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Liams Lodge - Helping Children suffering from Battens Disease

Welcome to Liams Lodge - a project of the Saoirse Foundation based in Tralee, Co. Kerry In Ireland.

http://www.liamslodge.com/

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CONTACTS AT LIAMSLODGE.COM

Eamon Mulvihill

Lawl●●●●ross

Kil●●●ney , Co. Kerry, -

IE

353.●●●●2302
ne●@iol.ie

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Eamon Mulvihill

Lawl●●●●ross

Kil●●●ney , Co. Kerry, -

IE

353.●●●●2302
ne●@iol.ie

View this contact

Eamon Mulvihill

Lawl●●●●ross

Kil●●●ney , Co. Kerry, -

IE

353.●●●●2302
ne●@iol.ie

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Liams Lodge - Helping Children suffering from Battens Disease | liamslodge.com Reviews
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Welcome to Liams Lodge - a project of the Saoirse Foundation based in Tralee, Co. Kerry In Ireland.
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1 about us
2 liam’s story
3 founder and ceo
4 our patrons
5 about batten disease
6 gallery
7 governance and compliance
8 board of directors
9 get involved
10 volunteer
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Liams Lodge - Helping Children suffering from Battens Disease | liamslodge.com Reviews

https://liamslodge.com

Welcome to Liams Lodge - a project of the Saoirse Foundation based in Tralee, Co. Kerry In Ireland.

INTERNAL PAGES

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1

News & Events | Liam's Lodge

https://www.liamslodge.com/category/news-events

Keep in touch with us. May 23rd, 2016 0 Comments. A massive THANK YOU to the amazing students and teachers at Loughfouder National School, Knocknagoshel who raised 300.00 on behalf of Liam's Lodge. You are brilliant! Special thanks to Principal Ms. Liz Lane, Teacher Ross Walsh and SNA Maura Culhane for making us feel SO very welcome! The Saoirse Foundation 6th Birthday Today. March 31st, 2016 0 Comments. The Saoirse Foundation 6th Birthday Today 31 MARCH 2016 IT’s TIME TO CELEBRATE! 8th Annual Rare Disea...

2

Downloads | Liam's Lodge

https://www.liamslodge.com/downloads

Keep in touch with us. My Time and Services. No products in the cart. Why are we doing this? Our Progress so far. Terms & Conditions. Sign up to our Newsletter. Castledrum, Castlemaine, County Kerry, V93 X7R8. Website by Redbox Branding. And Egg Design and Development.

3

Donate | Liam's Lodge

https://www.liamslodge.com/donate

Keep in touch with us. On behalf of the children and families that will benefit from your donation we say THANK YOU. We greatly appreciate your support. Without you we could not do the work that we do. 8211; Tony and Mary Heffernan. If you would like to make an online donation please click above. Text DINO to 50300 to donate 4. Liams Lodge will receive a minimum of 3.25. Service Provider: LIKECHARITY. Helpline: 076 6805278. If you would like to donate by cheque, bank draft or postal order our details are:.

4

Who are we? | Liam's Lodge

https://www.liamslodge.com/who-are-we

Keep in touch with us. At the Saoirse Foundation we Make Positive Life Impacts For Sick Children. Why are we doing this? Tony and Mary Heffernan know what it is like to look after highly dependent children. Both of their children, Saoirse and Liam, were born with Battens Disease, a rare fatal neurological condition. Saoirse passed away in 2011. Around 280-370,000 people). 70% of all those affected are children. Diseases that are statistically rare, but not also life-threatening, chronically debilitating,...

5

Training | Liam's Lodge

https://www.liamslodge.com/trainin

Keep in touch with us. LIAM’S LODGE will provide a unique opportunity to provide specialised on-site training packages for care givers, medical professionals and trainees and not forgetting the children’s personal and special needs assistants with the skills required for helping children affected by Genetic and Rare Disorders and high dependency caring. Dr Paula Byrne,. Senior Lecturer, Medical Sciences. My Time and Services. No products in the cart. Why are we doing this? Our Progress so far.

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Our Partners | BUMBLEance - The Children's National Ambulance Service

https://www.bumbleance.com/our-partners

360 Virtual Tour of BUMBLEance. Ryan & Sophie’s Story. Miss Ellie’s Story. Get Your School Involved. Navan to Galway Cycle. Was successfully added to your cart. Cobh, Co. Cork. Blackrock Co. Dublin. Ballsbridge, Dublin 4. Rathcoole, Co. Dublin. We would love to hear from you too! We are always open to hear from potential and new corporates and individuals who are offering to support the foundation, financially, voluntarily or in any other capacity. Your help will make the difference. Navan to Galway Cycle.

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Cystinosis - Media

http://www.cystinosis.ie/media.aspx

Jun 27, 2016. CYSTINOSIS IRELAND EVENTS CALENDAR LAUNCHED. Details of all forthcoming events of interest to all of our friends and donors are now available: Find out more. May 19, 2016. Kidney International - June issue. KDIGO Conference - outcomes published Find out more. Feb 26, 2016. VHI Women's Mini Marathon 2016. Register now at www.vhiwomensminimarathon.ie to secure your place in the biggest road race of the year Find out more. Jan 29, 2016. Media Publications and Articles of Interest. A very large...

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Our Vision | BUMBLEance - The Children's National Ambulance Service

https://www.bumbleance.com/our-vision

Get Your School Involved. 360 Virtual Tour of BUMBLEance. Ryan & Sophie’s Story. Miss Ellie’s Story. Was successfully added to your cart. Our vision is to provide improved and professional medical transportation services for long-term sick and seriously disabled children, who require professional ambulance transportation. We will transport children in a fun environment from the far reaches of Ireland, both urban and rural, to their treatment centres. The Board of the Saoirse Foundation are committed to b...

