simplysoares.blogspot.com
Simply Soares: October 2011
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Nathaniel's Helping Hands Page. I am NOT one to ask for a hand out, but I will admit that life is TOUGH sometimes and we can all use a little help from time to time. If you feel lead to bless us with financial help for medical related expenses, this is a safe way to do it. Spina Bifida Awareness; Stories of Hope. Spina Bifida Awareness: Meet Madison! Spina Bifida Awareness: Meet Jeremiah! Spina Bifida Awareness: Meet Magan! Spina Bifida Awareness: Meet Gavin! Spina Bifida Awareness: Meet Alex! Spina Bifi...
theholtsjourney.blogspot.com
A Joyful Journey: December 2014
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Tuesday, December 23, 2014. We also received startling news that held much fear and trepidation. I would like to put a disclaimer in here, and clearly state that I am respectfully making this analogy. In no way do I equate Toby to Jesus. Just think about that. If you are a parent, God chose your children just for you, just as God chose His plan of redemption from the beginning of time. Subscribe to: Posts (Atom). You can subscribe to my updates by submitting your e-mail address here! Garrett is our secon...
theholtsjourney.blogspot.com
A Joyful Journey: Mobility and Independence
http://theholtsjourney.blogspot.com/2014/10/mobility-and-independence.html
Wednesday, October 15, 2014. Spina Bifida is a diagnosis with varying degrees. Some kids walk with very little bracing, some walk with more support and a walker or crutches, and some can't walk at all. The process of getting casted for braces can appear medieval in some ways, but it's painless, and doesn't take very long! Toby's also had a mobile stander that we purchased used to help him put weight on his legs. He loves it when we get him into it, but alas last week we sold it and passed it on to an...
theholtsjourney.blogspot.com
A Joyful Journey: Toby's Story
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Toby also struggles with autonomic issues like the Harlequinn sign (turning red on half his body), nystagmus, slow motility, severe belly distension, scoliosis (41 degrees lying down and 70 degrees sitting up). He wears a night-time back bending brace at night to help correct the scoliosis. It's helping, but we now VEPTER rod surgery and the MACE/Mitrofanoff are in his future - his surgery list is currently at 13. Subscribe to: Posts (Atom). View my complete profile. Conor is our oldest son. He's 11 ...
theholtsjourney.blogspot.com
A Joyful Journey: Expectations
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Tuesday, July 21, 2015. When I called my husband to explain the broken dryer, that just so happened to stop working on the day he was flying to Atlanta. Don't you think enough bad has happened to us recently, can't we get a break? No, that's life, Carrie.". Do I need to change my expectations? I DO NOT believe we should live without hope or look at life negatively, but the Bible does instruct us NOT to be surprised when bad things happen. Jesus said in John 16:33, "These things I have spoken to you, so t...
theholtsjourney.blogspot.com
A Joyful Journey: The Need for a Shunt
http://theholtsjourney.blogspot.com/2014/10/the-need-for-shunt.html
Sunday, October 19, 2014. The Need for a Shunt. They state his condition as " meningomyelocele"). Is where I found this picture of the shunt. That same site also has a great MRI picture of the brain with normal ventricles and ones that are swollen with fluid. Here is a link. To more information on the shunt. There have been other times when we've suspected it wasn't working - the mamas in the Spina Bifida community affectionately or unaffectionately call it SMP. After getting all of Toby's tests and wait...
dtfisherfam.blogspot.com
FISHER FAMILY: Crafting
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A BRIEF GLIMPSE AT LIFE IN THE FABULOUS FISHER HOUSEHOLD. Monday, March 28, 2011. I've been holding off posting about my recent crafts because I wanted to wait until I finished something more profound. Since I'm not sure when I'll be able to schedule profound into my life, here is fun and less profound. With going back and forth to the hospital all the time, my jewelry was getting really tangled and I set out to find and make a solution. I compiled several ideas and came up with this travel bag. I think ...
dtfisherfam.blogspot.com
FISHER FAMILY: February 2011
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A BRIEF GLIMPSE AT LIFE IN THE FABULOUS FISHER HOUSEHOLD. Wednesday, February 23, 2011. We have been SO blessed to have several family members come stay with us to make food and watch Kaili while Averi is in the hospital. This week it is Grandma Davis and today she decided to take Kaili to COSI, the science museum. Let me begin by saying that sending me this picture is in no way funny! Yes, that is a tarantula next to my daughter. Thursday, February 17, 2011. Well today was the big day. Averi is home...
dtfisherfam.blogspot.com
FISHER FAMILY: Doing the Laundry
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A BRIEF GLIMPSE AT LIFE IN THE FABULOUS FISHER HOUSEHOLD. Thursday, April 7, 2011. I had some awesome helpers while doing the laundry today. Please ignore the fact that they are sitting on a table, or at least pretend that I didn't leave them there while I went to get the camera. ;). Cute picture. And you are funny, Tiffany. ☺. May 17, 2011 at 8:43 AM. What a couple of cuties! January 19, 2012 at 12:47 AM. Subscribe to: Post Comments (Atom). Can't Keep Me DOWN. D: Kaili, why are you still awake? George, ...
dtfisherfam.blogspot.com
FISHER FAMILY: August 2010
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A BRIEF GLIMPSE AT LIFE IN THE FABULOUS FISHER HOUSEHOLD. Saturday, August 28, 2010. Welcome to the Safari. This week Kaili turned 4. She wanted to celebrate her birthday with a princess party but I had to talk her out of it since the majority of her friends are boys (player). She finally decided on a Safari Party. And it was so much fun! Dan greeted the guests by giving them a compass and bandana and stamping their passport (invitation). Then we made binoculars out of cups to help us on our safari hunt.
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