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Find Families - Linked by Heart

To load this Caspio Online Database. SISTERS BY HEART AND LINKED BY HEART ARE INTENDED TO BE SUPPORT GROUPS ONLY. WE DO NOT HAVE ANY MEDICAL EXPERTISE. WE ARE HERE TO GIVE OUR PERSONAL EXPERIENCES AND OFFER OUR SUPPORT FOR NEWLY DIAGNOSED PARENTS GOING THROUGH THIS HLHS JOURNEY. ANY ADVICE OR SUGGESTIONS WE MAY GIVE DO NOT TAKE THE PLACE OF MEDICAL ADVICE. YOU ARE STRONGLY ENCOURAGED TO SPEAK WITH A MEDICAL PROFESSIONAL REGARDING YOUR CHILD'S SPECIFIC CONDITION. Free web template by Free Website Templates.

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CONTACTS AT LINKED-BY-HEART.ORG

Sisters by Heart

Kathy Baker

P.O.●●●● 511

El ●●●ndo , CA, 90245

US

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in●●@sisters-by-heart.org

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Kathy Baker

P.O.●●●● 511

El ●●●ndo , CA, 90245

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Sisters by Heart

Kathy Baker

P.O.●●●● 511

El ●●●ndo , CA, 90245

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1.31●●●●0176
in●●@sisters-by-heart.org

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To load this Caspio Online Database. SISTERS BY HEART AND LINKED BY HEART ARE INTENDED TO BE SUPPORT GROUPS ONLY. WE DO NOT HAVE ANY MEDICAL EXPERTISE. WE ARE HERE TO GIVE OUR PERSONAL EXPERIENCES AND OFFER OUR SUPPORT FOR NEWLY DIAGNOSED PARENTS GOING THROUGH THIS HLHS JOURNEY. ANY ADVICE OR SUGGESTIONS WE MAY GIVE DO NOT TAKE THE PLACE OF MEDICAL ADVICE. YOU ARE STRONGLY ENCOURAGED TO SPEAK WITH A MEDICAL PROFESSIONAL REGARDING YOUR CHILD'S SPECIFIC CONDITION. Free web template by Free Website Templates.
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Find Families - Linked by Heart | linked-by-heart.org Reviews

https://linked-by-heart.org

To load this Caspio Online Database. SISTERS BY HEART AND LINKED BY HEART ARE INTENDED TO BE SUPPORT GROUPS ONLY. WE DO NOT HAVE ANY MEDICAL EXPERTISE. WE ARE HERE TO GIVE OUR PERSONAL EXPERIENCES AND OFFER OUR SUPPORT FOR NEWLY DIAGNOSED PARENTS GOING THROUGH THIS HLHS JOURNEY. ANY ADVICE OR SUGGESTIONS WE MAY GIVE DO NOT TAKE THE PLACE OF MEDICAL ADVICE. YOU ARE STRONGLY ENCOURAGED TO SPEAK WITH A MEDICAL PROFESSIONAL REGARDING YOUR CHILD'S SPECIFIC CONDITION. Free web template by Free Website Templates.

INTERNAL PAGES

linked-by-heart.org linked-by-heart.org
1

Linked by Heart - Supporting and Linking HLHS Families across the country

http://www.linked-by-heart.org/index.html

Supporting and Linking HLHS Families Across the Country. Linked by Heart advances the mission of Sisters by Heart by providing additional regional and. Local support and resources to families affected by Hypoplastic Left Heart Syndrome. Linked by Heart aims to foster connections amongst the HLHS community. With a significant increase in the care package nominations received since our formation in 2010, the Sisters by Heart Board. Developed the concept of. In an effort to provide more. We look forward to ...

2

Find Families - Linked by Heart

http://www.linked-by-heart.org/find-families.html

To load this Caspio Online Database. SISTERS BY HEART AND LINKED BY HEART ARE INTENDED TO BE SUPPORT GROUPS ONLY. WE DO NOT HAVE ANY MEDICAL EXPERTISE. WE ARE HERE TO GIVE OUR PERSONAL EXPERIENCES AND OFFER OUR SUPPORT FOR NEWLY DIAGNOSED PARENTS GOING THROUGH THIS HLHS JOURNEY. ANY ADVICE OR SUGGESTIONS WE MAY GIVE DO NOT TAKE THE PLACE OF MEDICAL ADVICE. YOU ARE STRONGLY ENCOURAGED TO SPEAK WITH A MEDICAL PROFESSIONAL REGARDING YOUR CHILD'S SPECIFIC CONDITION. Free web template by Free Website Templates.

