katlyn-adascid.blogspot.com

Katlyn's Struggle with ADA SCID

Katlyn's Struggle with ADA SCID. Thursday, April 9, 2015. Day 252 Finally things are starting to look up for us. Katlyn had her appointment at the IWK yesterday and by the time we left we felt on top of the world. For starters, Katlyn’s new medication working wonders! Tuesday, February 17, 2015. Day 198 Happy Valentines everyone. We will be spending the day cuddling and being so grateful we have each other and this little bucket full of love. Are we ever blessed! Subscribe to: Posts (Atom).

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Katlyn's Struggle with ADA SCID | katlyn-adascid.blogspot.com Reviews

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Katlyn's Struggle with ADA SCID. Thursday, April 9, 2015. Day 252 Finally things are starting to look up for us. Katlyn had her appointment at the IWK yesterday and by the time we left we felt on top of the world. For starters, Katlyn’s new medication working wonders! Tuesday, February 17, 2015. Day 198 Happy Valentines everyone. We will be spending the day cuddling and being so grateful we have each other and this little bucket full of love. Are we ever blessed! Subscribe to: Posts (Atom).

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Katlyn's Struggle with ADA SCID | katlyn-adascid.blogspot.com Reviews

https://katlyn-adascid.blogspot.com

Katlyn's Struggle with ADA SCID. Thursday, April 9, 2015. Day 252 Finally things are starting to look up for us. Katlyn had her appointment at the IWK yesterday and by the time we left we felt on top of the world. For starters, Katlyn’s new medication working wonders! Tuesday, February 17, 2015. Day 198 Happy Valentines everyone. We will be spending the day cuddling and being so grateful we have each other and this little bucket full of love. Are we ever blessed! Subscribe to: Posts (Atom).

INTERNAL PAGES

katlyn-adascid.blogspot.com

1

Katlyn's Struggle with ADA SCID: Day +219

http://katlyn-adascid.blogspot.com/2015/04/day-219.html

Katlyn's Struggle with ADA SCID. Thursday, April 9, 2015. View my complete profile. Gene therapy: Treating the bubble babies. Harrison's fight with ADA-SCID. Parker's Battle with ADA. There was an error in this gadget. Watermark template. Powered by Blogger.

2

Katlyn's Struggle with ADA SCID: May 2009

http://katlyn-adascid.blogspot.com/2009_05_01_archive.html

Katlyn's Struggle with ADA SCID. Tuesday, May 5, 2009. So as I mentioned in my last entry, Katlyn had her first surgery. The surgery was a success. According to two pathologist reports, the whole tumor is gone! So we have an appointment next week with Katlyn's doctors in Saint John to discuss what our next plan is. After that I imagine we'll book her next surgery. Subscribe to: Posts (Atom). Sorry I have neglected Katlyns blog for so l. View my complete profile. Gene therapy: Treating the bubble babies.

3

Katlyn's Struggle with ADA SCID: February 2015

http://katlyn-adascid.blogspot.com/2015_02_01_archive.html

Katlyn's Struggle with ADA SCID. Tuesday, February 17, 2015. Day 198 Happy Valentines everyone. We will be spending the day cuddling and being so grateful we have each other and this little bucket full of love. Are we ever blessed! She is doing well. Not much has changed. Just waiting for those tcells to come so Katlyn get out of isolation and back on with her life. We were lucky enough to be home over the past two weeks. We will be heading to Halifax this week for Katlyns ivig and bloodwork. Not...We ar...

4

Katlyn's Struggle with ADA SCID: November 2014

http://katlyn-adascid.blogspot.com/2014_11_01_archive.html

Katlyn's Struggle with ADA SCID. Thursday, November 20, 2014. I love her little smile so much. Despite a hard day, we have shared some good laughs. What has changed in the past couple of weeks? She had a pickle and half a juicebox. The next morning I was overjoyed to see her little smile and sense of humor back, I don't know for sure if that was what the problem was, but it seemed to work! Subscribe to: Posts (Atom). View my complete profile. Gene therapy: Treating the bubble babies.

5

Katlyn's Struggle with ADA SCID: July 2014

http://katlyn-adascid.blogspot.com/2014_07_01_archive.html

Katlyn's Struggle with ADA SCID. Thursday, July 31, 2014. Tuesday, July 29, 2014. Last day of Chemo! So today marked the last day of Chemotherapy. whew! So tomorrow and Wednesday are rest days. Ya, sure there are still alot of drugs and poking at Katlyn, but she has no more chemo! Wednesday is the day that the day that the donor will be harvested and then Thursday is the big day! Wednesday, July 23, 2014. Day 1 of chemotherapy. Subscribe to: Posts (Atom). Last day of Chemo! Day 1 of chemotherapy.

