT. How You Can Help. About Living with CGD. Helping Your Child Understand CGD. Infants and Toddlers (ages 0-2). Preschool Children (ages 3-4). Preschool children are ready to begin to be independent and eager to make choices. They may understand tha...

idfephr.org

PHR

https://www.idfephr.org/AboutPIConnect.aspx

End of top navigation. Facebook (opens in a new window). Twitter (opens in a new window). In (opens in a new window). Be a Part of Research! An added benefit for users of IDF ePHR is the opportunity to be a part of research by consenting into PI CONNECT, the new IDF Patient-Powered Research Network. PCORI envisions PCORnet to be a secure, national data network that improves the speed, efficiency, and use of patient-centered comparative effectiveness research. Share Your Research Ideas. You can feel great...

primaryimmune.org

THINK ZEBRA! | Immune Deficiency Foundation

http://primaryimmune.org/awareness/think-zebra

Please Correct the Following Form Errors. President and Founder's Message. IDF Board of Trustees. IDF Staff Management Team. IDF Medical Advisory Committee. IDF Nurse Advisory Committee. Core Service Corporate Sponsors. Learn About Primary Immunodeficiencies. What Are Primary Immunodeficiencies? There are more than 300 primary immunodeficiency diseases recognized by the World Health Organization. Read about specific disease types. Stem Cell and Gene Therapy. Manufacturers and Assistance Programs. Three d...

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idfcommonground.org

IDF Common Ground › Log In

IDF Common Ground is a private social community created exclusively for teens living with primary immunodeficiencies (PI). Find people with similar experiences living with PI. Compare treatments and symptoms, and ask questions in the IDF discussion forum, group forums and chat rooms. Share your experiences through forum posts, pictures, videos and more. Benefit from a network of others who understand. Only registered and logged in users are allowed to view this site. Please log in now.

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