3

Sisters by Heart - Linked by Heart

http://www.linked-by-heart.org/sisters-by-heart.html

Check out our Blog for more information and HLHS resources. Each care package is made with items that we feel were helpful to us when our babies were in the hospital. Below is a list of items often available for our care packages. Items may vary depending on supply demands. Side-snap shirts / onesies. Pampers Miracle Onesies and Caps. El Segundo, CA 90245. Or Click below to make your tax deductible donation online with our secure paypal link. SISTERS BY HEART AND LINKED BY HEART ARE INTENDED TO BE SUPPOR...

4

Regional Coordinators - Linked by Heart

http://www.linked-by-heart.org/regional-coordinators.html

Regional Coordinators and Facebook Pages. Linked by Heart (LBH) is divided amongst six regions within the United States. Each region is represented by our Regional Coordinators (introduced below), moms from across the nation who’ve walked in your shoes and want to help you connect with other families in your same situation. They can assist you in. With other HLHS families in your geographic area or receiving care and treatment at your hospital. Meet Our Regional Coordinators:. That was the day we learned...

5

CHD Resources - Linked by Heart

http://www.linked-by-heart.org/chd-resources.html

In our efforts to provide HLHS families additional support and resources, we’ve compiled the following list from across the nation that you may find useful now, or at some point in your HLHS journey. If you see an organization you would like to learn more about, click on the organization’s name to be directed to their website. Linked by Heart Regional Facebook Groups. Facebook groups led by Linked by Heart Regional Coordinators to connect families affected by HLHS. Hypoplastic Left Heart Syndrome. The pa...

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isabellesheart.blogspot.com isabellesheart.blogspot.com

Isabelle's Heart ~ Our Journey with HLHS: August 2013

http://isabellesheart.blogspot.com/2013_08_01_archive.html

Isabelle's Heart Our Journey with HLHS. Hypoplastic Left Heart Syndrome (HLHS) was diagnosed at our ultrasound at 18 weeks. This is a blog about a Congenital Heart Defect (CHD) called HLHS and our journey with Isabelle; our visits to University of Michigan and C.S. Mott Children's hospital; and our life. Saturday, August 17, 2013. Sept 17, 2012. Wanted and needed to see my baby girl! She weighed 5lbs 13 oz and was 18 inches long. Izzy's tiny foot prints. Mommy's first look at Izzy. After looking at her p...

praying4raygen.blogspot.com praying4raygen.blogspot.com

Praying 4 RAYGEN: Randoms....

http://praying4raygen.blogspot.com/2015/08/randoms.html

Tuesday, August 4, 2015. I leave the room for five minutes and I come back to this, lol! She truly is a toddler. Yesterday at work I turned around and found Raygen sleeping on the chair. She woke up at 5am ready to start her day and by 3pm she needed a cat nap. She is so wonderful. There is never a dull moment with Raygen. Subscribe to: Post Comments (Atom). Visit Erin's profile on Pinterest. To Learn More about HLHS. CHOP HLHS Video Series. NW Children's Heart Care. Raygen's Cardiologist, Dr Park.

emmajanae.blogspot.com emmajanae.blogspot.com

Hope for Emma's Heart: A Day in the Life

http://emmajanae.blogspot.com/2015/05/a-day-in-life.html

Poems and Songs for HLHS Babies. CHD Facts and Stats. Monday, May 11, 2015. A Day in the Life. 12:04am: Beeping medicine pumps. I hate the beeping pumps. Now Emma is awake and can't get settled. 2:45am: Feeding pump is beeping which wakes Emma up again. 7:30am: Rise and Shine Boston. Emma is waking up and it is my turn to get ready for the busy day ahead. 8:05am: Sarah arrived with coffee. 8:15am: Doctor rounds with around 15 different medical professionals. 8:40am: 6 doctors come in room to examine Emma.

