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Ben and his Brothers: Life with 4 boys and CdLS | Life with 4 boys and Cornelia de Lange Syndrome.

Life with 4 boys and Cornelia de Lange Syndrome.

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Ben and his Brothers: Life with 4 boys and CdLS | Life with 4 boys and Cornelia de Lange Syndrome. | kfb1.wordpress.com Reviews
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Ben and his Brothers: Life with 4 boys and CdLS | Life with 4 boys and Cornelia de Lange Syndrome. | kfb1.wordpress.com Reviews

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Life with 4 boys and Cornelia de Lange Syndrome.

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October | 2008 | Ben and his Brothers: Life with 4 boys and CdLS

https://kfb1.wordpress.com/2008/10

Ben and his Brothers: Life with 4 boys and CdLS. Ben’s Early Months. About Ben, Our Family and CdLS. Ben’s Early Months. Contact me: benandhisbrothers@yahoo.com. 8220;It’s a good night to look at pumpkins.”. October 31, 2008 — Karen. At least that’s what Jonny kept saying as we had our annual pumpkin carving last night. Mark did all the yucky stuff for all of us (i.e. scooping out the pumpkin innards). Jonathan was so excited! I found a Gyarados pattern online. October 28, 2008 — Karen. The pumpkin patch...

2

May | 2014 | Ben and his Brothers: Life with 4 boys and CdLS

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Ben and his Brothers: Life with 4 boys and CdLS. Ben’s Early Months. About Ben, Our Family and CdLS. Ben’s Early Months. Contact me: benandhisbrothers@yahoo.com. CdLS Awareness Day 2014. May 10, 2014 — Karen. So, here we are three and a half years after my last post, on CdLS Awareness Day. Ben is now 8 years old. We can hardly believe it ourselves. He is doing remarkably well. He still continues to enjoy exceptionally good health. He is still a little guy, and weighs about 30 lbs. CdLS Awareness Day 2014.

3

January | 2009 | Ben and his Brothers: Life with 4 boys and CdLS

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Ben and his Brothers: Life with 4 boys and CdLS. Ben’s Early Months. About Ben, Our Family and CdLS. Ben’s Early Months. Contact me: benandhisbrothers@yahoo.com. Ben’s New Glasses. January 26, 2009 — Karen. We all love how Ben looks in them! Doesn’t he look cute? The photo above was taken in our church nursery yesterday morning. I think he’s finally starting to look more like a little boy than a baby. Afterwards, we went out for lunch, went to the mall for a bit:. So far, Ben’s response to his glas...

4

December | 2008 | Ben and his Brothers: Life with 4 boys and CdLS

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Ben and his Brothers: Life with 4 boys and CdLS. Ben’s Early Months. About Ben, Our Family and CdLS. Ben’s Early Months. Contact me: benandhisbrothers@yahoo.com. December 24, 2008 — Karen. Cornelia de Lange Syndrome. December 23, 2008 — Karen. 8220;We’re not sleepy at all! Cornelia de Lange Syndrome. Nate’s First Cold. December 19, 2008 — Karen. Isaac made him a get-well card. 8221; I can’t believe he remembered that day in such vivid detail. Isaac also made Nate a Christmas card last week:. Last Saturda...

5

What is CdLS? | Ben and his Brothers: Life with 4 boys and CdLS

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Ben and his Brothers: Life with 4 boys and CdLS. Ben’s Early Months. About Ben, Our Family and CdLS. Ben’s Early Months. Contact me: benandhisbrothers@yahoo.com. Cornelia de Lange Syndrome (CdLS) is a congenital syndrome (condition present from birth) that affects roughly 1 in 10,000 children. It is caused by a random genetic mutation (alteration in a gene). About 40% of affected individuals appear to have changes in a certain gene (. On Chromosome 5; about 5% of patients have mutations on the. In additi...

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it's the little things...: June 2008

http://lisaleonard.blogspot.com/2008_06_01_archive.html

Monday, June 30, 2008. Steve and i had a three night get-away to seattle over the weekend. our first time away from the boys for more than one night. I had planned to post while we were away, but the internet connection was too slow to upload pics. The weather got really warm over the weekend- up to about 100, but we still took it all in. we brunched at the space needle. Shopped around pike's place. Here we are at the top of the space needle. Yummy cookie, too! Friday, June 27, 2008. We've been working o...

lisaleonard.blogspot.com lisaleonard.blogspot.com

it's the little things...: August 2008

http://lisaleonard.blogspot.com/2008_08_01_archive.html

Sunday, August 31, 2008. So what have i been reading? I just finished 'love walked in' by marisa de los santos which is a fun, sweet story about a thirty-something woman whose life changes in a beautiful way. Now i am reading 'nights of rain and stars' by maeve binchy. she wrote 'circle of friends' (remember that book/movie from about 12 years ago? It was minnie driver's first big role). it took me a while to get into it, but i've really enjoyed the story and the characters. Notice a trend here? David is...

lisaleonard.blogspot.com lisaleonard.blogspot.com

it's the little things...: Chapter two, Labor and Delivery

http://lisaleonard.blogspot.com/2007/04/chapter-two-labor-and-delivery.html

Thursday, April 26, 2007. Chapter two, Labor and Delivery. Early the next morning they began the inducement process. First they start with a topical gel. That didn't do anything, so a few hours later they started a pitocin drip through my IV. The day went very slowly. There was a heaviness in the air. So many close friends and family were there. We felt very loved and supported, in the midst of the emotional strain. I looked her straight in the eye and took a bite. I wasn't in a mood to mess around.