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scidada.blogspot.com

Parker's Battle with ADA: February 2008

http://scidada.blogspot.com/2008_02_01_archive.html

Parker's Battle with ADA. Follow Parker, a severe combined immunodeficient (SCID) little boy in his battle against adenosine deaminase (ADA) deficiency. Parker is currently participating in a Gene Therapy trial in Italy. Wednesday, February 27, 2008. Daddy hopes to write an article for everyone soon and be sure to check the Toronto Star this week-end for another article on Parker! Sunday June 1, 2008 with a 1pm shot gun start. Four Seasons Golf Club www.2golf.ca. 1/2 BBQ Chicken or 8oz Chicken Supreme.

scidada.blogspot.com

Parker's Battle with ADA: January 2008

http://scidada.blogspot.com/2008_01_01_archive.html

Parker's Battle with ADA. Follow Parker, a severe combined immunodeficient (SCID) little boy in his battle against adenosine deaminase (ADA) deficiency. Parker is currently participating in a Gene Therapy trial in Italy. Wednesday, January 30, 2008. Although, he will not show it, I know that this has been very difficult for him. We are so blessed to have him in our lives and want him to know that we appreciate everything he is doing to try and make things a little better for us. Sunday, January 20, 2008.

scidada.blogspot.com

Parker's Battle with ADA: October 2008

http://scidada.blogspot.com/2008_10_01_archive.html

Parker's Battle with ADA. Follow Parker, a severe combined immunodeficient (SCID) little boy in his battle against adenosine deaminase (ADA) deficiency. Parker is currently participating in a Gene Therapy trial in Italy. Thursday, October 30, 2008. It's Been A While. I will definitely post some pictures of Parker in the next few days in his costume. Subscribe to: Posts (Atom). Recent Video of Parker. September 13th, 2007 - Superman. December 25th, 2006 - First Christmas (New). August 25th, 2007 - Clothes.

scidada.blogspot.com

Parker's Battle with ADA: April 2008

http://scidada.blogspot.com/2008_04_01_archive.html

Parker's Battle with ADA. Follow Parker, a severe combined immunodeficient (SCID) little boy in his battle against adenosine deaminase (ADA) deficiency. Parker is currently participating in a Gene Therapy trial in Italy. Friday, April 18, 2008. Last night we played outside while daddy barbecued for us. This was a highlight for Parker. He absolutely loved being in the backyard and definitely expended a lot of energy before bed! For tickets, to sponsor a hole or donate a prize, please e-mail:. Life is prec...

scidada.blogspot.com

Parker's Battle with ADA: The 2008 SCID Picnic!

http://scidada.blogspot.com/2008/08/2008-scid-picnic.html

Parker's Battle with ADA. Follow Parker, a severe combined immunodeficient (SCID) little boy in his battle against adenosine deaminase (ADA) deficiency. Parker is currently participating in a Gene Therapy trial in Italy. Tuesday, August 12, 2008. The 2008 SCID Picnic! Subscribe to: Post Comments (Atom). Recent Video of Parker. September 13th, 2007 - Superman. December 25th, 2006 - First Christmas (New). August 28th, 2007 - Its Alright. August 25th, 2007 - Clothes. August 25th, 2007 - People Watching.

adascid.blogspot.com

Harrison's fight with ADA-SCID: February 2009

http://adascid.blogspot.com/2009_02_01_archive.html

Harrison's fight with ADA-SCID. Join us in celebrating Harrison's life while he battles Bubble boy disease - aka : ADA-SCID (Adenosine Deaminase Deficiency causing Severe Combined Immune Deficiency) and RP - Retinitis Pigmentosa - degeneration of the eye leading to blindness. Harrison is one of maybe only 2 ADA deficient child registered for PID (Primary Immune Deficiency) in Australia. Saturday, February 21, 2009. The good news is that Harrison is home, seems stable and relatively unscathed and that lif...

adascid.blogspot.com

Harrison's fight with ADA-SCID: May 2014

http://adascid.blogspot.com/2014_05_01_archive.html

Harrison's fight with ADA-SCID. Join us in celebrating Harrison's life while he battles Bubble boy disease - aka : ADA-SCID (Adenosine Deaminase Deficiency causing Severe Combined Immune Deficiency) and RP - Retinitis Pigmentosa - degeneration of the eye leading to blindness. Harrison is one of maybe only 2 ADA deficient child registered for PID (Primary Immune Deficiency) in Australia. Wednesday, May 28, 2014. The vision is dying and quickly! Known as "Coats like fundus" - it is a growth caused by the b...

adascid.blogspot.com

Harrison's fight with ADA-SCID: Updates on eyesight and immune function

http://adascid.blogspot.com/2015/02/updates-on-eyesight-and-immune-function.html

Harrison's fight with ADA-SCID. Join us in celebrating Harrison's life while he battles Bubble boy disease - aka : ADA-SCID (Adenosine Deaminase Deficiency causing Severe Combined Immune Deficiency) and RP - Retinitis Pigmentosa - degeneration of the eye leading to blindness. Harrison is one of maybe only 2 ADA deficient child registered for PID (Primary Immune Deficiency) in Australia. Friday, March 6, 2015. Updates on eyesight and immune function. And while we are at it keep going strongly on your jour...

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Katlyn's Struggle with ADA SCID

Katlyn's Struggle with ADA SCID. Thursday, April 9, 2015. Day 252 Finally things are starting to look up for us. Katlyn had her appointment at the IWK yesterday and by the time we left we felt on top of the world. For starters, Katlyn’s new medication working wonders! Tuesday, February 17, 2015. Day 198 Happy Valentines everyone. We will be spending the day cuddling and being so grateful we have each other and this little bucket full of love. Are we ever blessed! Subscribe to: Posts (Atom).

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