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Chronic Brevity: September 2016

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Thursday, September 15, 2016. At the beach in the DR. 8220;Caring for myself is not self-indulgence, it is self-preservation, and that is an act of political warfare.” — A Burst of Light: Essays,. So, while I may often post that eating a cupcake, or drinking a glass of wine or taking a lavender bubble bath is "self-care" that's not the only kind of radical self love I want to talk about today. For me, it's more than that. I recently read an article on The Mighty. Quiet time and writing time. We like labe...

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Chronic Brevity: Radical Self-Love

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Thursday, September 15, 2016. At the beach in the DR. 8220;Caring for myself is not self-indulgence, it is self-preservation, and that is an act of political warfare.” — A Burst of Light: Essays,. So, while I may often post that eating a cupcake, or drinking a glass of wine or taking a lavender bubble bath is "self-care" that's not the only kind of radical self love I want to talk about today. For me, it's more than that. I recently read an article on The Mighty. Quiet time and writing time. We like labe...

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Chronic Brevity: Sclero-What?

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All information below was taken from the Scleroderma Foundation website- for more info: www.scleroderma.org. Scleroderma, or systemic sclerosis, is a chronic connective tissue disease generally classified as one of the autoimmune rheumatic diseases. That shows how scleroderma effects the body. However, scleroderma can develop in every age group from infants to the elderly, but its onset is most frequent between the ages of 25 to 55. Is there a cure/treatment? Subscribe to: Posts (Atom).

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Chronic Brevity: May 2016

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Monday, May 30, 2016. The Write to Heal Series. It's been almost a month since my last post! So sorry.but you know.life. So instead of dropping bombs or getting all heavy I thought I'd share what's been keeping me from blogging.my extremely busy writing life! Here's a recap of all that's gone on since the last Write to Heal Series. 1 Residency and Workshop Acceptances. I have the great pleasure of announcing that I was accepted into BOTH the VONA/Voices Workshop for Writers of Color. Everyone was very gr...

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Chronic Brevity: July 2016

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Tuesday, July 5, 2016. I know I walk in and out of several worlds each day. - Joy Harjo. So this was not the post I was intending to write, but it's been lingering on my mind the last few days so I need to get it off my chest. (My trip to the DR will have to wait, for now). But after my return from the transformative experience that was VONA(which these infusions made possible), I've had a lot on my mind and have been in and out of really high highs and really low lows. Like the "old" Jasminne? Why don't...

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Chronic Brevity: January 2016

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Sunday, January 24, 2016. Sowithout further adieu here is my health update.none of which I'm letting stress me out because there is so much more good in my life and so much to be thankful for. 2 surgeries, 4 mouth sores, and one round of Botox later. 1) Hysteroscopy D& C:. Two weeks after the D& C I went back under to clean up the infection on my ring finger. Now, I know what you're thinking.will this poor guy end up like the last one? Literally wanted to saw my whole hand off. I have NO idea how everyth...

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Chronic Brevity: My Scleroderma/Lupus Timeline

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Here is my quick attempt at creating a timeline for my Sclero Journey. Of course, for a more detailed account, review previous blog posts. December 2006-May 2007- Present early symptoms of Raynaud's. Fatigue and body swelling. May 2007- Primary care doc diagnoses Lupus. September 2007- First appointment with rheumatologist- diagnosed Mixed Connective Tissue Disease. November 2007- Official diagnoses of Scleroderma. September 2008- First appointment with Scleroderma specialist (finally some hope! August 2...

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Chronic Brevity: Reentry

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Tuesday, July 5, 2016. I know I walk in and out of several worlds each day. - Joy Harjo. So this was not the post I was intending to write, but it's been lingering on my mind the last few days so I need to get it off my chest. (My trip to the DR will have to wait, for now). But after my return from the transformative experience that was VONA(which these infusions made possible), I've had a lot on my mind and have been in and out of really high highs and really low lows. Like the "old" Jasminne? Why don't...

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Chronic Brevity: Guest Post w/ Doretta Lau

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Monday, October 10, 2016. Guest Post w/ Doretta Lau. 8220;Write like a motherfucker.” -Cheryl Strayed. So today begins my guest blog post series! Since I feel like I have run out of things to say (on my blog, because all my creative energies are going towards my other writing projects) I have decided to highlight and share the stories of other chronic illness bloggers. Here's my first Q and A interview with Doretta Lau. Can you tell me a little about your chronic illness journey? How has writing helped?

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Chronic Brevity: Pics

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Here are a few pics of my journey. (Please note, some images are graphic in content, peruse at your own risk). This was in 2006 shortly before diagnoses. My upper lip was still full and I was at a healthy weight. 2010 on Prednisone, upper lip thinned out, weakened eyesight due to meds. The images below are graphic in content. It starts with a scratch that won't heal And then it becomes infected.and spreads. It begins to eat away at your fl. Esh and causes gangrene. Hospital Stays and Other Shenanigans.