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Joselyn's Brawl with Shulman's Syndrome & Aplastic Anemia | Two rare, life-threatening diseases that lead to bone marrow failure, a bone marrow transplant and Graft vs. Host Disease

Two rare, life-threatening diseases that lead to bone marrow failure, a bone marrow transplant and Graft vs. Host Disease

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Joselyn's Brawl with Shulman's Syndrome & Aplastic Anemia | Two rare, life-threatening diseases that lead to bone marrow failure, a bone marrow transplant and Graft vs. Host Disease | joselynsbrawlwithshulmanssyndrome.wordpress.com Reviews
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Joselyn's Brawl with Shulman's Syndrome & Aplastic Anemia | Two rare, life-threatening diseases that lead to bone marrow failure, a bone marrow transplant and Graft vs. Host Disease | joselynsbrawlwithshulmanssyndrome.wordpress.com Reviews

https://joselynsbrawlwithshulmanssyndrome.wordpress.com

Two rare, life-threatening diseases that lead to bone marrow failure, a bone marrow transplant and Graft vs. Host Disease

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Procedure Scoreboard | Joselyn's Brawl with Shulman's Syndrome & Aplastic Anemia

https://joselynsbrawlwithshulmanssyndrome.wordpress.com/treatment-scoreboard

Joselyn's Brawl with Shulman's Syndrome and Aplastic Anemia. Two rare, life-threatening diseases that lead to bone marrow failure, a bone marrow transplant and Graft vs. Host Disease. What the F is EF? Keep up to date with the latest count on all my procedures! Aren’t you so totally stoked to have this info? Since May, 2012. Blood Test (Another F-ing Blood Test): 319. EMG (muscle electricity needle test – fun! Bone Marrow Biopsy (from hip bones): 4. Open Muscle Biopsy – left quadricep (never again! Pills...

2

Aplastic What? | Joselyn's Brawl with Shulman's Syndrome & Aplastic Anemia

https://joselynsbrawlwithshulmanssyndrome.wordpress.com/aplastic-what

Joselyn's Brawl with Shulman's Syndrome and Aplastic Anemia. Two rare, life-threatening diseases that lead to bone marrow failure, a bone marrow transplant and Graft vs. Host Disease. What the F is EF? Learn more about AA:. Http:/ www.cancer.org/cancer/aplasticanemia/detailedguide/index. 6 thoughts on “ Aplastic What? August 26, 2013 at 7:27 am. Sounds a lot like my story, thanks for sharing, hope all is going well 🙂. January 1, 2014 at 5:17 am. Congrats on a successful bmt! May 27, 2014 at 9:26 am.

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What Cide Effectz? | Joselyn's Brawl with Shulman's Syndrome & Aplastic Anemia

https://joselynsbrawlwithshulmanssyndrome.wordpress.com/2012/08/22/what-cide-effectz

Joselyn's Brawl with Shulman's Syndrome and Aplastic Anemia. Two rare, life-threatening diseases that lead to bone marrow failure, a bone marrow transplant and Graft vs. Host Disease. What the F is EF? This entry was posted on August 22, 2012, in Health and Wellness. Prednisone: Bleeding of stomach – (yes), Extreme sense of well being (not so much), Complete stoppage of heart (holy sh*t! Hives, Delirium, Hallucination, Paranoia (My heart is going to completely stop! Solumedrol: Seizures, Slow wound heali...

4

Jailbreak | Joselyn's Brawl with Shulman's Syndrome & Aplastic Anemia

https://joselynsbrawlwithshulmanssyndrome.wordpress.com/2016/03/28/jailbreak

Joselyn's Brawl with Shulman's Syndrome and Aplastic Anemia. Two rare, life-threatening diseases that lead to bone marrow failure, a bone marrow transplant and Graft vs. Host Disease. What the F is EF? This entry was posted on March 28, 2016, in bone marrow transplant. Nurse Lisa and this latte gift made for a very agreeable day in lock up. 8221; I responded, “Not much on my arms and legs. Some on my back, some on my” “What about your bottom? 8220;Gee whiz, Mom, this supper is out of this world! I couldn...

5

NOW | Joselyn's Brawl with Shulman's Syndrome & Aplastic Anemia

https://joselynsbrawlwithshulmanssyndrome.wordpress.com/2016/04/20/now

Joselyn's Brawl with Shulman's Syndrome and Aplastic Anemia. Two rare, life-threatening diseases that lead to bone marrow failure, a bone marrow transplant and Graft vs. Host Disease. What the F is EF? This entry was posted on April 20, 2016, in bone marrow transplant. Does anyone know what time it is? If the words ‘Howdy Doody’ are coming to mind, you are WRONG! And kinda old) The correct answer is:. Thanks, Robin and Scott! I mean, right? HINT: This is the one to click – NOW! 13 thoughts on “ NOW.

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Days -6 & -5 : While Working on My Tan… – Navigating the Middle

https://realsomefoya.wordpress.com/2016/07/28/days-6-5-while-working-on-my-tan

Through adolescents, menopause, aging parents and other flying debris. Days -6 and -5 : While Working on My Tan…. I didn’t write last night. Apparently, high doses of radiation can. Make a person sick. Coupled with the fact that the A/C in my room chose the most inopportune time to stop cooling and less than desirable hospital dinner, last night did not. Seriously, if anyone reading this could invent something better, you’d be rich! Laying there makes me think of a tanning booth. There is a scene where t...

