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karensfshjourney.blogspot.com

Karen's FSH Journey

On going story of life with Facioscapulohumeral Muscular Dystrophy(FSH-MD).

http://karensfshjourney.blogspot.com/

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Karen's FSH Journey | karensfshjourney.blogspot.com Reviews
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On going story of life with Facioscapulohumeral Muscular Dystrophy(FSH-MD).
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1 karen's fsh journey
2 karen
3 useful links
4 my blog diary
5 is that good
6 what price independence
7 come/help me
8 income
9 update
10 splat
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karen's fsh journey,karen,useful links,my blog diary,is that good,what price independence,come/help me,income,update,splat,wednesday 18,liverpool,bradford and glasgow,oxford,on saturday 17,anniversary,direct payments,motability,house adaptions,wheelchairs
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Karen's FSH Journey | karensfshjourney.blogspot.com Reviews

https://karensfshjourney.blogspot.com

On going story of life with Facioscapulohumeral Muscular Dystrophy(FSH-MD).

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Karen's FSH Journey

http://karensfshjourney.blogspot.com/2008/04/karens-fsh-journey.html

On going story of life with Facioscapulohumeral Muscular Dystrophy(FSH-MD). Monday, 21 April 2008. Karen’s FSH Journey. An everyday account of living with Fasio Scapulo Humeral Muscular Dystrophy. the ups and the downs the frustrations and the positives.oh yes there are positives. I’ve had FSH all my life. I was born with a defective gene passed on from my Dad. There’s a 50-50 chance of it being passed on. Even now I can still hear my mums voice “Will you turn that leg in when you walk no wonder yo...

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blog.fshfriends.org blog.fshfriends.org

Pacific Northwest Friends of FSH Research: March 2008

http://blog.fshfriends.org/2008_03_01_archive.html

Pacific Northwest Friends of FSH Research. Supporting research into Facioscapulohumeral Muscular Dystrophy. Friends of FSH Research Official Site. Wednesday, March 26, 2008. Deena Tannous Will Be Missed. Deena Tannous sitting with her friend Amanda. Age 26, passed away peacefully in. March 24, 2008. Dearly beloved daughter of Peter and Basma. Loving sister of Speero, Annie and William. She will be greatly missed by her numerous aunts and uncles, cousins, relatives from the. March 25, 2008. Was the Friend...

blog.fshfriends.org blog.fshfriends.org

Pacific Northwest Friends of FSH Research: Platform development for candidate drug screening for FSHD

http://blog.fshfriends.org/2012/07/platform-development-for-candidate-drug.html

Pacific Northwest Friends of FSH Research. Supporting research into Facioscapulohumeral Muscular Dystrophy. Friends of FSH Research Official Site. Thursday, July 26, 2012. Platform development for candidate drug screening for FSHD. Platform development for candidate drug screening for FSHD. Miller Lab News Story. Subscribe to: Post Comments (Atom). FiSHing for a Cure with HeART. There was an error in this gadget. Pacific Northwest Friends of FSH Research. Chris Carrino FSHD Foundation.

blog.fshfriends.org blog.fshfriends.org

Pacific Northwest Friends of FSH Research: April 2009

http://blog.fshfriends.org/2009_04_01_archive.html

Pacific Northwest Friends of FSH Research. Supporting research into Facioscapulohumeral Muscular Dystrophy. Friends of FSH Research Official Site. Thursday, April 23, 2009. Assumptions - Living with FSHD. My friend Anne has allowed me to share her story here on my blog. Please take a moment to learn more about living with Facioscapulohumeral Muscular Dystrophy. We all make assumptions about others based on our own life experiences. Sometimes assumptions are helpful. Many times they are not. April 9, 2009.

blog.fshfriends.org blog.fshfriends.org

Pacific Northwest Friends of FSH Research: New "DNA Combing" Test for FSHD

http://blog.fshfriends.org/2012/04/genomic-vision-launches-innovative-new.html

Pacific Northwest Friends of FSH Research. Supporting research into Facioscapulohumeral Muscular Dystrophy. Friends of FSH Research Official Site. Monday, April 16, 2012. New "DNA Combing" Test for FSHD. Biotech company Genomic Vision. Just announced the release to market of a new method of testing for FSHD. The test uses molecular combing technology that stretches DNA and affixes it to a treated glass surface. The DNA can then be analyzed using FSHD-specific software. Subscribe to: Post Comments (Atom).

