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Lil Bit's Journey | Chronicling a Spina Bifida diagnosis

Chronicling a Spina Bifida diagnosis

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Lil Bit's Journey | Chronicling a Spina Bifida diagnosis | lilbitsjourney.wordpress.com Reviews

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Chronicling a Spina Bifida diagnosis

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October | 2012 | Lil Bit's Journey

https://lilbitsjourney.wordpress.com/2012/10

Lil Bit's Journey. Chronicling a Spina Bifida diagnosis. Monthly Archives: October 2012. October 2, 2012. That means it is Spina Bifida Awareness Month. I’ll be honest…I often forget. I don’t think about it. October sneaks up on me and I’m like “oh, yeah…I should try to help in that awareness”. My daughter is on the mild end, as one affected by Spina Bifida, a neural tube defect that affects some 1,500 babies every year. She was not born with an open lesion. Something I am reminded of as I watch my 22 mo...

2

February | 2013 | Lil Bit's Journey

https://lilbitsjourney.wordpress.com/2013/02

Lil Bit's Journey. Chronicling a Spina Bifida diagnosis. Monthly Archives: February 2013. February 7, 2013. I haven’t checked in for a while. My apologies. It’s just that when she’s progressing along, she is just that…progressing along. And there is seemingly not much to report. But I suppose I could break things down for you a bit. Back in November she really started cruising. She would walk along furniture and walls in short spurts and take a few wobbly steps on her own. Once again it was a depressing ...

3

Therapy Continues | Lil Bit's Journey

https://lilbitsjourney.wordpress.com/2012/06/01/therapy-continues

Lil Bit's Journey. Chronicling a Spina Bifida diagnosis. June 1, 2012. I haven’t updated here in a while, so sorry. There’s just so little to report now, yet, at the same time, I guess a lot, for those on the outside. LilBit has been receiving physical therapy here at home twice a month. It’s nothing dramatic. The therapist watches her a bit, sees what her natural skills and inclinations are then tries to encourage her to try something else. The Shoe Saga Begins. Clinic at 20 months →. June 1, 2012 at 5:...

4

June | 2012 | Lil Bit's Journey

https://lilbitsjourney.wordpress.com/2012/06

Lil Bit's Journey. Chronicling a Spina Bifida diagnosis. Monthly Archives: June 2012. June 1, 2012. I haven’t updated here in a while, so sorry. There’s just so little to report now, yet, at the same time, I guess a lot, for those on the outside. LilBit has been receiving physical therapy here at home twice a month. It’s nothing dramatic. The therapist watches her a bit, sees what her natural skills and inclinations are then tries to encourage her to try something else. View all 4 comments. Nearing the F...

5

Clinic at 20 months | Lil Bit's Journey

https://lilbitsjourney.wordpress.com/2012/08/10/clinic-at-20-months

Lil Bit's Journey. Chronicling a Spina Bifida diagnosis. Clinic at 20 months. August 10, 2012. LilBit had SB Clinic this week. I had already planned to talk to them about a new brace for her as she is reaching the end of hers. Also, her PT had mentioned me talking to the other PT (who prescribed the brace) about possibly going to the taller one. So, I had planned to talk to the drs and then see if they could schedule me with their PT again. (figuring I could probably get in faster, kwim? In other news, a...

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A Wheelie Big Day – Lake Stout

https://fourstoutranch.wordpress.com/2016/02/03/a-wheelie-big-day

Do not be conformed to this world… Romans 12:2. A Wheelie Big Day. February 3, 2016. March 9, 2016. Today is the day we have been waiting for, Korie finally has her big chair. We started the process to get it way back in late September or early October. And such is the cycle of special needs and equipment, we’re lucky she hasn’t already outgrown it! Our fabulous PT Mandy. And Action Seating and Mobility. Worked super hard to help us get what we wanted and I am so thankful. Stuck in the Muck. You are comm...

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April 2015 – Lake Stout

https://fourstoutranch.wordpress.com/2015/04

Do not be conformed to this world… Romans 12:2. Wow, what a week! Wow, what a week! April 25, 2015. April 26, 2015. Things have been fairly quite around here the last few months. I like it when our life is too boring to blog about. Then this last week happened. It is so much easier for me to come over to the blog and update everyone than it is to rehash over and over what has gone… Continue reading Wow, what a week! Follow Blog via Email. Lil Bit's Journey. Confessions of a Homeschooler.

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Update on Korie- surgery Tuesday – Lake Stout

https://fourstoutranch.wordpress.com/2015/06/01/update-on-korie-surgery-tuesday

Do not be conformed to this world… Romans 12:2. Update on Korie- surgery Tuesday. June 1, 2015. June 1, 2015. A few excerpts from Dr. Warf’s note for those interested…. 8220;I obtained scoliosis spine x-ray on her during the clinic visit. This demonstrated a 46 degree thoracolumbar curve convex to the left. Because there did not appear to be any segmentation formation deformities, this appears to be a neurogenic scoliosis that is already quite significant in its severity.”. Korie loved the pool. I am bum...