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Our Ambulances | BUMBLEance - The Children's National Ambulance Service

https://www.bumbleance.com/ambulance

360 Virtual Tour of BUMBLEance. Ryan & Sophie’s Story. Miss Ellie’s Story. Get Your School Involved. Navan to Galway Cycle. Was successfully added to your cart. Is the most modern children’s ambulance service on the planet and it is the world’s first interactive ambulance specifically designed for children, with the capacity to operate the latest medical equipment and inter hospital communication systems. Shows vehicle location, speed and current operational status in real time. A suite of purpose-de...

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Gallery | BUMBLEance - The Children's National Ambulance Service

https://www.bumbleance.com/gallery

360 Virtual Tour of BUMBLEance. Ryan & Sophie’s Story. Miss Ellie’s Story. Get Your School Involved. Navan to Galway Cycle. Was successfully added to your cart. Longest Day for BUMBLEance 2014. Please Donate to BUMBLEance. Ryan and Sophie's Story. Sign up to our newsletter 'BUZZ'. BUMBLEance c/o The Saoirse Foundation, Castledrum, Castlemaine, County Kerry, V93 X7R8. 360 Virtual Tour of BUMBLEance. Ryan & Sophie’s Story. Miss Ellie’s Story. Get Your School Involved. Navan to Galway Cycle.

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Liam's Story | BUMBLEance - The Children's National Ambulance Service

https://www.bumbleance.com/our-stories/liams-story

360 Virtual Tour of BUMBLEance. Ryan & Sophie’s Story. Miss Ellie’s Story. Get Your School Involved. Navan to Galway Cycle. Was successfully added to your cart. This is Liam Heffernan, born on July 3rd 2008, this little man had a life that most adults could not relate to. In 2011 he lost his only sibling, Saoirse who was 5 years old when she lost her battle against Batten Disease, a Rare and Fatal genetic disorder which causes the brain to die. Liam also had Batten Disease. Prior to Liam’s passing,...

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BUMBLEance Tracking | BUMBLEance - The Children's National Ambulance Service

https://www.bumbleance.com/bumbleance-tracking

360 Virtual Tour of BUMBLEance. Ryan & Sophie’s Story. Miss Ellie’s Story. Get Your School Involved. Navan to Galway Cycle. Was successfully added to your cart. Help us deliver smiles to sick children today. BUMBLEance is the most modern children’s ambulance service on the planet! BUMBLEance is fitted with an Acetech system, a state-of-the-art control, monitoring and tracking system incorporating real-time remote diagnostic and reporting capability. Please Donate to BUMBLEance. Ryan and Sophie's Story.

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Jack's Story | BUMBLEance - The Children's National Ambulance Service

https://www.bumbleance.com/jacks-story

360 Virtual Tour of BUMBLEance. Ryan & Sophie’s Story. Miss Ellie’s Story. Get Your School Involved. Navan to Galway Cycle. Was successfully added to your cart. Jack Beattie was 4 on March 23, he lives with his Mum and Dad Ruth and Kenneth. Little Jack sums up how happy he was on BUMBLEance saying, thumbs up and high-five to BUMBLEance! Please Donate to BUMBLEance. Ryan and Sophie's Story. Sign up to our newsletter 'BUZZ'. 360 Virtual Tour of BUMBLEance. Ryan & Sophie’s Story. Miss Ellie’s Story.

whatson4littleones.ie whatson4littleones.ie

What's On 4 Little Ones - Charity , Saoirse Foundation

http://www.whatson4littleones.ie/charity.asp

Part of What's On 4. Mums 4 Mums Review. Welcome to our National Homepage -. We have full details of thousands. Of classes and activities. For babies, toddlers and pre school children. All local to you. Welcome to The Saoirse Foundation. At the Saoirse Foundation we are working towards creating a better world for critically ill children all over Ireland. We have three main projects where we work on making positive life impacts for sick children. Motivate the public and ourselves, via an Effective Managem...

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Adam's Story | BUMBLEance - The Children's National Ambulance Service

https://www.bumbleance.com/adams-story

360 Virtual Tour of BUMBLEance. Ryan & Sophie’s Story. Miss Ellie’s Story. Get Your School Involved. Navan to Galway Cycle. Was successfully added to your cart. Adam king was born in October 2014. He was diagnosed with a severe form of Osteogenesis imperfecta (brittle bone disease) before birth. Adam lives in Killeagh, Co. Cork with parents Dave and Fiona, brothers Danny and Robert and sister Katie. Please Donate to BUMBLEance. Ryan and Sophie's Story. Sign up to our newsletter 'BUZZ'. 2016 BUMBLEance - ...

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Supporting services & research for those impacted by SSADH & other neurological disabilities.

Supporting services and research for those impacted by SSADH and other neurological disabilities. Click Here to Learn More. The SSADH Research Alliance invites you to join us for the 7th Annual Liam’s Links Golf Tournament! Monday, May 15, 2017. Salisbury Country Club in Richmond, VA. Golfing starts at 12pm. Reception begins at 5pm. Learn More About the Tournament. You can also click here. To register to golf, click here. To become a sponsor,. To RSVP to the reception. This slideshow requires JavaScript.

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Liams Lodge - Helping Children suffering from Battens Disease

Liams Lodge - Ireland National Respite Centre for Kids with Rare Diseases. About Liam’s Lodge. About the Saoirse Foundation. Rare Diseases in Ireland. Welcome to Liam’s Lodge. This fantastic project will be a sanctuary from the daily challenges of life which affect the whole family unit, particularly for those whose children have severely debilitating and life limiting conditions. Liam’s Lodge will open up space for much needed joy, hope, friendship, comfort and happy memories, and will be of enormou...

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