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Welcome to Lily Voelkel Foundation | Lily Voelkel Foundation

Learn more about iPad Applications and make learning fun (while taking breaks from the heat!)! Apps of all developmental levels and several to be enjoyed by deaf and blind children as well! Learn m

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Welcome to Lily Voelkel Foundation | Lily Voelkel Foundation | lilyvoelkel.com Reviews
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Learn more about iPad Applications and make learning fun (while taking breaks from the heat!)! Apps of all developmental levels and several to be enjoyed by deaf and blind children as well! Learn m
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1 lily's story
2 videos
3 resources
4 intervenor
5 what's new
6 charge faq
7 volunteers
8 see older posts
9 lily voelkel foundation
10 what's happening
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Welcome to Lily Voelkel Foundation | Lily Voelkel Foundation | lilyvoelkel.com Reviews

https://lilyvoelkel.com

Learn more about iPad Applications and make learning fun (while taking breaks from the heat!)! Apps of all developmental levels and several to be enjoyed by deaf and blind children as well! Learn m

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1

12th International CHARGE Syndrome Conference | Lily Voelkel Foundation

http://www.lilyvoelkel.com/12th-charge-syndrome-conference

Skip to main content. 12th International CHARGE Syndrome Conference. 12th International CHARGE Syndrome Conference held at the Chicago Renaissance Schaumburg Hotel on July 30-August 2, 2015. Thursday, July 30, 2015 (All day). Friday, July 31, 2015 (All day). Saturday, August 1, 2015 (All day). Sunday, August 2, 2015 (All day). Aug 5-7, 2016. 13th Annual International CHARGE Conference. July 27-30, 2017. Rosen Shingle Creek Hotel, Orlando FL.

2

A Day Not Soon Forgotten... | Lily Voelkel Foundation

http://www.lilyvoelkel.com/a-day-not-soon-forgotten

Skip to main content. A Day Not Soon Forgotten. Matthew 17:20 If you have faith as small as a mustard seed, you can say to the mountain ‘Move from here to there’ and it will move. Nothing will be impossible for you. What a day February 7, 2013 was! We met Orion and Oliana two exceptional, steadfast examples of personal courage and unconditional love just like our Lily. It was so fulfilling to make a stamp in the homes of these children’s’ lives. Miss Oliana. A 5-year-old spirited young girl. She ...Thank...

3

Lily's Story | Lily Voelkel Foundation

http://www.lilyvoelkel.com/lily-voelkels-story

Skip to main content. Lily Korinne Voelkel was born on June 23, 2009 weighing 6 pounds, 13 ounces and measuring 19 inches long. Lily died on May 14, 2012 after almost 3 years of an exceptionally courageous journey of various medical conditions. Lily was born with several other anomalies to include cranio-facial deformities and optic deletions. Lily was trached and on a ventilator because she suffers from chronic lung disease. She had various stomach anatomy issues and feeding issues. She ate ...After con...

4

CHARGE FAQ | Lily Voelkel Foundation

http://www.lilyvoelkel.com/charge-faq

Skip to main content. CHARGE Syndrome is a complex genetic condition seen in about 1 in 10,000 births. A diagnosis of CHARGE is made using major and minor clinical features or by finding a mutation in the CHD7 gene. It is sporadic with no other affected family members. Oloboma of the eye. Tresia of the choanae. Etardation of growth and/or development. Enital and/or uriniary abnormalities. Ar abnormalities and deafness. Please visit chargesyndome.org. Aug 5-7, 2016. July 27-30, 2017.

5

What's New | Lily Voelkel Foundation

http://www.lilyvoelkel.com/whats-new

Skip to main content. Lilliworks Active Learning Foundation. Provides guidance, resources and tools of active learning for development of those with blindness, cerebral palsy, developmental delays, deafblindness and other significant disabilities. Sign up to receive the Braille Special Collection for Kids Begin your own home Braille Library at no cost call 1-800-BRAILLE. 20 Stay Put Activities for developmentally young children with sensory impairments and other special needs. Have an iPhone or iPad?

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Lily Voelkel Foundation :: LINK Creative Portfolio

http://www.linkcreative.org/portfolio_lily_voelkel_foundation.php

LINK Creative, LLC. Why We Are Different. Services What we offer. Contact Send us an email. Lily Voelkel Foundation was founded to increase awareness of CHARGE syndrome as well as provide helpful resources to those who living with it. Drupal Content Management System, jQuery based Slide show, Custom Views, Custom Search Views, Contact Form, CSS3 and ImageCache. Laquo; Prev work title. Next work title ».

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Welcome to Lily Voelkel Foundation | Lily Voelkel Foundation

Skip to main content. Welcome to Lily Voelkel Foundation. Learn more about iPad Applications and make learning fun (while taking breaks from the heat! Apps of all developmental levels and several to be enjoyed by deaf and blind children as well! More Resonance Boards now available! If interested please contact us! Resonance Board Delivery to Richardson ISD. Just imagine it. What if you couldn’t hear but could see. You couldn’t see but could hear. What’s worse? Losing sight or sound? Aug 4-6, 2017. The mo...

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