blog.fshfriends.org blog.fshfriends.org

Pacific Northwest Friends of FSH Research: January 2010

http://blog.fshfriends.org/2010_01_01_archive.html

Pacific Northwest Friends of FSH Research. Supporting research into Facioscapulohumeral Muscular Dystrophy. Friends of FSH Research Official Site. Tuesday, January 26, 2010. Maarel, S.M. van der; Frants, R.R. Padberg, G.W.am. Http:/ repository.ubn.ru.nl/handle/2066/51789. Biochimica et biophysica acta. Molecular basis of disease, Vol. vol. 1772, p.p. 186-p. 194. Wednesday, January 20, 2010. Sleep disordered breathing in facioscapulohumeral muscular dystrophy. Pietro A. Tonali. Received 20 March 2009.

blog.fshfriends.org blog.fshfriends.org

Pacific Northwest Friends of FSH Research: September 2009

http://blog.fshfriends.org/2009_09_01_archive.html

Pacific Northwest Friends of FSH Research. Supporting research into Facioscapulohumeral Muscular Dystrophy. Friends of FSH Research Official Site. Wednesday, September 30, 2009. Standing In Line for Vodka for FSH research? Yep, Dan Akroyd was in Seattle promoting his "Crystal Head" triple filtered vodka. I stood in line (among other fans) to have a bottle signed. Go see the Youtube video. Tells his story, or the story of the head. Friends of FSH Research. Tuesday, September 29, 2009. So What is FSHD?

blog.fshfriends.org blog.fshfriends.org

Pacific Northwest Friends of FSH Research: January 2009

http://blog.fshfriends.org/2009_01_01_archive.html

Pacific Northwest Friends of FSH Research. Supporting research into Facioscapulohumeral Muscular Dystrophy. Friends of FSH Research Official Site. Friday, January 30, 2009. On the Road to Finding a Treatment. The journey toward a cure or treatment is made by the help of many - here is a note from one of the researchers funded by the Friends of FSH Research. Why Conduct an Auction? So the next question was "How close are we to developing a treatment? What are researchers doing for those with FSHD? In 2003...

blog.fshfriends.org blog.fshfriends.org

Pacific Northwest Friends of FSH Research: May 2009

http://blog.fshfriends.org/2009_05_01_archive.html

Pacific Northwest Friends of FSH Research. Supporting research into Facioscapulohumeral Muscular Dystrophy. Friends of FSH Research Official Site. Wednesday, May 20, 2009. In the News - Researchers Recognized. March of Dimes Awards $250,000 Prize to Scientists Unraveling the Causes of Muscular Dystrophy. BALTIMORE, May 6 /PRNewswire-USNewswire/ - Two scientists whose work. Has led to new and better ways to diagnose and potentially treat muscular. To read the complete press release. FiSHing for a Cure wit...

blog.fshfriends.org blog.fshfriends.org

Pacific Northwest Friends of FSH Research: February 2009

http://blog.fshfriends.org/2009_02_01_archive.html

Pacific Northwest Friends of FSH Research. Supporting research into Facioscapulohumeral Muscular Dystrophy. Friends of FSH Research Official Site. Thursday, February 26, 2009. The Promise of their Work. The impact you, the donor, has made is clearly stated in this excerpt from a letter, dated Feb. 26th, which we received. The complete letter written by Dr. Paul G. Ramsey, the Executive Vice President for Medical Affairs and the Dean of the School of Medicine is available on-line. Living with FSH has many...

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Karen's FSH Journey

On going story of life with Facioscapulohumeral Muscular Dystrophy(FSH-MD). Monday, 21 April 2008. Karen’s FSH Journey. An everyday account of living with Fasio Scapulo Humeral Muscular Dystrophy. the ups and the downs the frustrations and the positives.oh yes there are positives. I’ve had FSH all my life. I was born with a defective gene passed on from my Dad. There’s a 50-50 chance of it being passed on. Even now I can still hear my mums voice “Will you turn that leg in when you walk no wonder yo...

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