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Living with NEMO | A primary immunodeficiency

A primary immunodeficiency

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Living with NEMO | A primary immunodeficiency | immunedeficientboy.wordpress.com Reviews
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A primary immunodeficiency
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Living with NEMO | A primary immunodeficiency | immunedeficientboy.wordpress.com Reviews

https://immunedeficientboy.wordpress.com

A primary immunodeficiency

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Lights, camera, action | Living with NEMO

https://immunedeficientboy.wordpress.com/2015/07/18/lights-camera-action

Lights, camera, action. July 18, 2015. The most exciting thing that has occurred is that the transmission date for the BBC documentary on Great Ormond Street that we were filmed for was confirmed. July 14th, BBC 2 at 9pm. We have been involved in lots of publicity to help raise awareness of it and of course the need for donors! Herbie can’t quite fathom seeing himself in papers and TV listings magazines! He asked me the other day “why am I in the paper again? Do people like me? School is now out for summ...

2

Milestones, obstacles and conundrums | Living with NEMO

https://immunedeficientboy.wordpress.com/2015/05/25/milestones-obstacles-and-conundrums

Milestones, obstacles and conundrums. May 25, 2015. Thankfully it did unblock before the 3pm meds but sadly not soon enough to make Count Arthur Strong. Then the biggest milestone of all arrived…one year since transplant! We marked the day with balloons, cards and small gifts and Herbie requested custard donuts as a cake although he didn’t actually eat much of one. 8217; So we went to the lagoon where he ate burger and chips! Herbie also made the local paper again! Thankfully it was nothing to do with hi...

3

Egg-sacally what has been going on? | Living with NEMO

https://immunedeficientboy.wordpress.com/2015/04/19/egg-sacally-what-has-been-going-on

Egg-sacally what has been going on? April 19, 2015. Look at that number above. It’s shocking how close we are to a year post transplant and that I’m still writing this blog! The first week of Easter break started and involved a lot of chocolate. The other three munched their way merrily through tons of the stuff but Herbie still has his in his room untouched. We had the family Easter egg hunt at Dan’s parents house , Herbie dressed as a sheep to collect his eggs ( why not? The Easter egg hunt bags. When ...

4

twintastic2 | Living with NEMO

https://immunedeficientboy.wordpress.com/author/twintastic2

All posts by twintastic2. Do we know those people? July 26, 2015. I find it quite bizarre that it’s been almost 500 days since Rufus donated his cells to Herb. I guess that watching it again on the television made it feel like yesterday. Things have been ticking along nicely since school ended for summer and we are all determined to make the most of the holidays whatever the weather. First of all we were greeted by a large poster of myself and Herbie at the entrance to the hospital! Once in Safari Outpat...

5

Do we know those people? | Living with NEMO

https://immunedeficientboy.wordpress.com/2015/07/26/do-we-know-those-people

Do we know those people? July 26, 2015. I find it quite bizarre that it’s been almost 500 days since Rufus donated his cells to Herb. I guess that watching it again on the television made it feel like yesterday. Things have been ticking along nicely since school ended for summer and we are all determined to make the most of the holidays whatever the weather. First of all we were greeted by a large poster of myself and Herbie at the entrance to the hospital! Finally he agreed to pose with me too! Once in ...

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Today: How much can happen in a week… i mean really?! – ourlittlehero

https://ourlittlehero.wordpress.com/2015/03/03/today-how-much-can-happen-in-a-week-i-mean-really

This blog is about our 5 year old little boy Seth and his battle with Severe Combined Immune Deficiency (SCID). At the point of beginning this blog he is being considered for a second bone marrow transplant in order to save his life. My aim is to provide a real account of his history and progress through diary entries, pictures and videos showing that the boy makes the most of his bubble! Why am I doing this? Today: How much can happen in a week… i mean really? March 3, 2015. March 3, 2015. To help him o...

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Living with NEMO | A primary immunodeficiency

Do we know those people? July 26, 2015. I find it quite bizarre that it’s been almost 500 days since Rufus donated his cells to Herb. I guess that watching it again on the television made it feel like yesterday. Things have been ticking along nicely since school ended for summer and we are all determined to make the most of the holidays whatever the weather. First of all we were greeted by a large poster of myself and Herbie at the entrance to the hospital! Finally he agreed to pose with me too! Once in ...

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