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Lake Stout – Page 2 – Do not be conformed to this world… Romans 12:2

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Do not be conformed to this world… Romans 12:2. Korie’s first set of wheels. Korie’s first set of wheels. November 3, 2014. November 4, 2014. How many times do you think I’ve heard, “my cousin’s, wife’s, brother’s little one has Spina Bifida and you can’t even tell. He walks all over the place”? Too many to count. I am happy for them. I really am. I’m a cheerleader for everyone with Spina Bifida, young and old. But I want to… Continue reading Korie’s first set of wheels. Shake it Off Spina Bifida. Who wo...

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January 2015 – Lake Stout

https://fourstoutranch.wordpress.com/2015/01

Do not be conformed to this world… Romans 12:2. Korie’s MRI results. Korie’s MRI results. January 16, 2015. January 17, 2015. Wow, the blog has been quite lately. I didn’t realize November was the last time I wrote. I was reading the last post about Korie’s new wheels and realized I never went back and added that she started army crawling the very same week we started using the ZipZac. Maybe it was just a coincidence… Continue reading Korie’s MRI results. Follow Blog via Email. Lil Bit's Journey.

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November 2014 – Lake Stout

https://fourstoutranch.wordpress.com/2014/11

Do not be conformed to this world… Romans 12:2. Korie’s first set of wheels. Korie’s first set of wheels. November 3, 2014. November 4, 2014. How many times do you think I’ve heard, “my cousin’s, wife’s, brother’s little one has Spina Bifida and you can’t even tell. He walks all over the place”? Too many to count. I am happy for them. I really am. I’m a cheerleader for everyone with Spina Bifida, young and old. But I want to… Continue reading Korie’s first set of wheels. Follow Blog via Email.

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Korie’s MRI results – Lake Stout

https://fourstoutranch.wordpress.com/2015/01/16/kories-mri-results

Do not be conformed to this world… Romans 12:2. Korie’s MRI results. January 16, 2015. January 17, 2015. He is not afraid of bad news: his heart is firm, trusting in the Lord. His heart is steady; he will not be afraid. Then I went on over to Psalm 118 –. It is better to take refuge in the Lord than to trust in man. I clung to this verse during pregnancy and now I was finding comfort in it again. 8220;Dear Mrs. Stout,. So a couple of things here. 1) To God be the glory. Korie is really doing very well&#4...

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Oh Baby....Times Two: June 2013

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Oh Baby.Times Two. Saturday, June 15, 2013. JD loves all things airplanes so after picking Kimber up from the airport we decided to check out the Lyon Air Museum. Both kids had a great time but JD particularly thought he had died and gone to heaven:. Wandering around in awe of the huge planes. The way he says airplane sounds like "Ar-bee" (only a mother could interpret it I think) and he just kept walking around saying "Ar-bee! Getting a view from underneath. Watching the planes take off. I have not had ...

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Oh Baby....Times Two: November 2014

http://joshandmaia.blogspot.com/2014_11_01_archive.html

Oh Baby.Times Two. Thursday, November 13, 2014. Star of the Week. Miss Maia is SOOOOO excited to be the Star of the Week. :-) She gets to help her teacher, bring snacks, lead the line to recess, and answer the following questions about herself to her classmates:. Family Members: Mommy, Daddy, Grandpa, Grandma, JD. Favorite Food: Mac 'n Cheese. Subscribe to: Posts (Atom). Nothing Better Than A Good Book. Tagged: fiction and history. Bloom: Finding Beauty in the Unexpected- A Memoir. The Gifts of Imperfect...

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Oh Baby....Times Two: May 2014

http://joshandmaia.blogspot.com/2014_05_01_archive.html

Oh Baby.Times Two. Tuesday, May 6, 2014. Today's lift-me-up from A Deeper Story. JD didn't sleep for the first 6 months of his life, and Maia was recovering from back surgery during months 7 and 8 and didn't sleep particularly well. So I didn't sleep for 8 months.almost killed me I think, but, after that they slept miraculously. Like clockwork. Amazing. Wonderful nappers, great at night, etc etc etc. Until their 3rd birthday. Too much SoCal sunshine? Subscribe to: Posts (Atom). Tagged: fiction and history.

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Lil Bit's Journey | Chronicling a Spina Bifida diagnosis

Lil Bit's Journey. Chronicling a Spina Bifida diagnosis. September 26, 2016. She will go for three weeks of casting starting in November. Then surgery will be at the end of the month. Eff You Spina Bifida! August 24, 2016. I bumped her solution down as the aftershocks weren’t very messy at all, mostly water (even when output at time of cone was ‘ideal’ consistency). They have lessened, but still happening. What The. Flip. Is going on? I’m just so weary right now. June 8, 2016. Five and a half years old.

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Petrie Creative is an integrated creative firm located in Raleigh, North Carolina. We thrive on creating new brand experiences and compelling storytelling in both printed and online environments. We offer brand strategy and development, creative direction, graphic design, interactive development, typography and illustration work to a wide sector of clients and industries. To learn more about our services, please view our portfolio or contact Michelle Petrie. Antonio’s Tex Mex. Jackson Ruiz Salon Spa.