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I See LoveA family's journey with Trisomy 18
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A family's journey with Trisomy 18
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I See Love | iseeloveblog.blogspot.com Reviews
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A family's journey with Trisomy 18
iseeloveblog.blogspot.com
I See Love: Good Results
http://iseeloveblog.blogspot.com/2014/10/good-results.html
A family's journey with Trisomy 18. I am so thankful that you are taking the time to read this blog. Please feel free to email me with any comments or questions you have at smith.jill06@yahoo.com. (Lily takes comments, too! Whosamung.us - visitor maps. Friday, October 10, 2014. I'm glad to have the good results, especially since we were at the doctor's office for roughly 4 1/2 hours! Luckily, a small puddle had formed on the bed, and the doctor was able to run the stick through it to get the test results.
I See Love: This Little Girl Is Moving!
http://iseeloveblog.blogspot.com/2014/10/this-little-girl-is-moving.html
A family's journey with Trisomy 18. I am so thankful that you are taking the time to read this blog. Please feel free to email me with any comments or questions you have at smith.jill06@yahoo.com. (Lily takes comments, too! Whosamung.us - visitor maps. Monday, October 13, 2014. This Little Girl Is Moving! On September 19, Lily's teacher sent me this video. Today, she sent me this one. Boy, has this little girl come a long way. Happily so! Subscribe to: Post Comments (Atom). View my complete profile.
I See Love: March 2014
http://iseeloveblog.blogspot.com/2014_03_01_archive.html
A family's journey with Trisomy 18. I am so thankful that you are taking the time to read this blog. Please feel free to email me with any comments or questions you have at smith.jill06@yahoo.com. (Lily takes comments, too! Whosamung.us - visitor maps. Wednesday, March 19, 2014. What another exhilarating event! That energy comes from all of the spinners who are super excited to be participating in the event. . .and it's just. . .amazing! They JUMP on the chance to be there, too! It could have taken your ...
I See Love: The Essence of Human Existence
http://iseeloveblog.blogspot.com/2014/10/the-essence-of-human-existence.html
A family's journey with Trisomy 18. I am so thankful that you are taking the time to read this blog. Please feel free to email me with any comments or questions you have at smith.jill06@yahoo.com. (Lily takes comments, too! Whosamung.us - visitor maps. Monday, October 13, 2014. The Essence of Human Existence. Not because life is what we want it to be. Not because all is well. But because You are with us and all is right- even in the hardness, all is right- in Your presence. Later this morning we will pra...
I See Love: There's No Stopping This Girl!
http://iseeloveblog.blogspot.com/2015/04/theres-no-stopping-this-girl.html
A family's journey with Trisomy 18. I am so thankful that you are taking the time to read this blog. Please feel free to email me with any comments or questions you have at smith.jill06@yahoo.com. (Lily takes comments, too! Whosamung.us - visitor maps. Thursday, April 16, 2015. There's No Stopping This Girl! There is so much I could say, but I'll let the video do it for me. Speaking of Pattison's, the spin-a-thon went very well! They raised over $278,000! Not bad for newbies! It seems that today Lily got...
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timothyjamescurrey.blogspot.com
A Journey of Love and Faith: the "other" side
http://timothyjamescurrey.blogspot.com/2010/01/other-side.html
Friday, January 29, 2010. My heart feels the pain that rips through each new family that joins us on the "other" side of this journey. When the Mom and Dad no longer fear the death of their child because they have just lived it. I'm so sad that we have gained 3 new angel babies this week. 3. They all had Trisomy 18. Please lift their families up in prayer with me. Zoe. And while you are praying for them can you also give my friend Jill and extra one? Her sweet little girl Lily. January 30, 2010 at 8:28 AM.
compatiblewithjoy-trisomy18.blogspot.com
Compatible With Joy-Trisomy18: Time to Throw in the Towel
http://compatiblewithjoy-trisomy18.blogspot.com/2015/05/time-to-throw-in-towel.html
What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Saturday, May 2, 2015. Time to Throw in the Towel. Yep, that kinda says it all. I called his ped yesterday morning and they changed his med to a different one, a hopefully better one. But by afternoon, "stuff" was just pouring out of him. Almost literally pouring out. But that's not where he is right now. Four weeks ago, he weighed 20&#...
compatiblewithjoy-trisomy18.blogspot.com
Compatible With Joy-Trisomy18: We Just Don't Know...
http://compatiblewithjoy-trisomy18.blogspot.com/2015/05/we-just-dont-know.html
What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Monday, May 4, 2015. We Just Don't Know. This kid is a mystery. He's not playing by the rules, which is often a good thing, but kinda perplexing. Here's what we know:. His first test was positive, his second (and third 'cause they were so surprised at the results) were negative. But this kiddo has a real sense of humor. The nasty di...
compatiblewithjoy-trisomy18.blogspot.com
Compatible With Joy-Trisomy18: Trisomy 18 Awareness Day
http://compatiblewithjoy-trisomy18.blogspot.com/2015/03/trisomy-18-awareness-day.html
What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Wednesday, March 18, 2015. Trisomy 18 Awareness Day. I've tried for days to come up with something "important" or "profound" to say about today, and it just hasn't happened. Words can't convey the sorrow we feel when a child passes on, even if we haven't met them in person, the grief that rips at our soul, or the niggling of guilt that ...