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September 2016 – Navigating the Middle

https://realsomefoya.wordpress.com/2016/09

Through adolescents, menopause, aging parents and other flying debris. Today is a Day Forward. My sister Stephanie got it right when she mused, “When you’ve undergone a major surgery or something like you’ve just experienced, it’s good to remember that recovery is like taking two steps forward and one step back.”. Before hearing her words, I hadn’t stopped to consider that I’d feel okay one day, and kinda lousy, tired or both the next. At times like this, it’s important that I talk to myself,. No one wak...

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IMG_0615 – Navigating the Middle

https://realsomefoya.wordpress.com/2016/08/05/days-1-2-forever-changed/img_0615

Through adolescents, menopause, aging parents and other flying debris. Student of social media; TV personality; wife; and mother to "My Three Sons," cancer survivor who is interested in all things social, from cocktail parties to Instagram. August 5, 2016. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. Notify me of new comments via email. Two rare, life...

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IMG_0616 – Navigating the Middle

https://realsomefoya.wordpress.com/2016/08/05/days-1-2-forever-changed/img_0616

Through adolescents, menopause, aging parents and other flying debris. Student of social media; TV personality; wife; and mother to "My Three Sons," cancer survivor who is interested in all things social, from cocktail parties to Instagram. August 5, 2016. Leave a Reply Cancel reply. Enter your comment here. Fill in your details below or click an icon to log in:. Address never made public). You are commenting using your WordPress.com account. ( Log Out. Notify me of new comments via email. Two rare, life...

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October 2016 – Navigating the Middle

https://realsomefoya.wordpress.com/2016/10

Through adolescents, menopause, aging parents and other flying debris. Day 78: Because You’ve Asked. White Blood Count –. Platelet Count –. Bone Marrow –. Stem Cell Engraftment –. PET Scan –. No Evidence of Disease (NED)/no uptake. Allow me to translate. My post-transplant progress is going well. “Well” as in –. In good health; free or recovered from illness. I’ve also been able to drop some of the drugs from my am and pm lineup. Instead of an “all time high of 16 pills/day,” I&#821...When I questioned D...

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Best Christmas EVER! – Navigating the Middle

https://realsomefoya.wordpress.com/2017/01/01/best-christmas-ever

Through adolescents, menopause, aging parents and other flying debris. But this was the Best Christmas EVER! You know – that Christmas when you tear open a box to reveal the perfect present that you asked for, but didn’t know just how much you wanted it UNTIL you finally got it. Remember Ralphy in “A Christmas Story? Until the unimaginable happened. The kind of thing that takes a nano-second for your brain to catch up with what your eyes have just seen – and one of them has GOT. Sometimes, we get exactly.

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Day +12: Early Release? – Navigating the Middle

https://realsomefoya.wordpress.com/2016/08/15/day-12-early-release

Through adolescents, menopause, aging parents and other flying debris. Day 12: Early Release? Time in the hospital has felt more like being in prison. It started when I got jail-house tatts before being locked down and confined to my cell. I’ve donned the uniform (AKA the peek-a-butt hospital gown). And had my three squares a day. By default, I’ve joined the bald head gang, housed here on the BMT Unit cell block. Workouts include walks around the yard (i.e., the ward). Early release for good behavior.

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August 2016 – Navigating the Middle

https://realsomefoya.wordpress.com/2016/08

Through adolescents, menopause, aging parents and other flying debris. Day 14: Returning Home. I am so happy to be home. There is no better place for me to recover the next 100 days of my journey. I have my family in one place; can sleep in my own bed; and don’t have the constant interruptions of nurses and techs throughout the night. My taste buds are returning to normal, and although I am fatigued, I know that this too shall pass. So, for the next 100 days, I have the following marching orders: NO.

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Day +9: Just Beyond Ordinary – Navigating the Middle

https://realsomefoya.wordpress.com/2016/08/12/day-9-just-beyond-ordinary

Through adolescents, menopause, aging parents and other flying debris. Day 9: Just Beyond Ordinary. I began this blog three days ago, when I felt well enough to write. Unfortunately chemo-brain is real. And the lack of sleep, nausea and pain don’t fuel the creative process. I could tell you all about my burning feet and palms, diarrhea, and trouble swallowing food. I could tell you. It’s not pretty; in fact, it’s ugly. Today, I will determine what’s ordinary and what isn’t. August 12, 2016. August 12, 20...

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Today is a Day Forward – Navigating the Middle

https://realsomefoya.wordpress.com/2016/09/02/today-is-a-day-forward

Through adolescents, menopause, aging parents and other flying debris. Today is a Day Forward. My sister Stephanie got it right when she mused, “When you’ve undergone a major surgery or something like you’ve just experienced, it’s good to remember that recovery is like taking two steps forward and one step back.”. Before hearing her words, I hadn’t stopped to consider that I’d feel okay one day, and kinda lousy, tired or both the next. At times like this, it’s important that I talk to myself,. No one wak...

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Joselyn's Brawl with Shulman's Syndrome & Aplastic Anemia | Two rare, life-threatening diseases that lead to bone marrow failure, a bone marrow transplant and Graft vs. Host Disease

Joselyn's Brawl with Shulman's Syndrome and Aplastic Anemia. Two rare, life-threatening diseases that lead to bone marrow failure, a bone marrow transplant and Graft vs. Host Disease. What the F is EF? Blood, Sweat and Tears for the Win. After about a million reschedulings, it finally arrived. My intraductal meibomian gland probing appointment. So exciting! And now I’m a Cocksacker. Thankfully for many most readers, my posts are becoming more and more spaced out. Not spaced out as in weird (no one wo...

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