thrivingwithneurofibromatosis.blogspot.com
Thriving with Neurofibromatosis: Sensory Integration Disorder
http://thrivingwithneurofibromatosis.blogspot.com/p/sensory-integration-disorder.html
How NF Affects MY kids. Who Is Kristi Hopkins? Sometimes called "sensory integration" or SI) is a term that refers to the way the nervous system receives messages from the senses and turns them into appropriate motor and behavioral responses. Whether you are biting into a hamburger, riding a bicycle, or reading a book, your successful completion of the activity requires processing sensation or "sensory integration.". What Sensory Processing Disorder looks like. As a baby, our daughter was what the pediat...
thrivingwithneurofibromatosis.blogspot.com
Thriving with Neurofibromatosis: Hiding with Neurofibromatosis
http://thrivingwithneurofibromatosis.blogspot.com/2015/06/hiding-with-neurofibromatosis.html
How NF Affects MY kids. Who Is Kristi Hopkins? Wednesday, June 24, 2015. So, I've been working at the movie theater for 3 months now. I've made my presence known as someone who is hardworking and reliable. My favorite job there, is working in the cafe' as a barista.I get to make cool drinks and desserts.And I take a lot of pride in the products I send out to people. I am having a lot of fun, but I still struggle with being 'out there' - in front of people. It's a constant struggle. I always have cared...
thrivingwithneurofibromatosis.blogspot.com
Thriving with Neurofibromatosis: April 2015
http://thrivingwithneurofibromatosis.blogspot.com/2015_04_01_archive.html
How NF Affects MY kids. Who Is Kristi Hopkins? Wednesday, April 15, 2015. Links to this post. Wednesday, April 1, 2015. Been MIA.But I Have a Good Excuse. The last 2 weeks have been incredibly busy. Lots of good things have happened, and I am trying to find my groove and feeling a huge range of emotions, as I am learning to let go of some of the control and find new ways to trust the situation we are in. SoBasically, we could have appealed the decision, but instead .We chose to let it be. SoI dusted off ...
thrivingwithneurofibromatosis.blogspot.com
Thriving with Neurofibromatosis: March 2015
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How NF Affects MY kids. Who Is Kristi Hopkins? Wednesday, March 11, 2015. I did get hired, basically on-the-spot at the movie theater. :). My kids burst in cheers when they heard. My husband is quite excited as well :). Links to this post. Wednesday, March 4, 2015. I've been emailed a few times about my blog, and about the way I have chosen to look at my life with Neurofibromatosis. I know all about Neurofibromatosis. If your life is spent focusing on the negativity, that's exactly what your life will br...
thrivingwithneurofibromatosis.blogspot.com
Thriving with Neurofibromatosis: July 2015
http://thrivingwithneurofibromatosis.blogspot.com/2015_07_01_archive.html
How NF Affects MY kids. Who Is Kristi Hopkins? Monday, July 27, 2015. We ALL desire that human connection. The feeling when you connect with someone who TRULY gets it. It's a rare thing in the world of Neurofibromatosis. And I have yet to meet someone - that sticks around long enough to even begin to relate to what it's really like having NF. We're ALL different. We all have our struggles. Anyway.back to what this blog post was meant to be.That human connection. When I see someone who has NF walking arou...
thrivingwithneurofibromatosis.blogspot.com
Thriving with Neurofibromatosis: Who Is Kristi Hopkins?
http://thrivingwithneurofibromatosis.blogspot.com/p/who-is-kristi-hopkins.html
How NF Affects MY kids. Who Is Kristi Hopkins? Who Is Kristi Hopkins? I'm Kristi.A 39 year old, mother to six kiddos. I have Neurofibromatosis type 1. I grew up in a family where Neurofibromatosis was curse word. The utter mention of it grew guilt and fear in my parents. Understandably so. Using the fear and turning it into doing something productive and positive! Three of my children got the 'official' NF diagnosis, after I did. Do you regret having children? I do wish I had more knowledge BEFORE I chos...
thrivingwithneurofibromatosis.blogspot.com
Thriving with Neurofibromatosis: January 2015
http://thrivingwithneurofibromatosis.blogspot.com/2015_01_01_archive.html
How NF Affects MY kids. Who Is Kristi Hopkins? Friday, January 30, 2015. How Do You Manage? I was asked by a mother, who is dealing with a new diagnosis of NF for her young son, what a life with NF looks like.And how we manage the everyday symptoms. This answer is different for every one and there is no simple answer. I wish there was a handbook.Or set of rules to follow.Heck, I wish that there was AT LEAST an affective treatment. Here are some ways our family manages. To control it is wasted effort.
thrivingwithneurofibromatosis.blogspot.com
Thriving with Neurofibromatosis: Off to Camp!
http://thrivingwithneurofibromatosis.blogspot.com/2015/06/off-to-camp.html
How NF Affects MY kids. Who Is Kristi Hopkins? Monday, June 1, 2015. The kids have been gone for over 24 hours now.The house is empty.And I am feeling like I want to accomplish ALL these things.But.I am having a rough time getting my mind (and I guess my body) motivated. All I want to do is - NOTHING. I want to soak up the quietness and rest. Our home has never once been this quiet, so taking advantage of this time is important.So- why can't I push through and actually GET SOMETHING DONE? Living My Life ...
thrivingwithneurofibromatosis.blogspot.com
Thriving with Neurofibromatosis: May 2015
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How NF Affects MY kids. Who Is Kristi Hopkins? Thursday, May 28, 2015. I don't even know what to think.Or how to process this. So I am going to try and write this out. Maybe .JUST MAYBE it will help sort out how I am feeling. Probably not tho. Sometimes.REALLY CRAPPY things happen.And there is no way to make sense out of them. Terry Canfield was Rich's friend - I think they met through Toastmasters. Just a selfless act, to help us get back onto out feet. Terry never once asked for anything in return.
thrivingwithneurofibromatosis.blogspot.com
Thriving with Neurofibromatosis: I am a Work in Progress
http://thrivingwithneurofibromatosis.blogspot.com/2015/07/i-am-work-in-progress.html
How NF Affects MY kids. Who Is Kristi Hopkins? Wednesday, July 8, 2015. I am a Work in Progress. After Rachel was taken off disability, I sorta panicked. This meant no health insurance.And I was left scrambling.Trying to figure out what to do. She needed an MRI.She has been complaining of headaches and dizziness for a while.And a tiny part of me was feeling that I was glad she didn't have insurance.Because I was dreading discovering that her little 'something'.could be a BIG something. How old is Rachel?
SOCIAL ENGAGEMENT