praying4raygen.blogspot.com praying4raygen.blogspot.com

Praying 4 RAYGEN: Tape?

http://praying4raygen.blogspot.com/2015/08/tape.html

Saturday, August 15, 2015. The cutest thing happened this week. Raygen's little cousin, Layton, now spends a few hours a week with us at the office. His mommy, Lexi, helps me at the office. Layton was fascinated watching Raygen play and decided he would play with tape like Raygen. He asked me to take his socks off, because Raygen wasn't wearing any, and then proceeded to tape his toes together. Why? Well cause Raygen was putting tape on her toes, lol! We have big plans tomorrow. Heading to Tacoma for...

praying4raygen.blogspot.com praying4raygen.blogspot.com

Praying 4 RAYGEN: First Born

http://praying4raygen.blogspot.com/2015/07/first-born.html

Thursday, July 23, 2015. Last year I was able to share part of my experience of being a mother to a special needs child and how it affected my older daughter. Thought I would share. Http:/ www.mommyhotspot.com/firstborn-daughter-bond/. Subscribe to: Post Comments (Atom). Visit Erin's profile on Pinterest. To Learn More about HLHS. CHOP HLHS Video Series. NW Children's Heart Care. Raygen's Cardiologist, Dr Park. Hope for Emma's Heart. When Life Hands You A Broken Heart. Promote Your Page Too.

pdsweeties.blogspot.com pdsweeties.blogspot.com

PD Sweeties: April 2014

http://pdsweeties.blogspot.com/2014_04_01_archive.html

Wednesday, April 30, 2014. Lily had a Preschool field trip to the Dinosaur Park. We got to tag along this time. This is Rachel. Lily's new friend! Monday, April 21, 2014. We headed for home about 12:30 on Sunday afternoon got home showered and dressed in our new Easter outfits. Papa B had the tramp all set up for the kids! What a great Easter Sunday activity (or maybe not. oh well! What a beautiful family (even if I do say so myself! Stopped to get pictures with Ma and Pa! The kids are pros! Checking out...

willisfamilyheart.blogspot.com willisfamilyheart.blogspot.com

The Willis Family: August 2013

http://willisfamilyheart.blogspot.com/2013_08_01_archive.html

Thursday, August 22, 2013. A day in the life. Jensen is now 18 months old! That seems so unreal to me, where has the time gone? So I thought I would do a photoblog to show you what its like being a super cute superhero! We do this almost every day. He loves to walk laps around the yard while pushing his toy (which he totally doesn't need to walk, but he insists on pushing it everywhere! I love that fluffy cloth diaper butt of his! I wasn't kidding, he LOVES to push this thing around every day! Showing me...

willisfamilyheart.blogspot.com willisfamilyheart.blogspot.com

The Willis Family: December 2013

http://willisfamilyheart.blogspot.com/2013_12_01_archive.html

Tuesday, December 24, 2013. Merry Christmas from the Willis Family! I hope you are all enjoying the holidays with your family! I'm sitting in my kitchen, cookies baking in the oven, Jensen taking a nap, and my husband in the next room.we are abundantly blessed! We are all healthy and all under one roof, we couldn't ask for more than that. Everything is so new and so exciting for him, which of course, makes us super excited about celebrating Christmas together. Posted by Amelia Willis. Finding out we were...

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Find Families - Linked by Heart

To load this Caspio Online Database. SISTERS BY HEART AND LINKED BY HEART ARE INTENDED TO BE SUPPORT GROUPS ONLY. WE DO NOT HAVE ANY MEDICAL EXPERTISE. WE ARE HERE TO GIVE OUR PERSONAL EXPERIENCES AND OFFER OUR SUPPORT FOR NEWLY DIAGNOSED PARENTS GOING THROUGH THIS HLHS JOURNEY. ANY ADVICE OR SUGGESTIONS WE MAY GIVE DO NOT TAKE THE PLACE OF MEDICAL ADVICE. YOU ARE STRONGLY ENCOURAGED TO SPEAK WITH A MEDICAL PROFESSIONAL REGARDING YOUR CHILD'S SPECIFIC CONDITION. Free web template by Free Website Templates.

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