compatiblewithjoy-trisomy18.blogspot.com
Compatible With Joy-Trisomy18: Supports for Families Facing a Trisomy Diagnosis
http://compatiblewithjoy-trisomy18.blogspot.com/p/supports-for-families-facing-trisomy.html
What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Supports for Families Facing a Trisomy Diagnosis. Trisomy 18 Medical Study published in Oraphant Rare Disease Journal Oct 23, 2012. Http:/ www.ncbi.nlm.nih.gov/pmc/articles/PMC3520824/. Https:/ www.facebook.com/groups/T18Mommies/. Living with Trisomy 13 Group Page. Https:/ www.facebook.com/groups/Trisomy13/. Trisomy 4 (and 9p deletion.
compatiblewithjoy-trisomy18.blogspot.com
Compatible With Joy-Trisomy18: For My Angel Mommy Friends
http://compatiblewithjoy-trisomy18.blogspot.com/2015/05/for-my-angel-mommy-friends.html
What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Sunday, May 3, 2015. For My Angel Mommy Friends. I have a lot of angel mommy friends. Some are obvious, some less so. You'd expect that I have a lot in the Trisomy/Heart/Trach/Vent world. It's almost like we're afraid it might be catching. So if we don't acknowledge that it happens, it can't happen to us. So today, may I offer you a gif...
compatiblewithjoy-trisomy18.blogspot.com
Compatible With Joy-Trisomy18: The "Go" Bag
http://compatiblewithjoy-trisomy18.blogspot.com/p/the-go-bag.html
What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Here's what we travel with for Aaron. It seems really complicated, but it's not, because we only had to organize it once. Then when we use something, we just make sure to replace it. Except there was the one time when I forgot to replace diapers and ended up without any. Arg! The one staple of EVERY baby's "go" bag. Suction catheters (B...
compatiblewithjoy-trisomy18.blogspot.com
Compatible With Joy-Trisomy18: Medical History Template
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What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Page 1 - this is the most important page. MEDICAL ACTION (full code, dnr, no cpr, whatever). In this text box put:. Insurance Co and policy #. EGA (gestational age @ birth). Birth weight and blood type. Current weight and date last weighed. Trach size, vent settings. G-tube size, etc that would. Be needed ASAP in an. Anytown, ST 00000.
compatiblewithjoy-trisomy18.blogspot.com
Compatible With Joy-Trisomy18: What Is Trisomy 18?
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What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. What Is Trisomy 18? Trisomy 18, also known as Edwards syndrome, is a condition which is caused by a chromosomal defect. It occurs in about 1 out of every 3000 live births. The numbers increase significantly when early pregnancy losses are factored in that occur in the 2nd and 3rd trimesters of pregnancy. Subscribe to: Posts (Atom).
compatiblewithjoy-trisomy18.blogspot.com
Compatible With Joy-Trisomy18: Happy 11 Months!
http://compatiblewithjoy-trisomy18.blogspot.com/2011/05/happy-11-months.html
What Is Trisomy 18? Inspirations and Other Thoughts. Letter of Medical Necessity. Correcting Aaron's Rocker Bottom Feet. Supports for Families Facing a Trisomy Diagnosis. Friday, May 13, 2011. BUT, come Thursday, his tummy had stretched and his meds had kicked in and lowered his lung pressures. Lo and behold, we're back down low on his oxygen usage and high on the smiles! He's still taking his antibiotics, but those will be done tomorrow. The weather is also gorgeous so I'm going to try to take him t...
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I see London, I see France
I see London, I see France. Monday, July 28, 2014. We ate. And went to the train station office. It was cool🇫🇷. We sat around. Playing video. Games We did nothing. Accept sit🇫🇷. We flew to marseille. We road in a taxi. We saw our apartment.🇫🇷. Telling everything we did in Rome. Saturday, July 26, 2014. There's not much to say. We flew on a plane to Rome. We got in at 10:00 PM. Then had really good jalaito. At 11:00 PM.🇮🇹. Friday, July 25, 2014. Subscribe to: Posts (Atom). View my complete profile.
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I See Love
A family's journey with Trisomy 18. I am so thankful that you are taking the time to read this blog. Please feel free to email me with any comments or questions you have at smith.jill06@yahoo.com. (Lily takes comments, too! Whosamung.us - visitor maps. Friday, January 6, 2017. I am reading a book that I just have to tell you about. It's called How to Survive a Shipwreck. A few pages in, I realized Martin is talking about shipwrecks. But I've heard that you can drown in a tablespoon of water. Preparing a ...
iseeloveeverywhere.wordpress.com
I see love everywhere - 365 Grateful | Gratitude for the ordinary
I see love everywhere – 365 Grateful. Day 21 – Faith. February 8, 2014. When the clouds don’t part for what seems like eons, the synthetic days are as short as they get and all the colour has bleached from the film; it’s on these days that I am most grateful for faith. It is the ultimate strength and I am inordinately grateful for it. Day 16 – New life. February 3, 2014. Sukhino va khemino hontu. Sabbe satta, Bhavantu sukhi tata. Day 15 – Simplification. February 2, 2014. Day 14 – Heating. I’ve no ...
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I see lovely
Sunday, May 20, 2012. On the fashion wish list. Invest in the classics. Simple 100 Patent Pumps. I want these, badly. I would take very good care of them, and would wear them with practically everything. My plan is: as soon as I am home and have worked for a little while I am totally treating myself with a pair of Loubs :). Do you have a fashion wish list? If so, what's on yours? Thursday, May 3, 2012. Alice, olivia, krysten, and stacey. Stacey Bendet, founder of my newest obsession: alice olivia. I read...
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