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Living With ME/CFS

I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.

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Living With ME/CFS | livewithcfs.blogspot.com Reviews
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I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.
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Living With ME/CFS | livewithcfs.blogspot.com Reviews

https://livewithcfs.blogspot.com

I have had Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) since March 2002. Both of my sons also got ME/CFS at ages 6 and 10. Our younger son fully recovered after 10 years of mild illness. Our older son still has ME/CFS and also has Lyme disease plus two other tick infections. This blog is about how our family lives with chronic illness, with a focus on improving our conditions and enjoying our lives in spite of these challenges.

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livewithcfs.blogspot.com livewithcfs.blogspot.com
1

Living With ME/CFS: Treating CFS Sleep Dysfunction

http://livewithcfs.blogspot.com/2009/09/treating-cfs-sleep-dysfunction.html

Wednesday, September 16, 2009. Treating CFS Sleep Dysfunction. I'm doing much better this week - my two-week long crash seems to have finally ended - but last night I had the worst night's sleep I've had in years! After a year of searching for answers when I first became sick, I finally stumbled onto the doctor I see now. She's a local family doctor, but she has several other CFS patients and recognized it in me almost immediately when I showed her my year's worth of charts and graphs! The best approach ...

2

Living With ME/CFS: Double Your Donation - One More Week Only!

http://livewithcfs.blogspot.com/2015/05/double-your-donation-one-more-week-only.html

Friday, May 22, 2015. Double Your Donation - One More Week Only! Anyway, to the point. Until May 30, an anonymous donor has offered to match donations. Made to the Solve ME/CFS Initiative. A very worthwhile charity that puts almost all of its contributions directly toward research through its Research Institute Without Walls. So, take a moment to make a donation to SMCI. Before May 30, and it will automatically double! Give what you can and then relax and enjoy the holiday weekend. Daily life with CFIDS.

3

Living With ME/CFS: Orthostatic Intolerance and CFS

http://livewithcfs.blogspot.com/2010/02/orthostatic-intolerance-and-cfs.html

Thursday, February 04, 2010. Orthostatic Intolerance and CFS. Orthostatic Intolerance (OI) has been cropping up in a lot of conversations lately - on blogs, on Facebook, through e-mails, and in online discussions. I realized that, although I mention OI a lot here, I've never really written about it in depth or fully explained our own experiences, so here we go. Jamie and I went to see Dr. David Bell. And started to feel sick. His blood pressure plunged, and his heart rate went way up. Dr. Bel...This is h...

4

Living With ME/CFS: Heart Rate and Post-Exertional Crashes in CFS

http://livewithcfs.blogspot.com/2011/02/heart-rate-and-post-exertional-crashes.html

Thursday, February 03, 2011. Heart Rate and Post-Exertional Crashes in CFS. I've been meaning to write this post for a while now. Sorry for the delay - we've had some very stressful weeks here lately. Which explains how monitoring your pulse rate can help you to stay within your limits and avoid the crashes we are all so familiar with. It's an excellent article - I highly recommend you read it - but I wanted to also tell you some of what I've learned from my own experiences recently. During this process,...

5

Living With ME/CFS: Movie Monday 5/18

http://livewithcfs.blogspot.com/2015/05/movie-monday-518.html

Monday, May 18, 2015. It was a big week for movies for me - I saw three excellent movies last week:. My husband took his dad to Atlantic City for his 90th birthday, so I chose a movie billed as "quirky," which my husband doesn't always appreciate! I watched Hector and the Search for Happiness. And absolutely loved the feel-good movie! My son had oral surgery on Friday, so I got a movie I thought he might enjoy: St. Vincent. This is another feel-good movie that we both enjoyed very much. Thank you for int...

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Resources | ME/CFS Self-Help Guru

http://www.mecfsselfhelpguru.com/resources

Holistic coaching, supporting and empowering people with ME/CFS (S.E.I.D), Fibromyalgia and other chronic illness towards better health, happiness and rediscovered dreams. (Myalgic Encephalomeylitis, Systemic Exertion Intolerance Disease, Chronic Fatigue Syndrome). ME Connect Helpline: 0844 576 5326; email: meconnect@meassociation.org.uk. Membership: 01280 818 968 (or download application form from website). ME Association, 7 Apollo Office Court, Radclive Road, Gawcott, Bucks, MK18 4DF. Tel: 0845 003 9002.

