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In memory of Joanna Rose Pitcher-Bridel - Welcome to our Type I SMA Pages

Spinal Muscular Atrophy

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In memory of Joanna Rose Pitcher-Bridel - Welcome to our Type I SMA Pages | joannarose.org.uk Reviews
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Spinal Muscular Atrophy
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In memory of Joanna Rose Pitcher-Bridel - Welcome to our Type I SMA Pages | joannarose.org.uk Reviews

https://joannarose.org.uk

Spinal Muscular Atrophy

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1

Our family - two years on - In memory of Joanna Rose Pitcher-Bridel

http://www.joannarose.org.uk/our-family---two-years-on.html

In memory of Joanna Rose Pitcher-Bridel. Welcome to our Type I SMA Pages. Having a baby with Type 1 SMA. Our family - two years on. Our family - ten years on. Paul walks for Child's Play event. Our family - two years on (written in 2001). We really can not believe that Joanna has been gone for over two years; the memories still seem so fresh, the rituals and routines that we followed in looking after her fo familiar and normal. Yet so much has happened since July 18 1999. At the time of writing, Edward i...

2

Paul walks for Child's Play event - In memory of Joanna Rose Pitcher-Bridel

http://www.joannarose.org.uk/paul-walks-for-childs-play-event.html

In memory of Joanna Rose Pitcher-Bridel. Welcome to our Type I SMA Pages. Having a baby with Type 1 SMA. Our family - two years on. Our family - ten years on. Paul walks for Child's Play event. Paul walks in aid of Children's Hospice South West - 2009. On several occasions during the three days we came across tables and chairs which the Rotary had set up beside the road and were waiting for us with tea, coffee and cakes – very welcome! And cooked us a three-course meal on gas stoves. The camaraderie ...

3

In memory of Joanna Rose Pitcher-Bridel - Welcome to our Type I SMA Pages

http://www.joannarose.org.uk/index.html

In memory of Joanna Rose Pitcher-Bridel. Welcome to our Type I SMA Pages. Having a baby with Type 1 SMA. Our family - two years on. Our family - ten years on. Paul walks for Child's Play event. Welcome to our Type 1 Spinal Muscular Atrophy Page. Welcome to our web page. We are Paul Bridel and Judith Pitcher from South-West England, and we found out that we were carriers of the SMA gene when our second daughter, Joanna, was diagnosed with Type 1 Spinal Muscular Atrophy - the most severe form, in 1999.

4

Links - In memory of Joanna Rose Pitcher-Bridel

http://www.joannarose.org.uk/links.html

In memory of Joanna Rose Pitcher-Bridel. Welcome to our Type I SMA Pages. Having a baby with Type 1 SMA. Our family - two years on. Our family - ten years on. Paul walks for Child's Play event. The following pages offer practical support, experiences and stories from families around the world, and much more. Jennifer Trust for Spinal Muscular Atrophy. Create a free website. Create your own free website. Start your own free website. A surprisingly easy drag and drop site creator. Learn more.

5

Our family - ten years on - In memory of Joanna Rose Pitcher-Bridel

http://www.joannarose.org.uk/our-family---ten-years-on.html

In memory of Joanna Rose Pitcher-Bridel. Welcome to our Type I SMA Pages. Having a baby with Type 1 SMA. Our family - two years on. Our family - ten years on. Paul walks for Child's Play event. Our family - ten years on (written in 2009). Joanna was amazing with her always happy, smiling face and her big blue eyes spoke a million words, and we have many happy memories of our time with her. She will always be with us. Create a free website. Create your own free website. Start your own free website.

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In memory of Joanna Rose Pitcher-Bridel - Welcome to our Type I SMA Pages

In memory of Joanna Rose Pitcher-Bridel. Welcome to our Type I SMA Pages. Having a baby with Type 1 SMA. Our family - two years on. Our family - ten years on. Paul walks for Child's Play event. Welcome to our Type 1 Spinal Muscular Atrophy Page. Welcome to our web page. We are Paul Bridel and Judith Pitcher from South-West England, and we found out that we were carriers of the SMA gene when our second daughter, Joanna, was diagnosed with Type 1 Spinal Muscular Atrophy - the most severe form, in 1999.

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