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Little Gonzo: The week in review
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Friday, January 25, 2013. The week in review. Levi had a fantastic week. It started off with an OT evaluation that confirms he is making excellent progress. He was evaluated at a 23 month year old skill set. He can now stack up to 5 blocks which is up from when I last participated in his OT session a few months ago. He is also able to draw but doesn’t yet imitate straight lines or circles. This is great progress. Sometime I feel like I under estimate his abilities which I think is natural. While he was w...
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Little Gonzo: A new milestone today!
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Sunday, December 16, 2012. A new milestone today! I always get excited when I see Levi do something for the first time. Today, Levi climbed down the stairs by himself. When he got to the edge of the stairs, he turned himself around and made his way down backwards. Of course I was behind him all the way but he certainly didn’t need my help. Usually he would attempt to go head first so it was wonderful to see him maneuver himself down. Way to go buddy! Subscribe to: Post Comments (Atom). Our story begins w...
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Little Gonzo: School Days
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Sunday, January 13, 2013. In a few short weeks Levi will be turning 3. How the time has flown by! What that means for him is that he will be leaving the Early Steps program and entering the school system. Levi will be attending a special class at Shady Hills Elementary with 13 other children who have special needs. We are told that Levi will be the only one in the class with a physical disability. On Friday we went down to visit the school and meet with everyone involved. He qualifies for a lot. We didn&...
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Little Gonzo: June 2015
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Wednesday, June 3, 2015. It takes a village. You are all probably familiar with the saying “it takes a village to raise a child”. This couldn’t be more true when it comes to raising a special needs child. Your support group is one of the biggest assets you have. Levi has a lot of people who love and support him and wouldn’t be where he is today without them. I can’t tell you how much we appreciate every last one of them! We hope our experiences has helped you as well. To our family: Your willingness to h...
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Little Gonzo: New Braces!
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Friday, January 18, 2013. On Tuesday, Levi received a new pair of braces. They were recommended by the physical therapist as a way to keep him from walking on his toes. This is a pretty common occurrence once the child’s legs become stronger. His old braces just went above his ankle. As you can see from the photo above, these braces will go about half way up his leg. Day one with the new braces wasn’t without its challenges. First of all, they are difficult to get on. Needless to say, Tuesday was a very ...
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Little Gonzo: What is normal?
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Thursday, January 31, 2013. As a parent, it is exciting to watch your child develop from the moment they are born. We look forward to when they can hold their own head up. When they can rollover. When they can sit up by themselves. When they go from crawling to cruising to walking. These are commonly referred to as milestones and every child hits these milestones at their own pace. My oldest daughter was ahead of the curve and hit her milestones early. We didn’t know why. We spent hours upon hours resear...
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Little Gonzo: Getting everyone on the same page.
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Friday, April 24, 2015. Getting everyone on the same page. One of our many challenges is making sure that Levi’s support team is on the same page. Even when Levi was very young, different doctors wanted to treat the same symptoms in a different way. In the end, we got the two therapists in touch with each other to discuss it. After a brief call they were able to settle on the best course of action for Levi. The braces turned out great and Levi is doing really well with them. About The Levi Project. Last ...
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Little Gonzo: December 2012
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Thursday, December 27, 2012. Yesterday Caroline had a very simple conversation with Levi. The girls were coloring in the playroom. Levi was in there too and looked to be interested in coloring as well. Caroline asked him if he would like to color. We usually ask him questions based on his hand gestures or when he signs. He doesn’t usually respond verbally. We just put him in position to do whatever it is he asked for. This time when Caroline asked him if he wanted to color, he said “yeah”. The girls woul...
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Little Gonzo: February 2013
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Saturday, February 16, 2013. Last Saturday Levi celebrated his 3. These last 3 years have just flown by and we are very proud of what he has accomplished. He continues to get stronger in his legs and can now stand on his own for 5 to 10 seconds at a time. He is also cruising a lot more these days. He has been making great strides in speech therapy as well. The other day he said bubble and hi. We really feel like this is going to be a breakout year for him. Overall it went well. It all happened so fast.
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