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Little Princess with CP | family life, running & cerebral palsy

family life, running & cerebral palsy

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Little Princess with CP | family life, running & cerebral palsy | littleprincesscp.wordpress.com Reviews

https://littleprincesscp.wordpress.com

family life, running & cerebral palsy

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1

I’m back! | Little Princess with CP

https://littleprincesscp.wordpress.com/2014/09/15/im-back

Little Princess with CP. Family life, running and cerebral palsy. Skip to primary content. September 15, 2014. Little Princess with Cerebral Palsy. It’s been ages I know! Last post was just after Perth Marathon in June and before we left for our holiday to Sweden. Well we had a great time and it was really nice to see family and friends again. I only ran one time and it was a shocking run. I also ate a lot of yummy and unhealthy foods but also plenty of prawn salads so all good! I will keep you posted!

2

Little Princess with Cerebral Palsy | Little Princess with CP

https://littleprincesscp.wordpress.com/author/littleprincesscp

Little Princess with CP. Family life, running and cerebral palsy. Skip to primary content. Skip to secondary content. Author Archives: Little Princess with Cerebral Palsy. September 15, 2014. Little Princess with Cerebral Palsy. It’s been ages I know! The weather was amazing, about 28-30 degrees for most of the holiday, crazy hot for being Sweden. Since we have been back in Perth we have been jet-lagged a week and then sick three times! Cayla is still loving her school and so do we! If all goes well we m...

3

C2S and WalkAide | Little Princess with CP

https://littleprincesscp.wordpress.com/2013/09/05/c2s-and-walkaide

Little Princess with CP. Family life, running and cerebral palsy. Skip to primary content. September 5, 2013. Little Princess with Cerebral Palsy. It’s been ages I know! I decided to take a little break from the blogging but I know my family in Sweden loves my updates so better get cracking! Since the last post which was my 5km time trial we have been busy with lots of things. The Running Centre. I am still training six days a week and loving it! Smoothies, soups, almond milk, cinnamon buns, bread, prote...

4

Little Princess with CP | family life, running & cerebral palsy | Page 2

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Little Princess with CP. Family life, running and cerebral palsy. Skip to primary content. Skip to secondary content. Newer posts →. February 25, 2014. Little Princess with Cerebral Palsy. We will be in Sweden 27th June to 24th July this Summer, can’t wait to catch up with friends and family! February 15, 2014. Little Princess with Cerebral Palsy. I hope they will do more of that during the holidays since we won’t be at the centre very often now when Cayla is at school full-time. It did not look great an...

5

No More Botox? | Little Princess with CP

https://littleprincesscp.wordpress.com/2014/06/13/no-more-botox

Little Princess with CP. Family life, running and cerebral palsy. Skip to primary content. June 13, 2014. Little Princess with Cerebral Palsy. Earlier in the week we had our post-botox appointment at PMH. This is where we meet with a pediatrician and a physio therapist where they will assess the effects of the Botox injections. I had quite a few questions and wanted to talk to them about Cayla’s laryngospasm. That happened during her last GA. You can read about that here. This entry was posted in Botox.

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Hemma på snabbvisit  | From Huskvarna to Highgate

https://malinlondon.wordpress.com/2015/07/26/hemma-pa-snabbvisit

From Huskvarna to Highgate. My life in London. 26 juli, 2015. Hotellet vi bodde på var sådär, det är en baksida ned att resa så mycket som vi gör man blir kräsen. Typiskt engelsk B&B med obligatorisk heltäckningsmatta en liten dubbelsäng där vi trängdes alla 3, och ett super litet rum. Vi bor ju så himmla fint hemma. Så när man åker bort och dessutom betalar för rummet så vill man ju gärna att det ska vara finare. Det här inlägget postades i Uncategorized. Skriv din kommentar här. Herring and Crisp Bread.

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About | Lilla isa

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Isa's journey living with epilepsy and brain malformation. Hi and welcome to Isa’s life. I’m Lizette, Isa’s mom and this is her story. I’m a Mexican born now living in Sweden, I’m married to Nicklas and we have a yoga studio in Uppsala Sweden, just so you understand if you read something about classes or the studio, this is where we spend most of our day together with Isa. If you want to read about Isa’s story, the best place to start is here “Where to begin? Lilla Isa means: Little Isa in swedish. The O...

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Wordless Wednesday | Lilla isa

https://lillaisa.wordpress.com/2014/11/05/wordless-wednesday

Isa's journey living with epilepsy and brain malformation. November 5, 2014. Isa’s day care picture. 4 thoughts on “ Wordless Wednesday. November 5, 2014 at 1:55 pm. Farmors söta lilla tjej. November 5, 2014 at 7:02 pm. When I see your pictures Lizette, I admire your two wonderful girls; Ella is so cute but when I see Isa my heart opens up. I love her. November 6, 2014 at 11:06 am. Lovely charming fantastic girl . She is so Beautiful. Iza is magic. November 6, 2014 at 11:06 am. Leave a Reply Cancel reply.