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Long hard road out of hell. | Surprising ME

https://surprisingme.wordpress.com/2010/12/02/long-hard-road-out-of-hell

Bringing the inert to life. Long hard road out of hell. Welp It’s been a very long month. What with driving lessons, feline shenanigans, child wrangling, Christmas planning (and spending), epic twitter spam and an impromptu visit to my mother’s place for four days, I really didn’t expect that I’d make it. I only went and fucking did it, didn’t I? Managed a paulty 14,000 words before jacking it all in and spending the rest of November watching TV and eating cake). I can still write. Posted in Daily life.

lymeiscrazy.blogspot.com lymeiscrazy.blogspot.com

Lyme is Crazy: December 2013

http://lymeiscrazy.blogspot.com/2013_12_01_archive.html

Tuesday, December 31, 2013. New Year's Eve Ideas for little kids. I'm not much for going out these days. It just takes too much of a toll on my body. Not to mention that my kids are really small (ages 2 and 6), so we're usually in bed WAY before the midnight bell rings. So, I've put together some ideas that we can do this year, together, as a family. 3 Sparkling Cider. To let the kids have a taste of celebration we'll toast with sparkling cider. Labels: Happy New Year. Subscribe to: Posts (Atom). Amy Tan...

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Lyme is Crazy: New Year's Eve Ideas for little kids

http://lymeiscrazy.blogspot.com/2013/12/new-years-eve-ideas-for-little-kids.html

Tuesday, December 31, 2013. New Year's Eve Ideas for little kids. I'm not much for going out these days. It just takes too much of a toll on my body. Not to mention that my kids are really small (ages 2 and 6), so we're usually in bed WAY before the midnight bell rings. So, I've put together some ideas that we can do this year, together, as a family. 3 Sparkling Cider. To let the kids have a taste of celebration we'll toast with sparkling cider. Labels: Happy New Year. Subscribe to: Post Comments (Atom).

lymeiscrazy.blogspot.com lymeiscrazy.blogspot.com

Lyme is Crazy: Summer's Over Already?

http://lymeiscrazy.blogspot.com/2013/08/summers-over-already.html

Friday, August 23, 2013. I'm not really sure where the time has gone, but Monkey started Kindergarten on Monday - wow! Roo was not very happy about it, to say the least! But we did get away the week before school started for an unplugged vacation in the mountains! Luckily, this big one didn't get away! We played puzzles, pine cone golf, and climbed rocks. Found a local playground. Ate lots of meals outside:. And just generally got dirty! Labels: back to school. August 24, 2013 at 12:41 PM. Where I grew up.

lymeiscrazy.blogspot.com lymeiscrazy.blogspot.com

Lyme is Crazy: February 2013

http://lymeiscrazy.blogspot.com/2013_02_01_archive.html

Thursday, February 28, 2013. DIY project #1 - dishwasher detergent. A few years ago we decided to go non-toxic with all our cleaning supplies and our grocery bill skyrocketed! Buying the name brands is expensive! So in efforts to tame our budget a little bit I decided to try my hand at making some cleaning staples. First up (mainly because that's what we were out of) was Dishwasher Detergent. Super simple and works well, too. Here's what I did:. 1 cup washing soda ( you can make your own from baking soda.

lymeiscrazy.blogspot.com lymeiscrazy.blogspot.com

Lyme is Crazy: December 2012

http://lymeiscrazy.blogspot.com/2012_12_01_archive.html

Monday, December 24, 2012. Christmas through the eyes of a 5 year old. And they sent their disciples to him, along with the Herodians, saying, “Teacher, we know that you are true and teach the way of God truthfully, and you do not care about anyone’s opinion, for you are not swayed by appearances. Sunday, December 23, 2012. I've been absent from the blogosphere lately because I've been treading water and almost drowning! It's a good thing I love them all so much or I think I'd just give up. Being Chronic...

lymeiscrazy.blogspot.com lymeiscrazy.blogspot.com

Lyme is Crazy: May 2014

http://lymeiscrazy.blogspot.com/2014_05_01_archive.html

Friday, May 9, 2014. Semi-Permanent Rinse and Repeat. I don't know how to even start this post. Like everything in my brain lately, I know what I want to say but not quite sure how to say it. As such, I've thought many times about just closing up my blog and moving on, but then I'll think of something worthwhile to post . only to struggle to put the words to paper. Subscribe to: Posts (Atom). View my complete profile. Where I grew up. Where I live now. Semi-Permanent Rinse and Repeat. Living the Lyme Life.

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Tuesday, April 03, 2018. TV Tuesday: The Resident. Even though we still watch (and love! And don't really need another medical TV show, during the doldrums of winter TV, my husband and I tried The Resident. Mostly because we both love the main actor, who played Cary on The Good Wife. And, I just discovered, Logan on Gilmore Girls. We have some complaints about this new medical show but are still watching and enjoying it overall and plan to continue. Much of The Resident. It's kind of hard to swallow....

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