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it's the little things...: May 2008

http://lisaleonard.blogspot.com/2008_05_01_archive.html

Saturday, May 31, 2008. Friday, May 30, 2008. Father's day is coming. Thursday, May 29, 2008. AKA set the pins up before David knocks them down! We have a long hallway between the living room and bedrooms that is just perfect for a little bowling alley. We picked up this set of plastic pins at Target. Have I ever mentioned how much I love Target? Wednesday, May 28, 2008. My boys got me a nikon D40 this year. wow! David having fun with daddy. good times! Silly david. sometimes breakfast is so funny! Longs...

lisaleonard.blogspot.com lisaleonard.blogspot.com

it's the little things...: March 2008

http://lisaleonard.blogspot.com/2008_03_01_archive.html

Sunday, March 30, 2008. Featured design for april and giveaway. Since last month's design was such a hit, i decided to stay in the same vein. Two hammered squares (About 1/2" each) are hung from a thick, sterling ring and strung on 18" sterling chain. A cream freshwater pearl adds the perfect detail. Each square can fit up to 6 characters. Oh, it's so perfect! 4600, additional charms $14.00. SoI am giving one away. Leave us a comment and tell us something fun scheduled for April. Such a fun blog! If you ...

lisaleonard.blogspot.com lisaleonard.blogspot.com

it's the little things...: July 2009

http://lisaleonard.blogspot.com/2009_07_01_archive.html

Thursday, July 16, 2009. At our new site lisaleonardonline.com. Subscribe to: Posts (Atom). Check out my hand-stamped jewelry! Featured Design for September. Sweet and Simple Bird Necklace. Easy ideas to connect with our kids. Of lisa leonard designs 2008. Central Coast, CA, United States. View my complete profile. Learn more about David. Chapter one, first signs of trouble. Chapter two, labor and delivery. Chapter three, time in the NICU. Chapter four, bringing David home. Chapter five, the clouds lift.

megzyworld.blogspot.com megzyworld.blogspot.com

Megzys World: Making a Mommy

http://megzyworld.blogspot.com/2008/12/making-mommy.html

CLICK HERE FOR THOUSANDS OF FREE BLOGGER TEMPLATES. Monday, December 1, 2008. So my friend Kadi from the. Is mentoring a young mother to be. She has taken a young girl under her wing who is newly pregnant. She is journaling the whole expereince on her new blog Making a Mommy. Thanks for the link. I'm sure it's such an interesting experience. December 1, 2008 at 7:43 PM. Subscribe to: Post Comments (Atom). My name is Megan and I am a proud mother to two great boys, Reece and Mason! View my complete profile.

megzyworld.blogspot.com megzyworld.blogspot.com

Megzys World: Win a $10.00 Starbucks Gift Card!!

http://megzyworld.blogspot.com/2008/11/win-1000-starbucks-gift-card.html

CLICK HERE FOR THOUSANDS OF FREE BLOGGER TEMPLATES. Wednesday, November 26, 2008. Win a $10.00 Starbucks Gift Card! Click Here For Details. November 27, 2008 at 9:18 AM. Subscribe to: Post Comments (Atom). My name is Megan and I am a proud mother to two great boys, Reece and Mason! My youngest son Mason has Cornelia de Lange Sydrome. Please visit CDLSUSA.ORG to learn more! I just graduated Nursing School this past May. I am looking forward to the new adventures that lie ahead! View my complete profile.

megzyworld.blogspot.com megzyworld.blogspot.com

Megzys World: The Most Wonderful Time of The Year!!

http://megzyworld.blogspot.com/2008/12/most-wonderful-time-of-year.html

CLICK HERE FOR THOUSANDS OF FREE BLOGGER TEMPLATES. Friday, December 26, 2008. The Most Wonderful Time of The Year! I could just eat both of them up! How ADORABLE x's 100! These made my night! December 26, 2008 at 9:20 PM. I'm so glad you posted some photos! I love the ones of both boys together. Hope you had a happy holiday! December 27, 2008 at 7:43 AM. I, too, was so excited to see these photos when I checked on you. The boys are cuties. Happy New Year. December 27, 2008 at 12:45 PM. Mommy to an angel.

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Ben and his Brothers: Life with 4 boys and CdLS | Life with 4 boys and Cornelia de Lange Syndrome.

Ben and his Brothers: Life with 4 boys and CdLS. Ben’s Early Months. About Ben, Our Family and CdLS. Ben’s Early Months. Contact me: benandhisbrothers@yahoo.com. CdLS Awareness Day 2014. May 10, 2014 — Karen. So, here we are three and a half years after my last post, on CdLS Awareness Day. Ben is now 8 years old. We can hardly believe it ourselves. He is doing remarkably well. He still continues to enjoy exceptionally good health. He is still a little guy, and weighs about 30 lbs. This means that we now ...

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