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The bus – Jennifer's story

https://ryanakajoey.com/2014/06/11/the-bus

Arteriovenous malformation, hydrocephalus, cerebral palsy, blind, epilepsy and a great big heart! June 11, 2014. Mercedes Benz Vito 113 CDI extra long. Turning circle 12.5m in diameter. 5 seats, with the option to remove one when the wheelchair comes. This is a bus, not a car! It’s probably the most important piece of equipment we will have. It’s not our car, it actually belongs to social security. We have to insure it, we have to maintain it, but we also have to deliver it back in 12 years. But then aga...

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The operations – Jennifer's story

https://ryanakajoey.com/2014/04/03/the-operations

Arteriovenous malformation, hydrocephalus, cerebral palsy, blind, epilepsy and a great big heart! April 3, 2014. Ever since Jennifer was 6 months old we wondered if she would need a G-tube. That time has finally come, or more correctly, that time is overdue. Jennifer followed her weight curve right up until she was about 16 months old. It then flattened out completely. I think she weighed around 7,5kgs, she was never fat and she was always eating just enough. She weighs 8,5 kilos. But like everything els...

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The trip – Jennifer's story

https://ryanakajoey.com/2014/07/29/the-trip

Arteriovenous malformation, hydrocephalus, cerebral palsy, blind, epilepsy and a great big heart! July 29, 2014. If you’d have asked me 3 years ago to travel from one side of the planet to the other with a child that can’t see, that can’t talk, that can’t walk and needs feeding through a tube I would have laughed, told you that that is impossible, and thrown a few choice profanities your way too! How big is the plane (A 380) Emma? How naïve we were to think that having a healthy child was difficult!

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The extension, part 1 – Jennifer's story

https://ryanakajoey.com/2014/05/12/the-extension-part-1

Arteriovenous malformation, hydrocephalus, cerebral palsy, blind, epilepsy and a great big heart! The extension, part 1. May 12, 2014. Our house before the extension. In the never-ending line of things to fix, the house gets its turn. Universal living, or design for everyone. We’ve had these drawings more or less ready since November. But as our house is in the middle of an area which will become a new estate very soon, we’ve had a few delays along the way. This should be fun! No, it’s because univ...

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The hip operation – Jennifer's story

https://ryanakajoey.com/2015/04/12/the-hip-operation

Arteriovenous malformation, hydrocephalus, cerebral palsy, blind, epilepsy and a great big heart! April 12, 2015. April 12, 2015. Jennifer’s fifth operation, her longest and undoubtedly her most painful…. She was first due to have the operation around February but woke the morning before with a fever. We stayed overnight at the hospital anyway but the surgeons cancelled it in the morning. No risks. She was booked in a month later. It’s the hardest of tasks, I envy Jennifer in that sense…. They usually dr...

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The question – Jennifer's story

https://ryanakajoey.com/2014/09/03/the-question

Arteriovenous malformation, hydrocephalus, cerebral palsy, blind, epilepsy and a great big heart! September 3, 2014. October 7, 2014. I usually don’t deliberate over my posts, I generally just write them and post them without too much editing. They’re generally just a mix of thoughts and feelings I need to get out of my head. This one’s a bit different, as I’ve had this written for a few months but wondered if it was right thing to do by posting it. Hasn’t a doctor been wrong before? Maybe that’s w...

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The medical thing – Jennifer's story

https://ryanakajoey.com/2013/10/25/the-medical-thing

Arteriovenous malformation, hydrocephalus, cerebral palsy, blind, epilepsy and a great big heart! October 25, 2013. It’s probably been too long since I’ve informed anyone about Jennifer’s actual medical condition, it doesn’t really make for pleasent reading but here it goes anyway;. Despite our best efforts, depsite Jennifer’s better eating habbits, depsite the slight improvement in her oral motor skills she will have a feeding tube placed in her stomach. She lacks muscle mass, and muscle weighs more tha...

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Little Princess with CP | family life, running & cerebral palsy

Little Princess with CP. Family life, running and cerebral palsy. Skip to primary content. Skip to secondary content. September 15, 2014. Little Princess with Cerebral Palsy. It’s been ages I know! The weather was amazing, about 28-30 degrees for most of the holiday, crazy hot for being Sweden. Since we have been back in Perth we have been jet-lagged a week and then sick three times! Cayla is still loving her school and so do we! I will keep you posted! Very exciting news is that Cayla lost her first too...

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